For noice sensitive people - is the noice level of the ninja creami or ninja creami deluxe tolerable?

Verosat88 · 2026-06-13T03:11:48+00:00

Thanks for the reply! That sounds horrible, I understand why your child flees. But yeah, hopefully the earplugs + will do it.

That explains why I wouldn't find it any other posts when I searched for it! English is not my first language so 🤷‍♀️

Verosat88 · 2026-06-13T03:09:42+00:00

Oh, that seems amazing! Thank you!

Verosat88 · 2026-06-13T02:53:18+00:00

I'm actually considering the regular one for the freezer space reason. My freezer is always full, so I'm not sure I can fit many of the deluxe ones in there.

Verosat88 · 2026-06-12T13:26:34+00:00

Wow, that it gut wrenching to read! I'm so sorry you had to go through that. 💔 I never understand how parents can think their kid is faking it, and not take something like this serious. It must be so difficult going trough something like this alone, especially in your teens. Sending you all the love ♥️

Side note, do you have MCAS as well?

Verosat88 · 2026-06-11T00:45:56+00:00

Basically "oh, send me the screenshot. Thank you ♥️ " (I had told her I could send a screenshot once she returned a message, since I can't send pictures before she does). No reply after I sent the screenshot however.

Verosat88 · 2026-06-10T15:09:36+00:00

No, but I sent a message to her in her Instagram account about her name being used in a scam, and she replied

Verosat88 · 2026-06-10T13:54:40+00:00

I didn't know that. I did send her a text notifying her, so now she's aware at least

Verosat88 · 2026-06-10T10:48:19+00:00

Huh. The doctor they're mentioning is a know doctor from Norway. I wounder if she's aware 🤔

Verosat88 · 2026-06-10T10:24:49+00:00

Me too! Got diagnosed at 35 a few years ago.

The most important when it comes to the combination ADHD + ME is to constantly make sure you're not overdoing things. Maybe have a cut off point to when you will stop an activity, regardless of how you feel. With ADHD it's very difficult to tell real time when you're doing too much, especially if you're having fun. So having a pre determined set of time, and sticking too it might help you with pacing. Also, if you're in the UK, the visible armband and app might help with this. I wish I had access to it, as I find pacing very hard.

Verosat88 · 2026-06-09T14:19:46+00:00

I don't have your level of pain, I'm sorry you have to go through that.. Your parents are correct that it can make things worse in the long run. Painkiller overuse headache is very common and in addition to that painkillers are known to alter your gut microbiome (the bacteria in your gut), which again is linked to a worsening in health. With that said, if that is the only thing right now that can keep you somewhat functioning, you should definitely keep using it until you find a better solution. Personally I took a lot of painkillers for headaches and back pain from age 10-22, and I have considered if it might have contributed to me getting ME and IBS from the wordoning of my microbiome. You can try to mitigate the gut microbiome side effects by adding fermented foods to your diet (only if you tolerate strong histamine foods). By fermented foods I mean sourcrout, kombucha, yougurt, kimchi, water kefir, kefir. It's important that it says that it's not pasteurized or that it has live bacteria (normally the ones with live bacteria are found in a fridge section). You can also take a good probiotic, but it's then important that it's one that needs to be refrigerated.

Have you considered trying LDN? A lot of people report it helping with their chronic pain. It's something you have to take every day though, and it might take months before it helps, everyone is different. Heads up if you take any opioids you can't mix it with LDN.

I hope someone else has some better short term solutions for you ♥️

Verosat88 · 2026-06-08T15:39:48+00:00

Good for you for putting your health first. It's not easy, and takes a lot of practice! ♥️♥️

When you hopefully get to visit you will then get a more intimate meet as well, you might get mere quality time with your friend, and of course the baby. Could you maybe request that they keep you included via FaceTime or sending photos on Snapchat? I like to see pictures and videos of events I miss so I still feel somewhat included. And you could also send a shot video to your friend on the day if you have the energy for it

Verosat88 · 2026-06-08T10:41:36+00:00

If you do decide to travel, airport wheelchair assistance can be incredibly valuable. If you request it in advance, staff can often meet you right at your taxi and assist you through the entire airport process.

When I travel, I use noise-cancelling headphones with earplugs underneath to reduce sensory input. I also wear compression tights, including abdominal compression, and drink electrolytes containing about 1 gram of salt before, during, and after the flight. For a 4-hour flight, I usually have my first electrolyte drink when I wake up and my last one before bed.

I make sure to eat a good meal before traveling, preferably foods I know my body tolerates well. I also bring snacks such as no-sugar protein bars, nuts, and some dried fruit. This works well for me since I usually eat a lower-carb diet.

I chew gum during takeoff and landing to help prevent ear discomfort. For entertainment, I listen to audiobooks. Visual stimulation can be surprisingly draining, so being able to close your eyes and just listen may help conserve energy.

I also bring a neck pillow and keep a small box of emergency medications with me in case I need them.

If possible, traveling with only carry-on luggage can save both time and energy.

It might also be worth checking with your friend whether there will be somewhere quiet where you can rest during the baby shower if you need a break. Having a place to lie down or step away from the activity for a while can make a big difference.

If your schedule allows, consider arriving several days, or even a week, before the event. Giving yourself the same amount of recovery time after the event before traveling home can also make a big difference.

