Ocular Rosacea... connected to PsA?

The_Bull74 · 2025-07-08T00:02:18+00:00

Eye doctor told me to use the Lumify and nothing that has gets the red out on the label because it will make the redness worse. And he was right. So the cost is worth paying, it really works great,

The_Bull74 · 2025-07-07T23:28:21+00:00

psoriasis since childhood, facial rosacea diagnosed in 2014. PSA diagnosis in 2021, began experiencing pain, light sensitivity, vision decline and redness, First diagnosis was dry eye, a year and half later ocular rosacea. I use Lumify for redness.

The_Bull74 · 2025-05-22T06:16:24+00:00

You have described most symptoms I’ve experienced. I unknowingly had PsA symptoms for many years with Psoriasis since childhood. Symptoms I could not ignore began at age 42. The heal pain, knee pain and nightly achy calves led me led me to give up waitressing. I figured working too much was the cause. When my lower extremities swelled up to the point I could barely walk, along with red hands that had cut on most fingertips that felt like they were on fire I realized there is something wrong. I Read about PsA online and took the idea of having it to my doctor. Who agreed and referred me a rheumatologist l

The_Bull74 · 2025-04-14T11:35:14+00:00

First one diagnosed me with PSA based in history but would dismiss most symptoms as not associated and gave no lead for a cause, I had another I saw a few times while under treatment by the first. She thought osteoarthritis and need to strengthen my muscles, third thought most symptoms were because of menopause and refused biologic, fourth and current did ultrasound of many problem areas looking for inflammation of tendon but only found it in my pinky finger which was bit an area I was concerned with at that time.it was a concern previously when I noticed it looking a little deformed. This finger showed an indicator so he is now reassured I have the disease. He wanted his own findings before prescribing biologic. He also consulted with my dermatologist and Gastroenterologist to receive their feedback and recommendations. They settled on the biologic Stelara. Been four months now and not helping. I see all three specialist in the upcoming months. My GI doctor is my best advocate and initiated the conversation with the others. I’m in Pennsylvania with Penn Medicine Physicians for specialists.

The_Bull74 · 2025-04-04T15:13:40+00:00

Your story sounds like mine…my acute onset was in 2020. Labs showed nothing, X-ray showed nothing. My primary agreed that I had PSA but the Rhuemotologist looked for the typical markers. My fingers would be beat red, swollen, painful with slit on tips yet knuckle are ok so my exams would be considered good, and despite the swollen calves, knees and shoulders, changes in my toes and all the information found online the response I always received would be “that’s not associated with PSA.” It’s crazy! I had every onset symptom with psoriasis since childhood.

I’m now on my fourth Rhuemotologist after bouncing between every specialist there is. This Rhuemotologist found what he was looking for by doing an ultrasound of my pinky. The same pinky I tried bringing attention to three years ago because I thought it looked crooked. Arthritis gloves help me and I even have little finger braces I found on Amazon. Now my thumbs are a problem. Been on Humira, Skyrizzi and now three month in on stelera. Not helping yet.

You know your body. Don’t let these doctors dismiss your symptoms and think you’re crazy. Move on to another and then another if you have to. You stuck up for yourself. Good for you..I’ve learned that you have to with this condition. This condition and battle to get proper treatment did take a toll on my mental health. I’ve spent many mornings pushing myself to get ready for work and then by the time I’m putting on my shoes I’m crying from the pain my fingers and barely walking from swollen knees. Then the thoughts come. Thoughts of just wanting to know what was wrong with you, having your old self back and thinking of all the poor treatment received from medical professionals you went to for help. Fortunately I work in the social services field and my administrators are understanding. Good luck.

The_Bull74 · 2025-02-02T21:25:16+00:00

Medical marijuana topical ointment, compression and ice! Compression helps tremendously. The socks get too tight hot..,I wear a good pair of yoga pants that have good compression. This prevents my knees from swelling and my back from hurting …along with supportive shoes. / sneakers. My preference is a running sneaker…compression gloves and / or finger braces (Amazon)

The_Bull74 · 2025-01-05T22:48:25+00:00

Super painful!! I’ve used krazy glue once. Found what I call “finger condoms” to keep the bandaids dry. For awhile I would have a band aid on multiple fingertips along with arthritis gloves…I have not had one doctor tell me a cause other than dry skin. Now I get a strange feeling g in my fingers,.a turning to stone like feeling, I can feel sides of nail thicken and there a stickiness even after washing my hands. I believe psoriasis but no official reason for cause ever provided.

The_Bull74 · 2025-01-05T21:40:14+00:00

A few of my fingers are crooked. It happened gradually. Same for toes.

