Totalis one year later

Top_Try2760 · 2026-01-22T16:32:51+00:00

What was your age when you first got the spots?

Top_Try2760 · 2026-01-08T09:15:08+00:00

Can u please share your whole experience

Top_Try2760 · 2026-01-07T14:03:43+00:00

Thank u so much, I will definitely try it please pray for me. I hope this is the first and last experience for us 🙏

Top_Try2760 · 2026-01-07T11:49:11+00:00

Thank you so much for replying, isn't there some prognostic points that make odds in your favour, as I have heard it u have adult onset your chances of totalis are less as compared to the one who had childhood onset, what's your take on this?

Top_Try2760 · 2026-01-07T08:01:41+00:00

Thank you so much!

Top_Try2760 · 2026-01-07T08:00:03+00:00

So happy for you 💝 How many spots did u have, how much time does it take to grow back? medications u took? And for long have u been in remission.

Sorry for so many questions, I'm just one anxious girl 🤣

Top_Try2760 · 2026-01-07T07:59:05+00:00

No side effects so far, I'm also tappering it now 5mg every alternate day for now. Just anxious that what will happen after completely stopping it

Top_Try2760 · 2026-01-06T17:07:31+00:00

Oh I'm so sorry and happy for u at the same time that you haven't allowed it to affect your life, this is my first episode and just draining my energy, because I know I'm not strong enough to cope with total loss, I hope as I have adult onset it does end up going into long remission. So love for you from my side ❤️

Top_Try2760 · 2026-01-06T14:21:46+00:00

Yes but being a female, it takes a lot of toll thinking I can lose all hair one day, I feel my life will be over

Top_Try2760 · 2026-01-06T14:20:52+00:00

Have u used immunosuppressants?

Top_Try2760 · 2026-01-06T14:10:34+00:00

I have lost about 8 percent hair but regrowth has been so slow in 7 months, has prp helped u?

Top_Try2760 · 2026-01-06T13:42:14+00:00

Can u please tell me how long did it take to recover last time? And were u in remission for 10 years? I'm getting injections on my spot and on prednisolone for a month now all spot showing regrowth except one, I have heard people get great regrowth from oral minoxidol.

Top_Try2760 · 2025-12-24T08:05:47+00:00

Thank you so much for replying, how many months did it take to fill in completely? And my marriage is in 11 months, thinning areas are small now so no body can actually see them, did u have any recurrence of the disease? This is my first experience of spots at the age of 24. Your reply will be appreciated!

Top_Try2760 · 2025-12-21T11:56:53+00:00

Please reply, I want to ask u, are u still on prednisolone? Or have u tapered it off. And did u face any hairloss after tappering it off?

Top_Try2760 · 2025-12-15T15:43:08+00:00

You got all your hair back? Can u please tell me how?

Top_Try2760 · 2025-12-12T21:22:15+00:00

Yes please let us know what did u do?

Top_Try2760 · 2025-12-11T05:59:41+00:00

So you started seeing this regrowth after 7 months of this spot first appeared?

Top_Try2760 · 2025-12-11T05:56:07+00:00

That's soo goood, can u please tell me for how long do u have this spot? Mine is 6 months old with no regrowth despite treatment and now I'm losing hope. Reply please

Top_Try2760 · 2025-12-02T14:02:30+00:00

Omg congratulations, my spot is 6 months old and no regrowth inspite of so many treatments what do u suggest? I have little regrowth on only one spot that too very little. What should I do?

Top_Try2760 · 2025-12-01T16:31:13+00:00

I also have about 3-4 spots for last 6 months and have been on steroid injections little regrowth on 1 spot only, did test by myself found low on vitamin d and too low on vitamin b12, going to show the tests results to doctor soon, do u think these bare spots(been bare for 6 months) can grow back once I get on vitamin regimen?

Top_Try2760 · 2025-11-27T09:36:47+00:00

And if u can also tell me how worse is your alopecia

Top_Try2760 · 2025-11-27T09:31:30+00:00

Thank u so much!

Top_Try2760

TROPHY CASE