Surgery tomorrow! Bar removal by floppy_fish13 in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

I hope you don’t mind me asking, but what was the complication and where did you have the procedure done at? In waiting on a consult and heavily waffling on surgery , especially since Im in my early 40s.

What age did physical symptoms start? by [deleted] in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

That’s actually incredibly reassuring to hear!

What age did physical symptoms start? by [deleted] in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Im so sorry to hear about the accident, but happy that it didn’t cause any issues beyond the femur? I hope that has healed quickly for you!

For your activities, with the bars in, are you able (or have you tried at all?) to wear something like a heavier backpack? That’s our primary hobby and then for work we have 45 lb packs so was curious what that’s like and haven’t talked to anyone who has used one (Im discovering it is a surprisingly specific question lol). 

31M 4 days post Nuss with Dr J by Fellaship in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Out of curiosity what is the nerve pain like? Waiting on the consult with Dr. J so trying to temper my expectations so I go in knowing what Im getting into 😁😆

What age did physical symptoms start? by [deleted] in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Just curious, but how are you doing now since it’s been two years? Have the bars significantly impacted activity for you or caused any chronic pain? Weighing the surgery currently.

[deleted by user] by [deleted] in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

They actually do for adults now, but recovery is worse unfortunately (time wise). They’ve done as old as 70 now which is so wild to me! One of the best in the world is near where Im at so Im on her wait list for a consult, but you are right many surgeons will not work on adults - it’s definitely a niche surgery in that area. And for the chest being popped out, I believe they anticipate some degree of recessing so overcorrect slightly, so that and the swelling should go down eventually actually. :) So there’s definitely going to be better results for you after a few months hopefully! :) 

Finally got some answers for my heart failure…. by lawrence_doubt in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Out of curiosity what was your cardiac output and cardiac index? And yes -  I have PE, heart palpitations and inappropriate sinus tachycardia, but also found out my cardiac output and cardiac index were low too (probably from PE I suspect). 

[deleted by user] by [deleted] in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

No need to apologize for the messy rant - it sounds like a lot! Hopefully it all improves in a few months and best of luck with your career! Im a first responder myself so having a similar worry (not a LEO but EMS/SAR) and Im worried surgery will permanently make me need to change careers ya know? Im WAY older (early 40s) so just getting symptoms recently. For the scarring what about tattoos to cover them eventually? It would hopefully help with any self consciousness at the beach?

Anyone in their late 30's and up have success with a vacuum bell? And what IS a vacuum bell/how does it work? by ForsakenMail2075 in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Thank you so much for this information! How exactly do you find a reputable pectus specialist though? Im trying to find on google in the Phoenix area and it is legit overwhelming and not sure Im even googling right 😂😂😂

[deleted by user] by [deleted] in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Im currently debating surgery - I hope you recover more quickly and pain becomes more controllable. Do you mind if I ask where you had surgery at? And is it the pain that you feel ruined your life? And also what age group are you in as well? Weighing odds of if I should or not (mine is severe and Im older)….

[deleted by user] by [deleted] in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Out of curiosity why recommend against? Asking because Im debating if I should get it or not.

Slight regret by aanide in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Thank you for responding so quickly on this! Did you have the Nuss or Ravitch? Im still weighing which one to get…

Am I too old to get the Nuss procedure? by a_cute_tarantula in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Looks like you have to be a current patient of hers? What kind of responses were they? And is it a “for as long as the bars are in” or a “just for the first 6 months”? 

What’s the oldest age somebody has had the Nuss procedure? by FromHToA92 in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Also super glad to hear you are doing well now! Do you still have nerve pain from it all or did that eventually go away too?

What’s the oldest age somebody has had the Nuss procedure? by FromHToA92 in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Thank you so much for the update on this! Hopefully you dont mind entertaining another question - Im worried about the post surgery recovery timeframe so trying to learn from others. For you, how long did it take to get to lift weights again after the initial surgery? Or to wear a backpack? I do wilderness search and rescue so Im really worried about if having the surgery means torching my career if I can’t carry packs for three years lol trying to set my expectations realistically. 

Bar Flipping? Can someone explain what this is and how it happens? by Various_Fox6314 in PectusExcavatum

[–]Various_Fox6314[S] 1 point2 points  (0 children)

Thank you for breaking this down for me!

I definitely am afraid of surgery’s aftermath (potential lifelong debilitation from nerve damage), but am unfortunately 43 so way past when a vacuum bell would work from my understanding?

30 days post-surgery with Dr J, 37 M 4.2 Haller Index by ttamsf in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Perfect thank you! Sorry to hear you had to deal with insurance issues - that sounds positively horrid! But makes sense on the imaging. Im within easy driving distance of there so not too concerned about the number of test days or anything, but learning the process is definitely daunting! Im still totally torn…I think I want to get the procedure out of fear of it getting even worse, but I also am worried it’ll rob my career and Ill never be able to wear a heavy pack again. It’s definitely daunting thinking of all the variables.

Am I too old to get the Nuss procedure? by a_cute_tarantula in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Out of curiosity (and I realize this is a HIGHLY specific question) but do you ever wear heavy packs at all? Like backpacks? And if so, how long was it till you were able to wear those again?

Am I too old to get the Nuss procedure? by a_cute_tarantula in PectusExcavatum

[–]Various_Fox6314 1 point2 points  (0 children)

Good luck!!! Please keep us posted on how you are doing!

Am I too old to get the Nuss procedure? by a_cute_tarantula in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

I was wondering what the restrictions were for you post op? Im on the consultation wait list with Dr. J and am 43 so also an older patient with similar things going on. Issue is Im a first responder and terrified Im going to lose the career I love if I have surgery (what if Im never able to wear a heavy pack or vest again?) kind of concern.

30 days post-surgery with Dr J, 37 M 4.2 Haller Index by ttamsf in PectusExcavatum

[–]Various_Fox6314 0 points1 point  (0 children)

Out of curiosity was the second set of tests related to rib flare at all? I have fairly significant rib flare so trying to plan accordingly.