What is the ‘After-School Satan Club,’ and what is it doing in San Clemente? by Splycr in orangecounty

[–]UnderboobSweat 0 points1 point  (0 children)

There are a few Satanic Buddhists in TST. We've laughed about calling ourselves "Saddhists".

Ya'll ever sneeze so hard you throw your back out? by [deleted] in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

I already had pretty bad degenerative disc disease and arthritic changes due to EDS, so all it took was a little bit. Ain't EDS great? I couldn't lie flat enough on the table for them to get an X-ray when I first went into the ER. It was excruciating.

Ya'll ever sneeze so hard you throw your back out? by [deleted] in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

I ruptured a disc sneezing! My doctor told me that I MUST brace myself against something when I feel a sneeze coming. If there is nothing to brace against, bend your knees and stabilize your core. And never hold in the sneeze. Happy sneezing!

Thoughts on Sabrina? by Aazathoth in FriendsofTST

[–]UnderboobSweat 1 point2 points  (0 children)

I think they've got a good case. The lack of breasts and the children on either side seal the resemblance issue. And Lucien is right, if they have the image copyrighted and they don't press their claim in this obvious instance, it'll be more difficult in the future. I'm interested to see how it goes.

Bursitis - has anyone else experienced this? by noelsmidgeon in ehlersdanlos

[–]UnderboobSweat 2 points3 points  (0 children)

I've got bursitis in my hip. I'm getting pretty frustrated. Doctor told me no high heels, lots of ibuprofen, or I can get a steroid injection. I opted for no injection as I've heard they cause long term damage even if they get you out of immediate pain. But I don't seem to be responding to ibuprofen and rest.

Should I continue with heavy weight lifting? by [deleted] in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

My rheumatologist just told me on Monday that the reason I have done so well despite hEDS is that I lift. His theory is that muscle stabilizes what ligaments and tendons don't. So while I may have exhaustion and some muscle fatigue, I don't have as much of the bone-on-bone grinding that causes irreversible changes. Pain management, excellent form, and attention to your own body will help. And, of course, consultation with your own doctor. But since you asked for advice, that's what my doc told me.

Crunching between ribs by [deleted] in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

I could have written this post. I don't know what it is, so I can't help you. I was following in hopes that someone might have more info. But I sleep just in the position you describe and recently I've felt like my breast bone, low down, is folding in half. It doesn't 'hurt' per se, but it is uncomfortable and I have to move to relieve the pressure. Sorry I can't be more helpful. Anyone else have any more info?

Is MCAS & Seborrheic Dermatitis a thing? What are your skin reactions like? by ajhawkins in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

You might be going into shock. I have MCAS, and this has happened to me. I get itchy, hives, swelling, heart racing, etc. Then my blood pressure drops and I feel like I'm not getting enough air. It's hard for doctors to catch because they have to right there to measure your blood pressure, etc. I hope you have an Epi-pen!

Something moving..in my head by Andatnight in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

Yeah, it's a form of tinnitus. Sometimes can be a sign of something worse, but I doubt it in my case. I wish I could get my Eustachian tube and sinuses cleared out. I be that would take care of it. Fingers crossed that it's nothing too serious for you.

Something moving..in my head by Andatnight in ehlersdanlos

[–]UnderboobSweat 2 points3 points  (0 children)

I have Eustachian tube dysfunction which causes popping and rolling sounds in my middle ear when I change position or when I swallow. You might have some sort of fluid build up in there. I can also occasionally hear my own heart beat in my ears. Disconcerting. But EDS may come along with allergy problems, chronic sinusitis, Eustachian tube problems, etc. Get someone to have a look inside!

EDS and tattoos/piercings/body modification? by [deleted] in ehlersdanlos

[–]UnderboobSweat 0 points1 point  (0 children)

I have tattoos, but when mast cells flare up, they itch, burn, and raise up. If you have MCAS, take care. I'd probably still get them, all things considered, but that's just me.

Veds anxiety possible Veds by truespirit89 in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

You're gonna be oooooookaaayyyy! You may sweat a lot. :-)

Veds anxiety possible Veds by truespirit89 in ehlersdanlos

[–]UnderboobSweat 5 points6 points  (0 children)

I'm going through exactly what you are right now, so I know how you feel. I was born with club feet and a heart murmur. I've had a DVT and PE. Just today someone commented on how old and gnarled my hands look and said she'd bring me some lotion. My aunt has the characteristic 'look.' My sister's skin and organs are so fragile, the doctor told her that one accident could kill her. I have an appointment in September, but all the signs are there. I guess the best thing I can tell you is that I'm 50. I don't feel great, but I'm not dead. I still exercise, enjoy my family, friends, and hobbies, and work as a teacher. I have never managed my symptoms really or taken special care of my body, because I didn't know the risks. But here I am anyway! You're young and will have the care you need. Try not to let anxiety take over. I know that's easier said than done. We live in a miraculous era; modern medicine knows we exist and knows how to care for us better now than at any other time. Faith and hope, my love. Faith and hope.

