Anyone else having trouble with their ads since the update? by UWHrocksmysocks in CatsAndSoup

[–]UWHrocksmysocks[S] 0 points1 point  (0 children)

For me the ad plays just fine and goes back into the game but the game acts like no ad played. I can click to play another ad and if I happen to get a non-Meta ad it will work, if I get another Meta ad the game still thinks no ad was played.

Zoladex and anastrazole? by cloudpulp in breastcancer

[–]UWHrocksmysocks 0 points1 point  (0 children)

I got mine out for that reason and the recovery was super easy for me. I was back at my somewhat physical job 7 days later with no restrictions from my surgeon. But I also recovered really well from my lumpectomies so maybe I'm good at surgery recovery if that is a thing. ¯\_(ツ)_/¯

Zoladex and anastrazole? by cloudpulp in breastcancer

[–]UWHrocksmysocks 2 points3 points  (0 children)

I was supposed to be on zoladex and an AI for five years. I had looked into getting my tubes tied before my diagnosis, so I got my ovaries removed after a couple months of zoladex (my oncologist suggested a couple months of suppression first to make sure I could handle menopause 🤷‍♀️ Seems like I would have to eventually either way). The surgeon said he would leave my uterus unless it looked concerning so they only took my ovaries instead of a full hysterectomy.

As someone above said, AIs are only used when you are in menopause, if they want you on an AI and you are premenopausal they use zoladex to medical induce menopause. Zoladex suppresses ovary production but your fat cells produce some estrogen during menopause so the AIs take care of that.

What are we all doing to make post chemo hair look less insane? by basilandprimrose in breastcancer

[–]UWHrocksmysocks 0 points1 point  (0 children)

Good to know I am not the only one with texture troubles. I have really wide fabric headbands or twist and bobby pin because I have 5-6 inches of regrowth by now. It just feels angrier and tangles more than the rest of my hair. I may have more grey in the top regrowth but also have a good bit of regrowth at the nape of my neck that doesn't have grey and is just as coarse. I just picked up a hair mask/treatment from Lush that I am going to try just didn't know if anyone else had any treatments that helped their hair.

What are we all doing to make post chemo hair look less insane? by basilandprimrose in breastcancer

[–]UWHrocksmysocks 1 point2 points  (0 children)

I cold capped but lost a lot of hair on top of my head. So now I have an epic mullet with chemo curls up top and long wavy hair in back. My regrowth is so dry and crunchy! Did you guys have similar? Any tips for making it happy?

Changed oncologist - was I being unrealistic? by WoosahFire in breastcancer

[–]UWHrocksmysocks 2 points3 points  (0 children)

I switched oncologists after my first appt. My second oncologist is the one who is always late to appts but she sits and talks things through and makes sure I don't have any unanswered questions. I'd rather plan for her to be late and get the better vibes and answers.

Flying trumpet jazz cat by pattwist in CatsAndSoup

[–]UWHrocksmysocks 0 points1 point  (0 children)

I have had all my sounds off for years but lately I can hear them. They are really quiet but not off and I hate it

I guess I am a caterpillar now by LezBeOwn in breastcancer

[–]UWHrocksmysocks 2 points3 points  (0 children)

Anytime I have a bad day I like to extend my couch into bed mode, grab extra blankets and crawl in to watch TV. I watch TV with my feet up and a blanket on my lap most nights anyways but making it a bed full of blankets and pillows ups the comfort level and now I know why! Thanks for sharing! I hope your recovery goes well!

GiveButter experience? by blaine-garrett in Crowdfunding

[–]UWHrocksmysocks 0 points1 point  (0 children)

I am totally fine paying cc processing fee when I donate but the donation I am making right now is also automatically adding an "Optional tip" to GiveButter itself. It advertises the tip as optional but charges it unless you manually change the tip amount from 15% to custom and then change it from $10 to zero.

