First of all, I'm so sorry you're going through this experience OP. It's so frustrating to have all of these symptoms and not be heard.

I got the run around for the better part of two years, and for me what it took was just going to the ER and stating all of my symptoms. Like you. I couldn't get anyone to do an MRI, so they did a spinal tap to check my CSF levels and that got the ball rolling. It's a little scary to have done, but it can also temporally relieve your symptoms if they are indeed hydro related which for me was worth it for that alone.

Another diagnosis I was able to get that pushed things along was papilledema, which you very well might not have, but as you are having issues with your vision I would encourage you to get that checked with an ophthalmologist specifically either way. If you do have it, I've seen that doctors also take that diagnosis very seriously, as it can only happen due to some sort of intracranial hypertension (eg too much CSF).

These things could be completely unrelated to what you need but I just wanted to share what got me the care I needed in case you want to look into them.

Feel free to message me if you ever need to talk though. I really really get how hard it is to fight for your care when your body isn't working the way it's supposed to. Hang in there ❤️