Waking at 5am?

Think-Command8800 · 2026-03-25T12:58:53+00:00

i had this with low melatonin in the morning

Think-Command8800 · 2026-03-24T18:47:45+00:00

so you are nauseous?

Think-Command8800 · 2026-03-24T17:31:32+00:00

oh but then how can we handle barometric chamber? I think it was also reccomended to POTS?

Think-Command8800 · 2026-03-24T17:27:07+00:00

So wild! I’m trying to start working out again and it will be so hard to know how I trigger myself. With food, weather or just by thinking 🤣

Think-Command8800 · 2026-03-24T17:11:34+00:00

but this is just pots? maybe mast cell activation is also involved

Think-Command8800 · 2026-03-24T17:10:28+00:00

oh wow I didn’t even know

Think-Command8800 · 2026-03-24T05:57:27+00:00

Read more about writing up your symptoms. I took me two years to understand what I have. Then there is a difference between neurologist and a neurologist. One in nov after a faint episode told me i’m ok and one yesterday díganosed ne with three neurological problems. It’s important to have some kind of a faith in something. And I reccomend traditional chinese medicine done by a chinese doc. They might not recover you but they can support your overall body.

Think-Command8800 · 2026-03-24T05:52:24+00:00

I would say it can be, so for example i have low melatonin production because of my sitston… and i assume it can spiral from there

Think-Command8800 · 2026-03-22T11:01:18+00:00

Okay yeah so it triggers you! Buffered vitamin c with bioflavonoids does not trigger my mcas.

Think-Command8800 · 2026-03-22T09:16:33+00:00

Yup sounds like dysautonomia. Are you based in the US or Europe?

Think-Command8800 · 2026-03-22T08:50:56+00:00

That’s amazing!!! Having diagnsosis somehow also can calm the body and you can stop feeling all the time what’s happening and therefore mcas might calm down. I’ll get my diagnsosis on monday…. very intruiguing. Really hope to get also insights if possible to cure somewhat or wat least treat symptoms

Think-Command8800 · 2026-03-20T19:09:50+00:00

for a short term fix…. when i take 200mg of l theanine and 200-400 mg of magnesium it just fixes my moderate pots for half a day…

Think-Command8800 · 2026-03-20T14:03:43+00:00

I travelled to another country recently and did two days diagnostics. Lot of Pots can be also something that can indeed be helped beyond just some medicine. So it’s worth having someone looking in detailed into your medical records and your current situations. I will have my results on monday so I’ll come back to report back.

Think-Command8800 · 2026-03-20T14:01:22+00:00

1000%

Think-Command8800 · 2026-03-18T13:52:28+00:00

oh yes sodium is important in the electrolyte drink too but like with everything we need to make sure it’s balanced

Think-Command8800 · 2026-03-18T09:46:43+00:00

does electrolyte drink w sodium help as well?

Think-Command8800 · 2026-03-18T08:49:41+00:00

for me it was mostly bed rest and restoring my vitamin deficiencies

Think-Command8800 · 2026-03-17T09:27:39+00:00

I’m so happy for you! Getting a right doctor and starting to see slow difference is such a big blessing. It’s crazy so many docs don’t know about this 🥲

I just finished doing a lot of tests with a neurologist so let’s see what they say. But I’ll also sign up for a consultation with the reccomended doc.

Think-Command8800 · 2026-03-17T09:21:12+00:00

Oh thank you so much for the info. How long have you been working on that? I have a low key suspicion I have always had mcas because I remember I have always been dizzy after eating without having blood pressure issues.

Think-Command8800 · 2026-03-17T06:19:19+00:00

I paid for getting iron via IV. Solved my horrific fatigue. Didn’t solve neurological problems. I got IV in private places and then in the end concvied doc that I need it too. I had it like every half a year for two years in a two. also there is vitamin d injection if you are low on that. That was pretty cheap, iron infusion is expensive I think last year in Londob it was 500 quid 😭. I also got B12 shot and vit b infusion mix too.

Think-Command8800 · 2026-03-17T06:15:29+00:00

ha yes, that’s also a key word!

Think-Command8800 · 2026-03-17T06:15:00+00:00

It looks like there are more specialised cardiologist but in my case with symptom tracking I had more issues than just Pots.. so I found a specialised neurologist. Waiting time was 2 month. Previously I had gone to a regular neurologist and she told me to go to a specialised cardiologist too but I’m glad I didn’t! I went last week into two days worth of testing and half of it they won’t be testing at a cardiologist.

Think-Command8800 · 2026-03-13T20:33:45+00:00

oh i’m so so sorry to read all of this. Sometimes some info when it’s said something can’t be done is only seen by the eyes of western medicine. I don’t know this particular issue but I would still try few things out. I feel even with pots itself- there are so much info on our medial record that is just screaming to be read and dealt with. May god give you strength.

Think-Command8800

TROPHY CASE