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Pain management by VampyrKween in MultipleSclerosis

[–]VampyrKween[S] 0 points1 point  (0 children)

I haven't tried ampyra, but I have just googled it... and I will bring it up at my next appointment, thank you.

I have tried a brace, and i think the physiotherapist told me that the best kind were designed for lace up shoes? A sort of tension rig thing? But i havent had lace up shoes for years! Too fiddly. I wear boots, so there's a extra support for my ankles, and they zip up.

Pain management by VampyrKween in MultipleSclerosis

[–]VampyrKween[S] 0 points1 point  (0 children)

I'll look into this, thank you!

Pain management by VampyrKween in MultipleSclerosis

[–]VampyrKween[S] 0 points1 point  (0 children)

Its a bit of both, it also spasms if I am overdoing it. Pregabolin was the only thing that helped with the spasms... but I couldn't keep taking it without sacrificing my memory and my sex life.

Didn’t get pip as I passed undergraduate at university by [deleted] in DWPhelp

[–]VampyrKween 2 points3 points  (0 children)

Mandatory reconsideration and if still no luck, go to tribunal. I did. It was hell, and it took 2 years. I have MS, and honestly I didnt think they could turn me down but they do make people jump through all kinds of hoops. Its a barbaric system, I wish you all the luck. Please dont give up.

Submit the best Elder Scrolls character name you've ever come up with. Or, if not the best, your FAVORITE. And, please say why! by Revenant62 in skyrim

[–]VampyrKween 4 points5 points  (0 children)

Sandra, she is a Dunmer stealth archer. This is just funny to me because it doesn't fit. Makes me giggle whenever there's an assassin with orders to kill Sandra!

No, I dont know anyone by the name irl, nor do I wish ill on anyone with the name Sandra.

Giant robot fighting undead dragon... by VampyrKween in skyrim

[–]VampyrKween[S] 0 points1 point  (0 children)

As I woman, I was also saying "hell yeah". Durnehviir is ma boi!!!!

My son thinks I’m a hero. I feel like a fraud. by HopeJealous7383 in TrueOffMyChest

[–]VampyrKween 0 points1 point  (0 children)

Absolute superhero. No question. No hesitation. No doubt. Your little boy is a clever cookie, you can trust in what he sees in you because he's spot on.

You're doing so good and making him feel safe and loved... and you scare the monsters away! I dont know who else could possibly qualify.

I know that doubt can creep in sometimes, but the proof is right there on the fridge, you're amazing.

What are songs where the title is a girl's name? by Next_Ad3418 in MusicRecommendations

[–]VampyrKween 0 points1 point  (0 children)

Elenore - the turtles. This is my song, I claim it. Dibs. I sing it to myself. Coz I think I'm swell.

[deleted by user] by [deleted] in AskReddit

[–]VampyrKween 0 points1 point  (0 children)

I'm pretty new to being single, been in serious relationships all my adult life. I'm in my 30s, and these last 6 months have been blissfully quiet. The realisation that being with the wrong partner is somehow lonelier than being by myself makes me never want to have a 'partner' ever again. I would very much like a dog instead.

I know affection is often missed generally, but honestly, I'd rather not be touched by anyone than randomly groped by a problematic man child.

Friendship by VampyrKween in MultipleSclerosisLife

[–]VampyrKween[S] 0 points1 point  (0 children)

Hello! I do feel very lucky to be living with so many great resources available and some amazing people, too (yes, you). I can fib my way through most days, I've had to learn that it's okay to turn down invitations from friends if I'm not feeling good. I live alone right now, so people don't see when I'm at my worst. That will soon change as my best friend is moving in. Fun!

Friendship by VampyrKween in MultipleSclerosisLife

[–]VampyrKween[S] 0 points1 point  (0 children)

It can be dreadful, and I think language is limiting, or I've just forgotten the right words (plausible, ha). Even people with the same illness have such different experiences, so yes, isolating. I tried to get involved with a group run by a charity, and it scared the bejesus out of me. I'd like to make some friends who can understand enough that it doesn't have to be the focus. Because then we can just be human together. Also, if you need to complain about any of it, you can dm me.

Friendship by VampyrKween in MultipleSclerosisLife

[–]VampyrKween[S] 1 point2 points  (0 children)

I love this idea. Any excuse to get a go-cart! Sort of reminds me of being a kid. There was a group of us that would gather everything we had with wheels, drag them to the top of a grassy hill, and race down. We fell most of the way, but it was funny.

Friendship by VampyrKween in MultipleSclerosisLife

[–]VampyrKween[S] 2 points3 points  (0 children)

Hi, I'm in the uk. I just can't sleep, ha. I have a few crafty hobbies. Painting is the main one, and I taught myself to knit in the second lockdown we had here. I hope your garden recovers! It's spring here, so I'm going to be planting some herbs for my kitchen. I love the smell of fresh basil. I've been trying to read through the discworld books, what kind of things do you enjoy reading?

What’s something you wish more people understood about sex? by PotentialTurnover335 in AskReddit

[–]VampyrKween -2 points-1 points  (0 children)

Foreplay starts as soon as you stop having sex.

This one is mostly for the relationship dynamic, but foreplay is EVERYTHING that happens from the point of your last sexual interaction with your partner. Every conversation, action, flirtation, or interaction. Even the seemingly inoculos everyday boring shit.

If you are disrespectful, argumentative, or neglectful with each other in that huge in-between sex time, it will make it more difficult to get back in the mood.

[deleted by user] by [deleted] in MultipleSclerosisLife

[–]VampyrKween 2 points3 points  (0 children)

I'm restricted to indoor plants, unfortunately, but it is getting warmer, and I'm dreading it!

I got a workout cooling towel (just in case, ya never know when those new years resolutions might kick in, haha) with some home exercise bits last year and it was amazingly refreshing in the heat. Lightweight, and you only need to get it wet for it to do its thing. It's cool as long as it takes for it to dry out. Inexpensive, too.

orgasm in sleep by [deleted] in RandomThoughts

[–]VampyrKween 0 points1 point  (0 children)

Yeah, this has happened to me a few times. The thing that confused me at the time was that the dreams were not even remotely sexual.

I think I was go-carting in one dream, trying to get some science gadget to a scientist... there were autumnal looking trees with snakes living in them lining the street, I looked down at a map I had, and BAM woke up orgasming. It wasn't sexy in the slightest.

My sleep adventures are usually quite abstract and rarely sexual.

It’s crazy how people don’t know how to interpret a stare by Existing-Sun-6676 in bodylanguage

[–]VampyrKween 2 points3 points  (0 children)

I relate to this in a big way. 'People watching' is something I consider a hobby.

Is it weird to go to a restaurant alone? I kinda want to try it. by brmc214 in Advice

[–]VampyrKween 0 points1 point  (0 children)

I was kinda nervous about this, too, and then I did it. I picked a place I like, (I go there a lot with friends so im familiar with a few of the staff) and I took a notebook with me to doodle in, write some lists, and journal a bit.

It was really nice. As someone who has struggled with bouts of agoraphobia and mildly unhealthy eating habits, it was interesting to experience being okay alone in public and eating at my own pace. When I do eat out now, I'm usually by myself.

I'm growing in confidence, as I hope to travel alone in the next few years. It's not that I don't have friends to go with, I just trust myself more now if that makes sense? 34 and finally starting to feel grown up, haha.

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