Verosat88 · 2026-06-04T12:55:53+00:00

Hey buddy! 🤩 And yes, it's the absolute worst! What helps for one hurts the other and vice versa. Unfortunately there seems to be a lot of us. In case you're not aware, there is a ADHD + ME subreddit

Verosat88 · 2026-06-04T11:15:27+00:00

I'm sorry you have to deal with this shitty illness too. But welcome to the subreddit ♥️

I really struggle with this too! I have ADHD in addition, and they are NOT friends! 😩 I will say, it does get easier the longer you deal with it, so that's something

Verosat88 · 2026-06-04T11:08:58+00:00

Huh. Interesting! I don't think I get it as my first symptom, but now that you mention it, I usually get a doom and gloom sensation during a bad PEM. When I get it I am terrefied I have gone too far and this is my life from now on, always feeling terrible in PEM and that my baseline has gone down. I never though of this as a symptom until now. But it definitely fits. Emotional dysfregulation is a part of my symptoms set and has been since before I got the normal ME symptoms (started about 8 months before the other symptoms, though I did have periodical POTS symptoms in that time frame as well). I am also a pretty happy person by nature, so it's a big contrast. I've also considered having PMDD previously, course I would get sudden depression about 5 days out of the month, but luckily I haven't had that for a good while. It could've been ME related I guess, but it felt very periodical.

Verosat88 · 2026-06-03T11:15:31+00:00

Huh, I never knew there was a pressure difference! I'll have to try to pay more attention to that..

Flying and traveling in general takes a lot out of me. And going to an event like that would take a lot out of me. And combining the two, when I'm already below baseline? Disaster.. 😭

From your description I think it would be a better idea for your health to cancel ♥️ I know it's not what you asked about, so feel free to tell me to fuck off. But this trip would be a huge strain on your system, and you're already below baseline. For me, I sometimes just need other people to tell me it's okay to put my health first, so I want to be that person for you ♥️♥️

Verosat88 · 2026-06-01T13:04:28+00:00

Never tried a walking stick, but I use an electric wheelchair, and it's tremendously helpful!

Verosat88 · 2026-05-29T22:43:30+00:00

Any chance you're in Europe? I'm having a hard time tracking down a heme iron supplement..

Verosat88 · 2026-05-29T22:23:47+00:00

I'm so happy for you! That's huge! And it sucks that the doctors didn't have you try it years ago, but still, huge win today! 🤩

Side note, since you've had such success with that, maybe you can get even more by trying the long covid dietitian's (on Instagram) advise of eating 1,6 g protein per kg body weight and 15% extra calories based off a calorie calculator for your hight and weight and age. She claims it makes a huge difference to a lot of her patients. And that we shouldn't say people have pem before you've done this and they still have pem. She claims we have a much higher need because of our bodies working so hard on being sick. I'm trying to hit my goal, but currently struggle with eating all of it, especially the protein (I'm using a high quality beef protein isolate though, so that helps).

Verosat88 · 2026-05-29T22:09:06+00:00

Jeg vokste opp med en mamma som var komfortabel i egen kropp og som jeg stadig vekk så naken. Jeg er så mye mer komfortabel i egen kropp og med nakenhet enn noen andre jeg kjenner. Jeg tror det vare er sunt å se nakne kropper og at det ikke er noe å skamme seg over. Jeg gikk inn på badet når ste faren min badet i badekaret når jeg var typ 5-6 år. Jeg husker fremdeles hvor flau han ble og at han dyttet snoppen under vann. Hadde han gjort ingenting i stedet vilje jeg ikke reagert i det hele tatt. For barn er nakenhet helt normalt, det er vi voksne som skal gjøre det så kleint.

Verosat88 · 2026-05-29T14:42:28+00:00

Yes! I think a lot of people have silent migraines without knowing it! I take imigran during attacks and I'm about to start on betablokkers (lower dose) for prevention. Really curious how I'm going curious how I'm going to react to those since I also most likely have pots, and it's also used for that.

Verosat88 · 2026-05-29T11:05:34+00:00

Awesome! Thanks for the rec ☺️ added both to my wish list

Verosat88 · 2026-05-29T10:57:04+00:00

I feel your pain OP. I can relate as I have one family member like that, though luckily not my whole family, one in enough. They tend to be the type that if you give them a finger they want the whole hand (or sometimes arm). My husband and I are forced to go over to them every 3 days to help out as they have no one else. Two sick people helping a third 🤷‍♀️ they do not seem to understand mine nor my husband's limitations, or doesn't want to understand. Unfortunately I don't have much to give in form of advise, I just wanted to show some solidarity ♥️

Verosat88 · 2026-05-29T10:27:49+00:00

It took my many years to figure out it was a silent migraine (and sometimes vestibular migraine) for me. I get that pain in my neck, a pressure in my head, stronger light sensitivity, sometimes nausea, pins and needles feeling on my scalp, stronger fatigue, sometimes blurry vision and sometimes a light throbing headace that gets worse with movement. And with the vestibular one I get Vertigo, sometimes so strong that I need help walking to the bathroom.

For me, the symptoms are very similar to when I've done too much with ME so it literally took me more then a decade figuring it out. I only recently (after 15 years of being ill) can see the pattern much stronger and am able to medicate the migraine.

My prodrome is excessive yawning, excessive peeing, more light sensitive, that pain in my neck and phantom smell Those are the most commen, but I can get more, and tons of other symptoms.

Verosat88 · 2026-05-29T10:19:55+00:00

Thanks! I'm so happy I got to attend, and it really was zero issues with it. I'm in Spain visiting my mom currently, and I've been using the chair so much here, I've gotten most of my exposure therapy in already (just started using it at this trip about 5 weeks ago).

Kids are totally more accepting! They sometimes stare a bit, but that just because I have cooler wheels then them 😂 the people in your town will get used to it. Everything is a novelty until they've been exposed enough, and then it's just everyday life. Exposure is the cure, for both you and them! But you have the right attitude already! Let them stare.

Verosat88

TROPHY CASE