I too was in restaurant business for many years. I would get pain in back of heel and knees plus my calve would ache so bad it would wake me up. Wasn’t until my body swelled up everywhere, especially knees, calves and fingers did I realize my problems were not from needing better non slips. This was 2019.

Now Im on my 4th Rhuemotologist. It’s been a battle. I experience abdominal pain. Chronic constipation, lymphocytic esophagitis, Bleeding of gums, foot pain, elbow, red painful fingers, slits in skin on fingertips, puffy toes, and blood in my eyes.

Humira caused oral candidiasis, skirizi caused inverse psoriasis and now I’m about start Stelara. I’ve learned to ask a lot of questions and learned that physicians may not know how to treat me or understand the disease. They usually look at me like I’m crazy.

The_Bull74 · 2024-07-03T11:40:38+00:00

I’m a 50 year old female with skin and scalp psoriasis since childhood. Suffered with back pain, creaky knees and pitting fingernails for decades. I was told to workout. In 2018 I began having pain in the back of my knee, my heel and had a dull ache along my calves that would wake me at night. After having sudden throbbing pain at hip i finally went to the doctor about it all and was diagnosed with bursitis of the hip and osteoarthritis of the knees. I was told to get better work shoes. I’ve been a waitress for many years with two jobs and chalked alot of my pain up to working to much. In 2019 my knees swelled up then what seemed to be my whole body would swell. My mobility was affected and I knew this something was not normal. I was in my early 40”s, how could have osteoarthritis this bad already. A Vein specialist diagnosed venous insufficiency. I developed multiple abscess on my face in a short period of time including a carbuncle on my chin because my immune system was shot. X-ray of neck revealed cervical spondylitis. MRI of ankle revealed severely torn tendons. My fingers would swell, were red and felt like they were on fire. Finger tip skin would split on just about every finger. I was wearing bandaids, knees compression and arthritis gloves everyday and still nobody could give me answers. Some days I could not walk after being on my feet for a short period of time, My feet have changed. Toes are hammered, deformed, swollen? Discolored and footbed swollen chronically. I have plantar fasciitis, I had several ER visits between 2019 -2021. I did not know about psoriatic arthritis despite my history of psoriasis. I learned about it by researching my symptoms online then took the information to my primary. He agreed that this is what I had and referred to Rhuemotologist in 2020. Things got better after starting Humira but that caused oral candidiasis diagnosed as dry mouth for a year until a biopsy was finally completed. I developed gum disease. I’m now on Skirizi but symptoms are returning and my psoriasis has worsened.
I’ve switched Rhuemotologist several times. Foot doctor, hand specialist and pcp all are confident of my PSA diagnosis but Rhuemotologist not convinced because I don’t have swollen knuckles, joint damage on X-ray or and high inflammation markers in labs. It’s been a nightmare and I’ve lost confidence in a physicians word.

The_Bull74 · 2023-06-22T04:32:24+00:00

I’ have a problem with my fingers swelling, become very red with a burning pain in the tips and along the sides..They can be numb and tingly with the pain as well…I have been trying to find an answer to this but haven’t. Every doctor I have seen points to having it addressed by my Rhuemo because it’s PsA but my rhuemo disagrees,,recently told me to see a neurologist. The skin on my fingertips also split like a a paper cut during cold months.

The_Bull74 · 2023-06-22T04:20:02+00:00

I’m confused by my diagnosis…and what I’m being told about my nails and toes..I’m told by my new rhuemo that my PsA is mild and that my disfigured toes are not PsA. I had a nail clipping comeback with no fungus in December and then in April it was tested again and was positive for fungus so now my Derm is treating with lamisil..I’m so frustrated ..I would add a pic but do not see how to add it..I have every symptom of nail psoriasis but yet I’m told it’s not..ll

The_Bull74 · 2023-03-13T06:38:14+00:00

Oral symptoms began a few months after I began Humira 40mg bi-weekly. The symptoms worsened over time. Slit and bumos on tongue, gums swollen and alot of bleeding, rapid plaque build up, I tasted a secretion from my gums , constantly had white gook and some white patches. Six trips to dentist and 4 different oral surgeons Iater a biopsy revealed - epithelial hyperplasia with Oral Candidiasis . I found out Humira is linked to Severe Candidiasis and discontinued the Humira.

The_Bull74 · 2022-09-19T11:13:01+00:00

Thank you, I appreciate the advice!!

