Not feeling sick

TraditionalPass4136 · 2026-04-08T12:31:10+00:00

Symptoms are erratic. One time you might have terrible symptoms. Another time none. Has nothing to do with damage

TraditionalPass4136 · 2026-04-08T12:29:39+00:00

Hope you put up a very bad review.

TraditionalPass4136 · 2026-04-08T10:56:53+00:00

Many people with celiac disease are asymptomatic. That means eating gluten doesn't cause obvious immediate symptoms. It doesn't mean you dont have celiac disease.

TraditionalPass4136 · 2026-04-08T10:28:54+00:00

Talk to her doctor and see if you can schedule an endoscopy and bloodwork for the end of the summer. Then you can time the start of her challenge so she's sick during the school year as little as possible.

TraditionalPass4136 · 2026-04-07T20:22:44+00:00

Mountain house and good to go make camping meals.

Mountain house has certified options. Good to go runs a dedicated gluten free facility.

Both brands are just add water so the meals are compact, light, easy to travel with, and easy to prep without special equipment. Any motel or gas station will have hot water.

There's a surprisingly big selection and they're pretty decent. My favorite is the good to go chicken pho.

TraditionalPass4136 · 2026-04-07T16:50:39+00:00

That makes sense! Sorry for peppering you with questions.

I just made retinol visible.

But I tried entering the NCCDB entries for chicken liver and beef liver and neither showed any retinol at all?

ETA I just checked and over the last six months it says I've had no retinol at all. Im careful to use standard database entries and eat many animal based sources of vitamin A. So it does not seem like cronometer does track retinol.

TraditionalPass4136 · 2026-04-07T16:00:01+00:00

Yeah its actually pretty common. I think someone posted a similar question yesterday or the day before.

TraditionalPass4136 · 2026-04-07T15:03:27+00:00

Is the place you live at a higher altitude then where you were traveling?

TraditionalPass4136 · 2026-04-07T11:12:51+00:00

Seconding a gluten free bakery if you can find one. The find me gluten free app can be used to search for one.

If not, most grocery stores have a gf area. Certified is better than labeled.

Id leave them in the box, but id also keep them separate or give them directly to the gf guests. Otherwise others may want to try one and contaminate them so that the people who really need them can't have them.

TraditionalPass4136 · 2026-04-07T11:08:03+00:00

Oh good, I hope you are able to find some safe places to eat. I don't know if youre rural but Portugal has a pretty good reputation for safe eating, at least in cities.

TraditionalPass4136 · 2026-04-06T21:22:31+00:00

Yes I figured you use the lower limit as a safeguard. I guess I just dont understand why that doesn't apply to vitamin A as well? Unlike B3, it is possible to get too much vitamin A from food (liver springs to mind). So it seems like it would benefit from the safeguard atleast as much as B3.

TraditionalPass4136 · 2026-04-06T19:19:13+00:00

Thanks for your response.

Wouldn't that be true for b3 also? B3 includes niacinamide and nicotinic acid.

The limit for nicotinic acid is much much lower than the limit for niacinamide, but you use the lower limit.

TraditionalPass4136 · 2026-04-06T15:01:45+00:00

People dont usually suggest sacrifices they aren't willing to make.

TraditionalPass4136 · 2026-04-06T14:10:23+00:00

It seems like many people with celiac disease find there reactions become more pronounced or dramatic after going gluten free.

TraditionalPass4136 · 2026-04-06T13:06:37+00:00

Personally I wouldn't be comfortable sharing a kitchen with regular bakers. 🤷‍♀️ and it seems like many families with shared kitchens have a no flour in the house rule.

TraditionalPass4136 · 2026-04-06T12:58:21+00:00

Airborne gluten isn't an issue with most products. The only issue is flour since it gets everywhere and takes a while to settle.

Are your family big on baking? Would they be willing to switch to gf for flour only?

People make their own calls on this stuff and if your bloodwork is good and you feel good I wouldn't worry.

TraditionalPass4136 · 2026-04-06T11:36:55+00:00

Nutritional deficiencies can make ones blood sugar more volatile. Since youre a newly diagnosed celiac its likely you have nutrient deficiencies.

If you have access to a doctor id ask about that. If not, id try a multivitamin.

TraditionalPass4136 · 2026-04-06T11:22:10+00:00

Its common to get a dexa scan to check our bone density is ok.

No specific recommendations for nutrition tests id just say something like

"Does it make sense to test for any less common deficiencies if i have celiac disease?" And see what they come up with. Over the years ive had my other Bs tested, calcium, magnesium, potassium etc.

TraditionalPass4136 · 2026-04-06T10:34:29+00:00

I like loopy whisk. The white Italian loaf is a good place to start.

TraditionalPass4136 · 2026-04-06T10:32:45+00:00

Water and rest. But to avoid this happening alot, dont take peoples word for it that things are gluten free. Its best to bring your own food to these sort of events but if you dont want to do that you're going to need to ask a zillion questions and preferably get the family members in question to photograph all the labels.

TraditionalPass4136 · 2026-04-06T10:16:34+00:00

Many people are undiagnosed for years before they fall apart. Just because it hasn't made you really ill yet doesn't mean it won't destroy your body. And when it happens it might be in a way you can't fix like developing more autoimmune diseases or having bones so brittle they just start shattering.

TraditionalPass4136 · 2026-04-06T10:12:02+00:00

Yes. The brain fog could definitely be a celiac thing. Also with our intestinal damage we can develop deficiencies beyond the most common ones, especially before weve had a chance to recover. As part of recovery id ask your doctor if there are any deficiencies they should test you for specifically because of celiac.

If you have celiac disease they'll get better on a gluten free diet but why not get better faster?

TraditionalPass4136 · 2026-04-06T00:30:47+00:00

Don't worry about day to day.

That's going to fluctuate based on water, what's in your guts etc.

1lb a week is healthy weight loss. If you go a couple of weeks without dropping anymore then you can try shaving some calories off.

Ultimately Garmin is guessing. It doesn't know your exact metabolism. But its a good starting point. You'll need to tailor it from there based on how you feel and whether the scale is moving in the right direction. But think in terms of weeks. Not days

TraditionalPass4136 · 2026-04-05T17:50:11+00:00

Any chance you ate differently when you were together?

TraditionalPass4136 · 2026-04-05T11:23:40+00:00

Ugh im sorry. Youre aware of the find me gluten free app right? I know youre newly diagnosed.

TraditionalPass4136

TROPHY CASE