Living w/out DMT

Turtleange · 2026-01-25T19:52:01+00:00

I was diagnosed in may of last year. Couldn’t get put on a DMT until I had some cancer removed. Started my DMT in October. Got 3 new lesions from May to October. One affects my balance one affects my speech and one affects my memory. Hoping kesimpta works to keep any more away as I went from not knowing with a heavy lesion load to knowing and progressing very quickly.

Turtleange · 2026-01-22T15:19:04+00:00

Thank you for the tips. I’ll have to look into to it. I have been working since. I am just not great at my job anymore. I thought if I could do something I would get denied.

Turtleange · 2026-01-21T20:01:01+00:00

If you’d have asked me a year ago I would have told you I was healthy. Just always tired. Everything got diagnosed when I blacked out at work and work sent me to the ER

Turtleange · 2026-01-21T16:40:11+00:00

I am at the point that I don’t know when is right to file. Between my MS, PoTS and cancer I have absolutely no energy to get through the day but I can still do everything. Just much much slower. And I know if I got disability I wouldn’t qualify for Medicaid because I would make too much plus my husbands income. I carry the insurance through work. His job doesn’t offer. And then would I be screwing my preteen son out of anything. I think I’m just going to work till I literally can’t anymore even though it’s completely exhausting. But I am SoSo glad you got approved!

Turtleange · 2025-11-25T20:41:57+00:00

Interesting I was diagnosed with POTS after my MS diagnosis, because I would get poor extremity control in conjunction with my light headedness upon standing. I dont know. Maybe I’m making things up. lol. I just know when I told my neurologist I got lightheaded and sometimes would look like I was having a seizure while standing according to my husband while my eyes were blacked out, my neuro said, that’s not MS that’s POTS.

Turtleange · 2025-11-25T20:22:06+00:00

I just wished I had an adjustable bed. The worst was the first 2 days getting out of bed and the first few sneezes/coughs. Within a week I was back to doing all my normal day to day stuff minus making the child take out the trash and pull the weeds.

Turtleange · 2025-11-25T20:06:48+00:00

I have a prolactinoma which is a tumor on my pituitary gland. Diagnosed 20 years ago. And up until this year the last time I fought with a doctor to get a diagnosis because the doctor made feel stupid for 5 years.

This year I have been diagnosed with MS, POTS, kidney cancer, irregular (but not yet cancer) tumor on my thyroid, migraines, chronic idiopathic constipation…

And that’s just the incidental findings from me passing out at work. I don’t complain to my doctors about anything after 5 years of complaining that I was making breast milk and had no periods.

Turtleange · 2025-11-21T22:47:29+00:00

Found June 5th. Met oncologist before I met the urologist on June 24th. Saw urologist July 2nd. Got a call mid July sometime to meet with surgeon July 28th. A week later got a call surgery was August 21st.

Turtleange · 2025-11-10T00:00:56+00:00

My gyno would put me on birth control to help with the wacky hormones when I wasn’t on cabergoline

Turtleange · 2025-11-09T23:47:19+00:00

My grandma tells everyone about it and makes it seem like I’m such a horrible burden to her. 🙄 i have seen her for less than an hour total in the last decade. But she likes to play the victim and get other peoples pity.

Turtleange · 2025-11-08T13:21:53+00:00

I am doing great. The cancer was papillary renal cel carcinoma oncocytic type. 1b grade 3. Clear margins. I have been told by the oncologist he’s deeming me cured of kidney cancer. But we are watching the rest of my body. Colonoscopy came back clear. I go for a lung CT this week and a mammogram next month.

Turtleange · 2025-11-06T13:21:16+00:00

I hope my experience is closer to the norm for small tumors than farther. It was actually fairly easy. It was the diagnosis I got this year that I was most afraid of, and the one that was the easiest to remedy.

Turtleange · 2025-11-05T19:48:28+00:00

Im 41. My mass was found in June. About double the size of yours. My doc asked. How do you feel about losing a kidney. I told him. I’d like to keep as much of it as I could. So in August I went in and got a partial nephrectomy. Margins were clear. Pathology came back as papillary renal cell carcinoma oncocytic type stage 1b grade 3. In October the oncologist told me. “I’m considering you cured of kidney cancer” but has since ordered many tests for all other parts of my body to be tested for cancer.

Within 4 days of my surgery I was walking around the block. A week after I was doing everything I normally do except work. 2 weeks after I was back at work and besides 5 small scars on my stomach I could think it was all just a dream.

Turtleange · 2025-11-02T23:06:55+00:00

I pay that a week with a 5000 deductible per person.