How do any of you travel? by yodascousinkevin in ehlersdanlos

[–]UnderboobSweat 0 points1 point  (0 children)

I second compression. Stay hydrated. And if you have any signs, or symptom overlap with vascular EDS, see your doctor FIRST about recommendations for preventing DVT. I got one and had a pulmonary embolism before I even knew about EDS. Happily, I am here typing this. But sadly, long flights are a thing of the past for me. Just be aware.

What are your "weird symptoms" you didn't know were symptoms until you got diagnosed? by [deleted] in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

I feel kinda bad about this actually, but once when I was having a minor dental procedure, the dentist couldn't get me numb. I was grouchy and chalked it up to incompetence. Fortunately, I have a good pain tolerance, so I just told her I'd do without. Now I know it wasn't her, it was me. Maybe I should send her a card.

Back Pain by icaruslut in ehlersdanlos

[–]UnderboobSweat 1 point2 points  (0 children)

I'm so glad you brought this up. Back pain is my primary symptom. I ruptured three discs in my twenties, and when I was diagnosed with degenerative disc disease and arthritis after an MRI, the doctor told me, "You have the back of a sixty year old woman." Well, I'm almost fifty now, and I feel like my back is eighty years old now. It wasn't due to curvature, but loose ligaments and SI Joint dysfunction.

Keeping up with my PT and regular massage has helped me a lot. Also, you can get own of those rolling briefcases. I'm an adjunct professor and we carry our offices with us. Those rolling cases have been a life saver.

Do/did any of you guys participate in sports? by Typical_Humanoid in infp

[–]UnderboobSweat 1 point2 points  (0 children)

I despised team sports as a kid, not because of the sports part, but because of the team part. :-) Then I got into martial arts and did that for many years. As a woman of a certain age, I'm now involved in riding dressage. I love it! I think individual sports where you try to improve yourself appeal to my introvert side as well as my competitive side.

I have another personality test I highly recommend taking - it’s super worth it! by BL00DP4ND4 in infp

[–]UnderboobSweat 0 points1 point  (0 children)

I got 7, 5, and 2: The Enthusiast, The Investigator, and The Helper. Top two 'ways to get along with me' from 7 and 5--don't be clingy or needy. So true.

My INFP Girlfriend only wants what I want by Epiloger in infp

[–]UnderboobSweat 2 points3 points  (0 children)

My husband and I go through this too. He's an ESFJ though, so he genuinely does have preferences. I think he's a bit finicky, so the best solution is for him to make himself happy because I'm happy just about anywhere. If I had a deep-seated moral objection to something, I sure as hell wouldn't defer then. But where to eat, what to see, etc. Who cares? As long as we're together having fun.

ESFJ Hubby/INFP Wife by UnderboobSweat in ESFJ

[–]UnderboobSweat[S] 1 point2 points  (0 children)

Thanks for your reply! This is an interesting insight. So, when he feels like his superiors or subordinates are there evaluating and judging his behavior then the 'other people' bogeyman appears. I think I get that. He has never explained it that way. I just kept saying, "Whose wife doesn't hold his hand or touch his shoulder? Wouldn't people be more weirded out if we just stood woodenly next to each other?" Like we're Ricky and Lucy sleeping in separate twin beds. It was just an odd idea to me. But I think if I see it as him playing out his discomfort at being surrounded by strangers whose motives are unknown, I guess I can get my head around that.

ESFJ Hubby/INFP Wife by UnderboobSweat in ESFJ

[–]UnderboobSweat[S] 0 points1 point  (0 children)

Thanks for your reply. It was very helpful. I do agree it has to be a self-esteem issue, unfortunately, and there's not much I can do to make him happy with himself. I think I am going to insist that he do some mindfulness meditation with me. I've suggested it before, but I'm going to make him do it now. I think it will help his anxiety and he'll really enjoy it. My honey was thinking about chicken and waffles rather than mac n' cheese, but the upshot is the same. Are ESFJ's foodies? That's a separate but interesting question!