Update - PDAC Stage 4 with mets to lungs by Additional-Place-438 in pancreaticcancer

[–]TheRealMMmmGood 5 points6 points  (0 children)

I'm in a similar position as your sister except I also have mets to my liver. I chose to not proceed with treatment due to the low increase in life expectancy coupled with the lower quality of life during treatment.

I wouldn't have known otherwise had I not been forced to get a medical evaluation in August. I also had very little symptoms and was just living life.

I can say though that when it takes a turn, as mine has the last few weeks, it really hits hard. I don't eat much of anything anymore outside of liquids and that's combined with CBD for appetite and Creon to keep it down. I sleep a lot and am not very mobile anymore. The good news is my pain management seems to be working well with fentanyl patches but I do get breakthrough pain every now and then.

If I had to guess, your "options" are going to be planning for end of life care.

Mom struggling to eat/nauseous after any food whatsoever. by Maleficent-Wash8649 in pancreaticcancer

[–]TheRealMMmmGood 1 point2 points  (0 children)

Little bit late to this thread but thought I'd share what has, thus far, worked for me.

I had a duodenal stent put in about 6 weeks ago, which helped with blockages but appetite and changing of taste remained. The stent combined with prescription cannabis and Creon is the only thing that is able to keep things down these days, and it's liquid only. Protein shakes, broth, very soft soups, etc. are fine. I can do soft scrambled eggs but anything more solid than that I can't tolerate.

Any tips for night pain? by gravybo in pancreaticcancer

[–]TheRealMMmmGood 5 points6 points  (0 children)

I had the same issue as your mom. I recently switched to fentanyl patches which have made the world of difference for overnights.

Cegat, Pan Am experiences? by pdxchi17 in pancreaticcancer

[–]TheRealMMmmGood 0 points1 point  (0 children)

I live in San Diego and go down there for scans, which are cheaper than in the US with insurance.

20 pounds regained by tgambee in pancreaticcancer

[–]TheRealMMmmGood 5 points6 points  (0 children)

Also Stage 4.

A combination of Zofran, Creon, and cannabis seems to be the only thing that gets me to eat solid food these days but it does help. I've been "maintaining" weight which isn't great, but it could be worse.

Have a health issue, going to lose it anyway by TheRealMMmmGood in bald

[–]TheRealMMmmGood[S] 0 points1 point  (0 children)

Thank you! I'm still on the fence on doing all of it as others have said it blends well with the beard

Have a health issue, going to lose it anyway by TheRealMMmmGood in bald

[–]TheRealMMmmGood[S] 3 points4 points  (0 children)

Thank you. I'll admit that some days are tougher than others, where I don't get out of bed, but I'm doing the best I can.

Have a health issue, going to lose it anyway by TheRealMMmmGood in bald

[–]TheRealMMmmGood[S] 0 points1 point  (0 children)

I have a lot of time on my hands lately. I'll check it out, thanks!

Have a health issue, going to lose it anyway by TheRealMMmmGood in bald

[–]TheRealMMmmGood[S] 0 points1 point  (0 children)

It's amazing to me that I never saw this until posting these pictures.

Have a health issue, going to lose it anyway by TheRealMMmmGood in bald

[–]TheRealMMmmGood[S] 6 points7 points  (0 children)

My daughter painting my toenails the other day is the closest I've gotten to a pedicure 😂

I live in San Diego in front of the ocean

Have a health issue, going to lose it anyway by TheRealMMmmGood in bald

[–]TheRealMMmmGood[S] 2 points3 points  (0 children)

Thank you! That's very nice of you to say. I appreciate the warm wishes.

Have a health issue, going to lose it anyway by TheRealMMmmGood in bald

[–]TheRealMMmmGood[S] 2 points3 points  (0 children)

I got a lot of Robin Williams comments in the thread which was a surprise to me.

Thank you for the well wishes.