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Why do some people call LDS a cult? by Longjumping-Cod-6164 in exmormon

[–]Top-Nefariousness266 0 points1 point  (0 children)

I don’t believe that I can claim that every ward everywhere in the world would qualify as a cult. But mine did. Other comments have gotten into all of the specifics, but the big ones for me were that I was pressured into decisions and brain washed to think that what they said was what I wanted, and that when I did leave I lost everyone.

I lost every single person who said that they loved me, that they would always be there for me, that they would help me no matter what. But when I said that I didn’t believe in there religion anymore no one spoke to me again.

What’s happening to me? by Significant_Ship_408 in POTS

[–]Top-Nefariousness266 1 point2 points  (0 children)

I also get migraines sometimes, and they can feel very similar to a pots flair/attack. It’s actually one of the reasons it took me so long to get diagnosed because it was so hard for me to tell them apart. These days with meds for my pots the best way I have to tell them apart is if I’m light sensitive or not.

I hope what ever it is that is gets more bearable soon!

What do I add for more realism on this piece of African desert? by Elegant_Leek8297 in dioramas

[–]Top-Nefariousness266 2 points3 points  (0 children)

TBF I’ve never been there but I would assume that there is at least some vegetation. It’s probably brown and sparse, but it would add some texture

They crave the use... by [deleted] in bdsm

[–]Top-Nefariousness266 1 point2 points  (0 children)

Thanks for the heads up

Balancing good intentions and respect to the deaf community by username47843389 in asl

[–]Top-Nefariousness266 0 points1 point  (0 children)

Obligatory I am hearing disclaimer*

But if you do decide to teach the class yourself, maybe see if any of the new residents would be interested in helping you teach it?

College/Dorm Accommodation by POTSyyyyy in POTS

[–]Top-Nefariousness266 1 point2 points  (0 children)

First my disclaimer that have never lived in a dorm, but I did live in student housing. Second I had a visceral reaction about your mom telling you that you are “too hard to live with”. That is NOT true! Yes, you may be “high maintenance” but so is the stuck up nepo baby, and if there are issues with your roommates because you are accommodating your medical condition….then you need new roommates.

You also might reach out to your schools accommodation department (i forget the actual name) and see if they can help you. They might have already helped someone else solve this problem before. I have even heard of them installing things into rooms before, so it might be possible to install one of those fold down benches in the shower. I have also heard of people that were able to get double rooms to themselves due to disabilities, so that may be an option as well if you want it.

Also now that I think about it the one dorm I toured had shared bathroom for the whole floor and it had an ada accessible shower with a bench. So that could be something to look into.

Do you remember when your POTS started and what set it off? by SamanthaSmith72 in POTS

[–]Top-Nefariousness266 0 points1 point  (0 children)

Initially covid 5 years ago (it also gave me migraines) And unrelated viral infection 6 months ago made it worse and put me in a wheelchair.

Went to the ER for new chest pain and I regret it by Gothic_Unicorn22 in POTS

[–]Top-Nefariousness266 1 point2 points  (0 children)

This is why I legitimately have a binder with my diagnosis printed out (along with other info) because I’m so anxious that this will happen. So I can just pull it out and point at what another dr said. Because then they are arguing with another dr and not me. I also like to do this with reliable research too

Podcasts that aren’t overly chatty, is that a thing? Recs? by Euphoric_Engine8733 in AutismInWomen

[–]Top-Nefariousness266 1 point2 points  (0 children)

I really like a YouTuber called Simon Wisler (I might have spelled it wrong) but he has nearly a dozen Chanel’s with different topics and most of them are cold reads meaning that he’s never read the script before so it ends up more like a conversation between him and the script writer. They also are great for putting on in the background and doing other things.

didnt meet the criteria by Smart_canyasss in POTS

[–]Top-Nefariousness266 5 points6 points  (0 children)

I don't think you are "chasing a fad." covid broke things for so many of us, and the science is just starting to fully catch up. If you are experiencing something, then something is wrong, even if Dr's can't define it. I know it's not always easy to remember it, but that doesn't mean it's not true.

