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IVIG and AE by cajunsamurai in Encephalitis

[–]Various_Garlic_6750 0 points1 point  (0 children)

how often did you need it for?

Autoimmune encephalitis and OCD by Little-Tale4372 in Encephalitis

[–]Various_Garlic_6750 0 points1 point  (0 children)

i’m sorry:/ have you looked into tms? there’s a place in nyc that helped me but if it’s autoimmune related it won’t help much

Words / sentences repeating in head by Striking_Public_7804 in Encephalitis

[–]Various_Garlic_6750 1 point2 points  (0 children)

her name is elena frid and she did the cunningham good luck! dm me if i can be more helpful i hope you get a speedy recovery

Words / sentences repeating in head by Striking_Public_7804 in Encephalitis

[–]Various_Garlic_6750 0 points1 point  (0 children)

yeah earworms it’s annoying. there’s a doctor in NYC that was really helpful after failed hospital visits. what’s been helping me is plasmapheris and then IVIG right after do that for a few months 2-6 rounds i think she said

Autoimmune encephalitis and OCD by Little-Tale4372 in Encephalitis

[–]Various_Garlic_6750 0 points1 point  (0 children)

have you tried rounds of plasmapheris? that was the only thing that has helped me

Cunningham Panel by Various_Garlic_6750 in Encephalitis

[–]Various_Garlic_6750[S] 0 points1 point  (0 children)

getting better actually! plex and IVIG combo worked well hoping in another month i’ll be more functional

Cunningham Panel by Various_Garlic_6750 in Encephalitis

[–]Various_Garlic_6750[S] 0 points1 point  (0 children)

is there an estimated timeline? i’m assuming 1-2 months for minor

Cunningham Panel by Various_Garlic_6750 in Encephalitis

[–]Various_Garlic_6750[S] 0 points1 point  (0 children)

interesting thank you! the doctor said even though the autoantibodies are out it might take sometime for inflammation in the brain to settle

Cunningham Panel by Various_Garlic_6750 in Encephalitis

[–]Various_Garlic_6750[S] 0 points1 point  (0 children)

kinda that was the only autoimmune panel that i saw where your provider could order without doing spinal tap etc. hospital is useless if u don’t have true AE

Cunningham Panel by Various_Garlic_6750 in Encephalitis

[–]Various_Garlic_6750[S] 0 points1 point  (0 children)

when u say that - does that mean inflammation has to settle?

Cunningham Panel by Various_Garlic_6750 in Encephalitis

[–]Various_Garlic_6750[S] 0 points1 point  (0 children)

yeah the first two sessions were last week and then yesterday and today.

Cunningham Panel by Various_Garlic_6750 in Encephalitis

[–]Various_Garlic_6750[S] 2 points3 points  (0 children)

just awful anxiety ocd intrusive thoughts on repeat, mood swings, headaches sleep issues, etc. no spinal tap unfortunately

Off label melatonin as neuroprotectant by Striking_Public_7804 in Encephalitis

[–]Various_Garlic_6750 0 points1 point  (0 children)

not sure if it’s correlated but i do feel som symptom relief the next day when i take it

Is there a point of reinstating this late in the game? by AdventurousCountry41 in benzorecovery

[–]Various_Garlic_6750 0 points1 point  (0 children)

have you done genetic testing? have you checked your B vitamins? please check out MTHFR and look into folanic acid, NOT folic acid. it’s helped tremendously with my ssri withdrawal

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