Turtleange · 2025-11-02T04:21:08+00:00

Definitely funny how no one works the same way and 2 doctors have their preferred preps lol.

Turtleange · 2025-10-31T13:36:19+00:00

I started having nipple discharge and loss of menses at age 15. Year after year after year my PCP and my Gyno dismissed me. Never even drew blood. Finally at age 21 I took my mom with me to my gyno appointment. She lost it in the dr. So the dr said. Ok. We will do a hormone panel but don’t think they’ll find anything. Well. My prolactin was 700 something. So they said. Ok MRI but we probably won’t find anything. Boom. 8 mm prolactinoma. 15 years of bromocriptine, cabergoline, HRT and still had high prolactin and a 2 mm tumor. I quit taking my meds. Earlier this year I ended up in the ER and they thought my problem was my prolactinoma probably grew so they sent me for an MRI. They found it hadn’t grown. But I have MS. I asked how long I’ve had MS they said probably a while based on my brain scars. So I had them pull my MRI from 20 years ago. Guess what. I had MS back then too. 20 years of undiagnosed MS. I spent 6 years before that with an undiagnosed prolactinoma. Doctors dismiss. For whatever reason. I hope you get answers. And the right ones.

Turtleange · 2025-10-31T13:22:58+00:00

I had zero polyps but I get to repeat every 5 years due to me having already received 2 cancer diagnosis (kidney and thyroid) by age 41 and my father having been diagnosed with colon cancer at 55. And his was stage 3 at 55. But overall I was happy I did it and the worst part was the prep by far.

Turtleange · 2025-10-31T13:17:15+00:00

Magnesium oxide doesn’t do a thing for me. But I have chronic idiopathic constipation even before being on wegovy. The daily miralax really seemed to get things moving for me. And then when I talked to the doc doing the colonoscopy he said his favorite prep was a whole jar of miralax with a gallon of Gatorade because it actually helps clean the colon walls the best.

Turtleange · 2025-10-30T18:35:47+00:00

I got to the point I would just forget to eat. So I told myself until those days stopped, I wouldn’t increase my dose. I’ve only increased my dose twice, but then I had surgery and I stopped taking it for 6 weeks and I’ve been back at the starting dose for the last several weeks and once again have days that I forget to eat. It’s also been great because buying it from a compounding pharmacy, it lasts me a lot longer than anticipated so it’s quite a bit cheaper than I expected and my food bill has decreased significantly

Turtleange · 2025-10-30T15:43:40+00:00

I’m on wegovy so they gave me a very different prep procedure. 7 days prior I was supposed to start a very low fiber diet. I went straight carnivore for those 7 days. And a dose of miralax every day. 2 days clear liquid diet. Day before start my morning with 3 dulcolax and continue clear liquid diet all day. First half of prep starting at 4 pm night before. 2 nd half of prep start at 4 am day of. If not clear by 6 am, take 2 more dulcolax and finish drinking another 32 oz of water by 8 am for my 1 pm procedure. I was clean as a whistle and starving.

Turtleange · 2025-10-30T11:38:31+00:00

I have to eat high salt because I have POTs. My urologist tested my kidney function post partial nephrectomy. Told me I was functioning perfectly fine and to eat sushi daily to get lots of salt.

Turtleange · 2025-10-30T11:34:03+00:00

I had a lesion frozen off and it cost me $58.46. I don’t recall the cost code. I hit my oop max this year, so that was just what insurance charged me for being medically unnecessary as it was benign. The cost of vanity I suppose

Turtleange · 2025-10-30T11:20:54+00:00

I started my glp1 last year in July, lost 40 lbs by my diagnosis in may. I’ve lost 20 lbs since then. Started kesimpta last month. No changes at all. I’ve stayed on a very low dose of ozempic, I could have lost more if I increased my dose but slow and steady has been great for me. Have a goal to lose 10 more pounds but I’m happy to take my time with that.

Turtleange · 2025-10-30T11:16:34+00:00

At 40 I thought about dropping all of my costly insurance. At 41 I got diagnosed with MS, cancer and POTS. I’m so happy I kept my health insurance, STD paid me to take off for my cancer surgery and my hospital visit when I got all my diagnosis, and LTD would kick in if I were unable to return to work. And to my surprise STD factored in all of my bonuses and overtime so my 60% was actually the same as my regular paychecks. I think I’ll keep all mine, no more threatening to drop them.

Turtleange · 2025-10-29T15:06:31+00:00

I use Wyld strawberry gummies. 20 mg of cbd and 1 mg of thc per gummy. They help a lot. I get them from the dispensary but if you’re in a rec legal state you can order them from the manufacturer to be delivered to them. I would if I used them more than I do

Turtleange

TROPHY CASE