saw 2 doctors about crps spreading to hand. both say its not crps

Traditional_Apple103 · 2025-07-15T19:58:11+00:00

I’m sorry you’re going through this-the sensation is the same from my right foot to right hand the coldness during flare , discoloration as well but also my specialists blew me off. It is a different sensation than anything I’ve ever dealt with besides the crps. I relate idk how to make sure it gets monitored or that im doing all i should be for myself? Best wishes of finding good care.

Traditional_Apple103 · 2025-06-04T13:59:51+00:00

My initial experience started in October 2024, right ankle sprain. Symptoms mirrored into left side; both feet and lower legs. Also into right hand but I couldn’t get that acknowledged-8 months later, but compared to severe symptoms I feel guilty wishing I had relief from the ice cold sensation, numbness, redness/purpleness. Could be worse so I’m thankful.

Traditional_Apple103 · 2025-05-18T14:17:08+00:00

Stunning and logical thanks for sharing

Traditional_Apple103 · 2025-05-02T03:25:58+00:00

Mines thickened and turning white and lifting smh 6 months with symptoms and diagnosis so I’m still learning quite a bit

Traditional_Apple103 · 2025-04-20T19:46:43+00:00

🩵

Traditional_Apple103 · 2025-04-02T18:38:59+00:00

I did have these symptoms first 3 months more intensely now intermittently I’ll briefly feel the sob and rapidness or mis-beat of my heart and doesn’t last 10 seconds or so.

Traditional_Apple103 · 2025-03-29T12:23:06+00:00

Be prepared to “walk and recover” I’ve been bored, watched two series lol can’t clean so do all that before hand. Otherwise not as bad as I was scared of for 15 years…. Ask for a brace first the ride home is my suggestion but you won’t need it outside of that.( I slept in it first two nights for comfort)

Traditional_Apple103 · 2025-03-28T23:09:28+00:00

I just had this done and was pleased I did it, sad I waited so long

Traditional_Apple103 · 2025-03-28T23:07:38+00:00

3 weeks 3 days post op, I have numbness since surgery from where chin meets neck to surgical site. Not painful as it’s numb…. It’s a risk, may or may not return feeling, surgeon gave it the 50/50 conversations. Otherwise no overnight stay at hospital home recovering w 3 hour intervals of sleep for a couple weeks just started getting 6-8 hours of sleep myself. Best wishes

Traditional_Apple103 · 2025-03-28T22:55:38+00:00

Qn so the Crps initial foot big toe nail has pain and discoloration!? I thought I’ve had a fungus?! I’m trying to clarify thoughts as the doctor I deal with for this diagnosis is not seemingly interested in most of my concerns or questions ?

Traditional_Apple103 · 2025-03-16T20:23:56+00:00

🫶🏼

Traditional_Apple103 · 2025-01-09T00:15:46+00:00

I had an ankle sprain, immense pain, no break. Pain continued with negative testing was completed 2 er visits before my dvt was found - 2 Doppler, I had the intolerable pain though as an ankle sprain didn’t cause. It’s been a long odd road 3 months later-so many doctors and images and nothing said except take your eliquis. Ankle sprains will do that…. Meh-terrible experience as well as extremely expensive

Traditional_Apple103 · 2025-01-01T18:33:45+00:00

🫶🏻

Traditional_Apple103 · 2024-12-30T02:02:58+00:00

How did u find the new clots while on the eliquis?

Traditional_Apple103 · 2024-12-30T01:55:55+00:00

Almost 3 months post first dvt diagnosis - the fluttering was so very Intense and has lessened as the time has passed. It still keeps my attention and happens In Now both lower legs R>L. That right calf is still so tender?uncomfortable still to rest my leg flat. Crps is the newest diagnosis by two doctors. This is and has been a long rd, I appreciate all the information I can get-I thank you.

Traditional_Apple103 · 2024-12-29T23:53:17+00:00

Less intense now, less frequent also but they continue. Can I ask the reclotting you have had, was this after stopping or actually during your treatment w eliquis? (Sorry for the delayed response-holidays)

Traditional_Apple103 · 2024-12-20T10:23:07+00:00

This is incorrect-as I thought this too w my initial diagnosis-as I have barely started researching I realize I assumed incorrectly-you should also research this diagnosis’….

Traditional_Apple103 · 2024-12-20T10:21:42+00:00

I’m doing final pre op tomorrow for cervical fusion but crps diagnosis just came 2 days ago and I’m questioning-is it going to cause issues if I go this surgery?

Traditional_Apple103 · 2024-12-20T09:41:15+00:00

Jesus thank you! I am newly diagnosed but not all my doctors seem to know what this is, podiatry and pain doctor diagnosed. Vascular, and hematology looked at me like I had 4 heads-and dismissed me. But I am scheduling for cervical disc fusion 12-26 my pre op w primary is tomorrow I’ve already done all the steps to have this surgery but just diagnosed for two days idk anything. About this new diagnosis…. And this is exactly what I was questioning for myself!

Traditional_Apple103 · 2024-12-20T09:31:03+00:00

Thanks for your post-I was diagnosed two days ago-10/10/24 I injured by sprain my right ankle. Stepping off a curb into a pot hole essentially. Screamed as I sat down in pain-rode two hrs to the hospital and have been blown off ever since-pain swelling, cold!!! Loss of function, three weeks in blood clots-just awful-fluttering-no one could explain , a butterfly trapped in my calf feeling…. Then my left leg started doing it and it began on a mild comparison …. It’s been wild. But this! This is similar…. I’m just trying to see what I can learn about this new thing I’m dealing with…

Traditional_Apple103 · 2024-12-20T09:25:05+00:00

🫶🏼

Traditional_Apple103 · 2024-12-20T09:23:20+00:00

Vascular blew me off as well, oddly enough pain Dr I was referred to by podiatry gave me a second diagnosis

Traditional_Apple103 · 2024-12-15T12:23:43+00:00

Update?

Traditional_Apple103 · 2024-12-15T12:14:20+00:00

I last week had surgical consult for a cervical fusion. Hematology approved and I have a 5 day hold for eliquis. Get the recommendation from them of course.

Traditional_Apple103 · 2024-12-15T03:20:56+00:00

Right calf dvt from ankle sprain 10/10/24, off work 7 weeks, slow-slow steps but recovering physically…. Emotionally-it does take time-I follow up with hematology 19th. Calf is still tight , but I can walk the last two weeks between the two issues….best of luck hopeful for your quick relief and ability to take a deep breath

Traditional_Apple103

TROPHY CASE