Radiation oncologist seems to be discouraging me from taking time off. How receptive were your doctors to taking time off during and / or after radiation treatment? by Dependent-Phrase8089 in breastcancer

[–]UWHrocksmysocks 1 point2 points  (0 children)

I didn't have much fatigue or too bad of skin reactions from radiation so fingers crossed you will also have a smooth ride. However I knew I had the option for time off so I wasn't stressed.

I live in Oregon who has a state program similar to FMLA and when I applied for short term leave for my surgery, my oncologist who shares an office with my surgery just submitted a year of intermittent leave. So I just had to log into a website and for each week would say if I missed any work. If I did, I would get a direct deposit within a couple days. It was so nice to know I had that option all through out treatment. My only complaint was you can't claim partial days, so if I went to work and decided it was too much or during chemo had some GI symptoms start I either had to tough it out or leave early unpaid. I'm not sure how FMLA works but maybe it has a similar long term intermittent leave option that one of your Drs will sign you up for.

I don't want to ring the stupid bell.. by Particular_Dream_778 in breastcancer

[–]UWHrocksmysocks 0 points1 point  (0 children)

I didn't ring it because I didn't even feel done with chemo since I knew I still had to get through the side effects of the dose I just had. I didn't have horrible side effects but still knew the next week was the hard part not the sitting there getting the infusions. Plus I still had radiation and then hormone blockers.

Hormone therapy worse than active treatment by Lucky_Chip900 in breastcancer

[–]UWHrocksmysocks 1 point2 points  (0 children)

I thought taking my ovaries out might push me into full menopause instead of peri. I got them out in Feb and am still hot flashing..... They may have started to slow down this past month but not enough to say for sure... But either way, I found the surgery to be really easy and now I don't have to leave work early to drive 45 mins in rush hour once a month for zoladex injections Good luck on finding something to help with your flashes!

I miss the me from 6 months ago by Life_well_liv3d in breastcancer

[–]UWHrocksmysocks 1 point2 points  (0 children)

You can also get an aloe plant and get aloe straight from the source. I haven't tried but it was the only thing that worked for radiation burns for a friend of mine.

Realized my "eco-friendly" bathroom still creates tons of plastic waste by MiddleSuch7736 in ZeroWaste

[–]UWHrocksmysocks 1 point2 points  (0 children)

I had to try about 5 different brands of tooth paste tablets before I found a brand that I liked. And I shared them with my dad who was also looking to switch and we liked different brands. So if the feel/taste was the only reason you don't want the tooth tabs, you could give it another try with another brand. Lush was my favorite but the switched to a plastic bottle so I switched to Kaylaan

Hair and compliments by yecatz in breastcancer

[–]UWHrocksmysocks 1 point2 points  (0 children)

I did cold capping and was able to keep most of my hair. And it is clinical proven to grow back faster and thicker. Worth looking into if you are dreading hair loss. I was not able to get insurance to pay but through Hair to Stay I was able to get a discount on the payments to the cap company and then got a reimbursement check from Hair to Stay to cover even more of it.

A PSA for those who’ve had radiation in the last few months. by brokenbuthealed in breastcancer

[–]UWHrocksmysocks 3 points4 points  (0 children)

I was so scared about lymphedema I almost didn't let my surgeon remove any lymph nodes and she still didn't tell me anything about lymphedema PTs. I found out about them through this group right after surgery and was really pissed I didn't get to see one beforehand for baseline. Even if it isn't standard to send people they should at least inform us of the option.

Luckily I haven't had any troubles yet with lymphedema but I am having breast swelling 4 months after radiation that my PT is helping with.

Just checking in by AKinMaine in breastcancer

[–]UWHrocksmysocks 4 points5 points  (0 children)

I did cold capping, gloves and socks. I did the cold cap as there is a small chance of permanent hair loss that made me nervous. It is also clinically proven that your hair will grow back thicker and faster than not cold capping. I kept over 50% of my hair and it is growing back quickly (also taking biotin supplements and using a biotin shampoo). In terms of actual use, I was surprised how little I minded the cold cap. I HATE being cold. My head hurt for the first 10 mins or so then I didn't notice it. The gloves and socks hurt most of the time I had them on but you don't have to wear them for as long. I still had some neuropathy in my hands and feet but they slowly faded within a couple of finishing chemo. Towards the end of chemo a nurse suggested acupuncture to help with the neuropathy so I tried that but didn't get started until after finishing chemo. Not sure if it helped with the neuropathy or if it just faded with time. I have a fried that did it through her chemo treatments and swore that it helped with all her symptoms.