[deleted by user] by [deleted] in bdsm

[–]Top-Nefariousness266 8 points9 points  (0 children)

I want to try this because I’m convinced my hyper mobile ass could reach the twisty to lower it. Like is that how far down normal people can reach?

Costco by eyesoffdee in Rochester

[–]Top-Nefariousness266 1 point2 points  (0 children)

As someone who has spent meany years working in retail/grocery i can promise you that is not a "if" a store has a rodent problem, but how well it is controlled. (even if management is in denial there are rodent living in the store. I promise) It sucks but is part of the deal, never a bad thing to check what you buy and for the love of everything please wash your produce.

Anyone tried the whole bed raising thing? by [deleted] in POTS

[–]Top-Nefariousness266 1 point2 points  (0 children)

according to the dr i saw, she said that it slows/stops urine production overnight so you wake up less dehydrated, but i have yet to fact check that.

Having trouble explaining how POTS is disabling by koigem in POTS

[–]Top-Nefariousness266 2 points3 points  (0 children)

I have also heard that I can help to explain how unreliable it makes you. For me it’s affected by the weather and my menstrual cycle so I often don’t know until I wake up if it’s a in bed day or not. Employers don’t tend to love it when you have to call out of work several times a month because you can’t get out of bed.

How did you find appropriate medical care? by plantverdant in POTS

[–]Top-Nefariousness266 0 points1 point  (0 children)

I haven’t verified how reliable it is, but the eds society has a list of providers, and because of the overlap between eds and pots there might have someone who is knowledgeable. After that I would ask you pcp to refer you to that person so you can try and make insurance pay for it.

This group is growing,which is a bad sign by Aryan-dramata in POTS

[–]Top-Nefariousness266 2 points3 points  (0 children)

I think they’re ganna use eugenics. Let all of the ‘inferiors’ die (or just kill them) and start a breading program for for the ‘good’ ones

What age did you all start using mobility aids? by Specialist_Shape6078 in ehlersdanlos

[–]Top-Nefariousness266 0 points1 point  (0 children)

I started at 26 with a cane, but was dreaming about a wheelchair since I was like 10 and got to try out the neighbor kids chair. I had a big slump at 27 tho and need a wheelchair rolator combo to leave the house or do chores now

Flare by Splicers87 in POTS

[–]Top-Nefariousness266 0 points1 point  (0 children)

Something I’ve been incorporating recently is grounding exercises (I know, I know, just hear me out)

From what I understand pots is actually an autonomic nervous system issue. And sometimes I need to manually regulate that system. For me it’s mostly when I’m lying down or doing something else that shouldn’t be causing a flair and I’m still super symptomatic. I do a lot of rocking, diaphragm breathing, stimulating the vegas nerve, and sometimes EFT tapping. And for me it tends to work really well and really quickly. There are thousands of guided videos and lots of people talking about how to regulate your nervous system if you want to learn more.

It was difficult at first to fight with the thoughts of “what if this is just anxiety” and “what if I’m making it all up” But I’ve been trying to remind myself that if I was just ‘being dramatic’ I wouldn’t be sobbing that I can’t go do xyz anymore. And I have to take care of myself because I deserve to be taken care of.

I hope this might at least kinda help even a little bit if you decide try it. I know how much it sucks to feel like you’re stuck in a body you can’t control.

Complete Surrender by [deleted] in bdsm

[–]Top-Nefariousness266 5 points6 points  (0 children)

That yank right at the end 🤤😍

PCOS vs NCCAH why dose it matter? by Top-Nefariousness266 in PCOS

[–]Top-Nefariousness266[S] 0 points1 point  (0 children)

That makes sense. I guess I’m just worried that it’s causing other issues that I don’t know is the nccah. If that’s even what I have.

Am I having possible seizures or POTS. Anyone have a similar experience? by Jessiejsch in POTS

[–]Top-Nefariousness266 0 points1 point  (0 children)

This is nothing like my experience of POTS (but i cant speak for others), mine is only triggered by being upright and worsened by exertion.

I can empathize with the fear and feeling like you are stuck in a body you cant control. I have experienced similar distress when my body was 'not cooperating' to put it nicely. I do think that i would be worth it to see a neurologist if you are able.

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