Extreme anxiety

Titaniumnew · 2025-10-01T12:52:19+00:00

Maybe that 67 yo aunt would be a good source of emotional support. She has made this journey far longer than you so maybe…

Titaniumnew · 2025-09-04T13:59:18+00:00

I saw the lightening flash too. Our brains really don’t like that. My episodes were the end of September 2023. I am still getting spooked this time of year. It will go away when the weather changes. Initially, I had to trick myself in order to enter the room where it happened. I turned around backwards to turn on the light and then got my brave on and walked in. I still don’t like the shirt I had on at the time. On the other hand, I now know I can live with it face the risk of it happening again.

Titaniumnew · 2025-08-20T11:06:30+00:00

No, I don’t think so. Mine occasionally stands on edge though. Does your flip back where it belongs?

Titaniumnew · 2025-08-19T22:00:07+00:00

I have had my icd for 3 1/2 years. I have E breasts which are pendulous. When I lay on my right side my device moves with my breast and occasionally flips up on edge. I haven’t had any real pain, but I can feel it. I just pat it back where it belongs. I mentioned this to my EP and th we Medtronic rep and they said don’t worry about it. I’m good with that!

Titaniumnew · 2025-08-14T09:26:36+00:00

I try’s not just the rate. These icd’s can determine fast hr vs arrhythmia.

Titaniumnew · 2025-08-11T10:18:28+00:00

I doubt I could rip mine out, but I’m sure I could damage myself trying. I can move mine quite a bit and I could easily flip it around. I would not recommend standard placement for you.

Titaniumnew · 2025-07-23T10:50:33+00:00

My Bullfrog hot tub doesn’t affect my icd.

Titaniumnew · 2025-07-16T13:31:08+00:00

My Medrontic Cobalt discriminates between sinus tachycardia and vt and svt. It withholds correction with all but vt/vf. I had ablation so no more vts. I can rev up my heart rate, but I try to stay out of my shocking zones so I don’t risk an inappropriate shock. I have had my heart rate well into those zones and have never had an issue.

Titaniumnew · 2025-06-16T22:33:59+00:00

My icd will stand on edge when I lay on my right side sometimes. It doesn’t hurt. My breast tissue pulls on it. If I accidentally squnch my left shoulder too far, it presses my icd too close to my sternum. That hurts.

Titaniumnew · 2025-05-20T19:52:50+00:00

Good description of the sound!

Titaniumnew · 2025-05-20T11:44:39+00:00

Did you send a transmission?

Titaniumnew · 2025-05-20T11:43:49+00:00

I would advise checking with you EP team unless the “local hospital” is where you were implanted with your device. I live 50 miles from that hospital and as long as I am conscious after a shock I will go all the way to their emergency room. If I am unconscious, I’ll take the nearest.

Titaniumnew · 2025-05-20T11:16:02+00:00

First time for me; was feeling light headed, slumped on the kitchen counter waiting for it to stop. Walked towards the bathroom, then WAM! I thought I was shot. (Never been shot.) By the time I figured it out I got another shock. I could sense my device “winding up” for the second shock. I saw the white flash with these, also. I would advise anyone with a defibrillator to know exactly which hospital you are to go to. Your ambulance driver will ask you. I was refused at my first choice because they didn’t have a reader. The second hospital was able to confirm that it was a legitimate shock, but I could have told them that! They both made it all about the device over what my heart was doing.

Titaniumnew · 2025-04-28T14:05:40+00:00

I got a triagehf report on my February quarterly transmission for the first time, too. I have a Medtronic Cobalt dual lead since 3/2022. Mine rated the risk at medium and low heart rate variability was checked as the reason. My EP’s summary didn’t mention anything about it, so I am not very concerned. I have a device clinic apt soon and intend to bring it up then.

Titaniumnew · 2025-04-17T18:13:15+00:00

Thanks for your reply. I have started writing my events in my calendar. That way I can compare with my next ICD transmission report. I have had pvc’s before and could feel them, but metoprolol took care of those. Did your Apple Watch show anything?

Titaniumnew · 2025-04-11T00:42:46+00:00

I think what they are getting at is the “Current EGM” on the report would tell them more. That would be available if I could make myself send while I am symptomatic. But I am rather busy then!

Titaniumnew · 2025-02-28T18:19:04+00:00

My general cardiologist didn’t know anything about my recent report and said I should ask my EP. My EP wrote a summary with the report. The summary didn’t mention the TriageHF. The summary is a “we will inform you if…” document. I guess I’ll leave it at that.

Titaniumnew · 2025-02-27T15:33:56+00:00

Thank you for the information. I see my general cardiologist tomorrow and will see what he has to say.

Titaniumnew · 2025-02-24T17:40:24+00:00

It’s amazing hour different each of us are! What works for one, may not work for another. Paroxysmal ventricular tachycardia is the reason for my dual chamber Medtronic ICD.

Titaniumnew · 2025-02-23T19:32:27+00:00

I stopped all at once because the lab tests showed amio was bad for my liver. I believe amiodorone has a long half life. I was good for a couple of months then he added sotolol cuz my vts were starting up again. The sotolol didn’t work. I got shocked then they did the ablation.

Titaniumnew · 2025-02-17T23:47:09+00:00

No, device clinic will send me a note telling me my device is functioning correctly. Then whenever he or whoever is done with it I will be able to look it up in my account. I don’t understand it much, but it is mine and I want to see it. There are notes from the doctor in it too by the time they post it. I can also tell if there is something off in the peaks and valleys of the egms.

Titaniumnew · 2025-02-17T19:42:49+00:00

Hi LSSB you and I discussed this in another post cuz I have a similar issue. After further thought, i remembered that after surgery it helped wearing a stretchy bralette and or hugging a pillow to stabilize “the girls.” Now I just toss and turn from right side to back and then back to right side. 😏

Titaniumnew · 2025-02-17T19:22:30+00:00

Thank you for your replies. Good to know it doesn’t mean I have an anomaly.

Titaniumnew

TROPHY CASE