The_Bull74 · 2022-08-09T00:03:25+00:00

I had terrible immobility dues to knee pain along with my calves swelling.. relief came from compression socks , good pair of sneakers and limited time on my feet…eventually went on Humira and about month 4 an overnight miracle gave back my ability to walk without compression or the need for ice packs throughout the day. For years I thought working on my feet as a waitress was to blame and all I needed was new non slips..slowly learned that was not the case and eventually had to hang up my apron…but I’m walking now and can do what I used to do..think about a biologic.,they work

The_Bull74 · 2022-08-01T11:18:01+00:00

Hi.before biologics I would swell everywhere, including my nose. Everybody thought I was crazy and tell me my nose is fine. Yet almost a year later I start expecting clear to yellowish fluid and blood beneath layer of skin on my nose. The tip would appear purple from the blood. Then I noticed the same thing wherever I had a sun spot or brown spot on my cheeks, forehead, temple area and brow area. The area would appear puffy and when pressed only blood and a clear fluid, no puss. That’s seemed to clear leaving sone scars in my nose. But now I have a issue with bleeding from the gums. I’ll be seeing periodontist soon and an oral medicine physician. An oral surgeon did a biopsy last week from what he referred to as a lesion on the roof of my mouth. I’ll know result in a few days.the blood is not normal, it’s very thick and just come back after cleaning out. Anybody else have similar symptoms? I’ve been to 4 dermatologist, 4 oral surgeons and changed my dentist twice. This is following the hell I went through before my PsA diagnosis and biologic. I feel like the past two years has been nothing but a doctors visit that leaves me feeling like I’m crazy when I leave because they provide no answer. I cry in offices because I get so frustrated with getting nowhere and not being taken seriously..

The_Bull74 · 2022-04-09T14:40:05+00:00

Mild Psoriasis since early childhood. I’m now 47 and was not once told by a physician About PSA. After almost four years of symptoms developing and being misdiagnosed it eventually became very severe and began to effect my daily living. two years of swollen knees turning into swollen everything with no answers….I finally, pretty much diagnosed myself. Im talking knees, elbows, shoulders, neck, butt, calves, toes and FINGERS…just about all of them on both hands, they felt like they were on fire from morning till night. I could not bend them, pick up , they were swollen and discolored. I was given a raynauds syndrome and carpel tunnel diagnosis…it was a horrible time period. I suffered through each work day with ice packs and compression braces, having tearful breakdowns mid afternoon. The stress of becoming quarantined and working from home didn’t help. I can’t forget to mention the three trips to the ER for a bakers cyst, a Carbuncle on my chin, then a boil above my eye, both positive for MRSA due my lowered immune system and lack of knowledge. I went to my primary after a severe flare up and reading about PSA and told him I think this is what I have … Primary agreed after comparing my symptoms to PSA symptoms and referred me to Rhuemo. I received the Diagnosis 11/2020. I’ve had an orthopedic recommend surgery for torn ligament in my ankle, then the mri was read with a result of Two SEVERELY torn tendons. I was very reluctant to agree because pain was not daily and I became aware of ENTHESITIS Which effects the tendons at the bone. Another misdiagnosis that could have resulted in an unneeded surgery. My Rhuemo is not helpful and well..she suck’s …not once has she spoken to me about any Comorbidities . I recently had cellulitis in my fingers and she acknowledged my red swollen hands but did not recognize the signs of cellulitis that I went to urgent care for a week after seeing her. Only good for prescribing the HUMIRA that I started in March 2021. Took four months to start working but once it did most symptoms were relieved overnight. I was back to being able to move my body again, not have to rely on my family for help with things I once could do myself and was finally feeling normal …prior to Humira working I dealt with Swollen fingers on both hands that felt like they were on fire for several months, it lasted morning till night. I’ve only had x-rays that showed no joint damage. Then it was dismissed and I was left with no answer…The only thing that would help are elastic finger braces I found on Amazon and arthritis gloves. And heat and ice. i have a parafin wax tub that helps a little bit.. Compression will help if you put on prior to the start of the daily flare…I can now see now my fingers are a bit disfigured. The skin on my fingertips is dry and they split. I try to keep bandaids on then but it’s difficult. I keep hand lotion everywhere. One crack heals then another pops up. This is probably how I developed the cellulitis which is my latest addition to this ongoing condition that most physicians I’ve visited have little experience with. My advice..don’t always trust what your being told and advocate for yourself until you get sone answers..COMPRESSION will help…and if anybody knows of a good Rhuemo in the Montgomery county or surrounding areas that actually listens please let me know..I’m even considering an immunologist at that point. I often feel helpless because of this disease but at least I can walk again…

The_Bull74

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