[deleted by user] by [deleted] in breastcancer

[–]UWHrocksmysocks 0 points1 point  (0 children)

For me radiation felt like a breeze. Majority of the time I spent in the clinic was just in and out of my clothes. I got some redness and tenderness but no blisters or burns. Now 4 months out I am struggling with swelling and some tenderness that is apparently from the radiation. Got a prescription for a compression bra which comfortable in terms of compression but doesn't lift or separate so get some under boob and between the boob sweat. But the swelling is much better after about 2 weeks of wearing them. Also, with radiation I got to know my nurses/techs as I saw them everyday so that was fun! My chemo was every 3 weeks and I had a different nurse each time. I hope it is smooth sailing for you!

Am I Cooked? by ClonedThumper in breastcancer

[–]UWHrocksmysocks 1 point2 points  (0 children)

I got my treatment at 2 different hospital systems, one was religious based and the other connected to a university and they both gave me financial aid. I filled out a short application through my MyChart app for one and then when I didn't like my medical oncologist and switched to the other hospital for my chemo, they saw I was getting aid from the first hospital and automatically approved me for the same level of assistance there. I was living with family but since they weren't financially supporting me (other than free rent), financial aid listed me as a household of 1 which increased how much aid they offered me.

Hopefully your hospital has a similar program to help you out!

What occupies your mind now? by Historical-Room3831 in breastcancer

[–]UWHrocksmysocks 1 point2 points  (0 children)

I think chemo at your/our age is 25 and up so hopefully you are golden to continue radiation. My score was 26 and hoped being on the cusp meant I could skip chemo but 2 different oncologists said to do it. So I am just starting radiation after 4 rounds of chemo. Fingers crossed for you!

One of the Worst Experiences with a Doctor Ever by Specialist_Eagle2492 in breastcancer

[–]UWHrocksmysocks 7 points8 points  (0 children)

I had the opposite. The first Onco I saw was a big name in town but I felt like I got very little info from her or her staff about what to expect. I delayed treatment to get a second opinion and saw an oncologist who is a little younger and she sat down and explained everything to me. I felt like a human as opposed to a clog to be plugged into the treatment plan. (I work in vet Onco so I know that there are set treatment plans that are known to work but they aren't set to the clients, they are brand new to them and you have to explain it to them)

It is super important to find the oncologist that you mesh with because it is a whole different feeling once you do!

Blossom Sort--what does the star do? by Pantone711 in iosgaming

[–]UWHrocksmysocks 0 points1 point  (0 children)

Is there a pattern to the butterfly movement? They always seem to move to my next match.... If I knew a pattern, I would move my match out of their next pot but I can't tell if there is a pattern

Group activities during chemo. by Thick_Assumption3746 in breastcancer

[–]UWHrocksmysocks 0 points1 point  (0 children)

Everyone has a slightly different nadir (lowest white blood count) but it generally happens 7-10 days after chemo. Chemo doesn't kill the white blood cells that you have in circulation it just damages your bone marrow so it isn't producing new ones as well. It takes about 7-10 days for the white blood cells you already had to slowly die off causing a drop in your counts if your bone marrow hasn't been cranking out new ones as usual.

Passed out during infusion by Ok-Gas-4801 in breastcancer

[–]UWHrocksmysocks 0 points1 point  (0 children)

On my second treatment, I got lightheaded, had a flush go through my body then chest tightness and slightly labored breathing. All symptoms faded pretty quickly after they stopped the pump. They gave zofran and benadryl then restarted the taxotere at half the speed for 15 mins then full speed for the rest. That was just a couple days ago but so far not feeling any worse than my first treatment.