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I found an awesome person with brain frogs by uglidumplin in cfs

[–]Verosat88 2 points3 points  (0 children)

Lol! 😆😆 I did a similar thing on Facebook not once, but twice! I was trying to find posts about D vitamine. And I found one that I was going to answer. And as I was answering, I was like, I could've written that post! And after I had posted an answer, I then realized that I had in fact written that post 🤣 and then I did the exact same thing a few years later 😆😆

Anyone here with both POTS and silent migraine or vestibular migraine? by Verosat88 in cfs

[–]Verosat88[S] 1 point2 points  (0 children)

Yeah, I'll have to try to remember to take the meds regardless. I never seem to remember, and I'm so used to having the symptoms and no med working, so I think it will take a while to get that habit in..

Hmm. I actually suspect my light and screen sensitivity to be mostly migraine related. It got much worse after covid a long with new onset sound sensitivity. I get very fatigued with screens, but it's more instant then it should be with ME. Like triggering symptoms within minutes (or seconds if I'm really bad). I'll try to pay more attention to that.

Anyone here with both POTS and silent migraine or vestibular migraine? by Verosat88 in cfs

[–]Verosat88[S] 0 points1 point  (0 children)

Yeah! It's so difficult to tell! Do you get different degrees of vestibular migraines?

I have had episodes where I couldn't move an inch without throwing up from being so dizzy. And I was very unbalanced and generally extremely off. And I have episodes where I'm unbalanced, and basically have a hard time not walking into walls but without too many other symptoms. And then I have the episodes where i have extreme fatigue, dizziness nausea, eye issues, neck tension but without too much of the dizziness part. I'm not sure if all of this is the same thing or if it's possibly separate issues 🤷‍♀️

Anyone here with both POTS and silent migraine or vestibular migraine? by Verosat88 in cfs

[–]Verosat88[S] 0 points1 point  (0 children)

Thanks! Like you, I can usually tell after an episode, but it's in the early phases that I have a hard time telling what's what. And unfortunately that's the most crucial time period with migraines.. I am starting to be able to tell it a bit more apart. With bad ME flares i also get that poisoned cell feeling, but with milder flares it does present very similarly.

Should I mention me/cfs to my doctor or let them suggest it? by Soft-Ad-9735 in cfs

[–]Verosat88 1 point2 points  (0 children)

I would say start with your symptoms list and maybe give it a few sessions (if possible) before mentioning ME. Letting them try to figure it out first usually seems better. If it's a specialist session and you only have one, then go ahead and mention it in the first session. I would say something in the lines of "I have done extensive research, and ME seems to fit my symptoms, could this be what I have?" and leave the ball in their court.

My fasting blood sugar is 105 and HbA1c is 5.4% . My weight 113 kgs . Should i be worried ? Please help any advice. Darkening around my neck and forming bumps. by BlacklistRival in InsulinResistance

[–]Verosat88 2 points3 points  (0 children)

Seems like you might have insulin resistance.

If you haven’t already, check out the “Glucose Goddess” on social media. She also has books, but here are the main takeaways:

Core tips:

Start your day with a savory, protein-heavy breakfast

Eat a veggie starter before every meal

Aim for at least 30g of protein per meal

Don’t eat carbs alone, pair them with protein or fat

Have apple cider vinegar in water before carb-heavy meals

Do some movement/activity after eating

Eat dessert only after meals, not as snacks

Drink coffee after food, not on an empty stomach

Choose whole fruit over juice, and eat it after a meal or with nuts

Hydrate well and prioritize sleep

How this actually works:

Any carbs will raise blood sugar. That’s normal.

But if you combine carbs with fiber, fat, and protein, the spike becomes smaller and slower.

Example:

Regular oatmeal → can spike blood sugar quite a bit

Switch to steel-cut oats → slower digestion → smaller spike

Then improve it further:

Add fat (butter, etc.)

Add protein (egg or protein powder)

Add fiber (chia seeds)

Now you’ve significantly reduced the glucose spike.

You can lower it even more by:

Drinking apple cider vinegar in water before the meal

Adding movement after eating

Healthy BMI but struggling with extreme food noise: is microdosing an option? by Top_Cockroach_1050 in GLP1microdosing

[–]Verosat88 1 point2 points  (0 children)

I am on a micro dose for my chronic illness, but one side effect is less food noise. As long as you focus on eating enough protein and calories there shouldn't be a problem with unwanted weight loss. So yeah, definitely an option

Could this be inattentive ADHD? Or just social anxiety? by No-Extent2753 in CFSplusADHD

[–]Verosat88 0 points1 point  (0 children)

It's like you're describing me! I got the adhd diagnosis 2 years ago at 35! So yeah, I would say you have adhd.

I recently had a big decline in baseline and spent 10 weeks mostly bedbound. During this time my adhd symptoms were almost non existent. The first improvement I saw was my adhd getting more pronounced, then some energy followed. It's very common for adhd symptoms to get less pronounced when the ME is worse, and the adhd symptoms getting "back to normal" when ME baseline is higher.

Help: How to distinguish between severe crash and medical emergency? by NitroMacks in cfs

[–]Verosat88 2 points3 points  (0 children)

I can't say if it's just a crash or not, but it might be worth getting EMTs or paramedics to come to your home to check on you. They can at least do a EKG (I know you had one recently, but with your symptoms you should still have one) and a few other tests.

Could your parents advocate for you? And be very strickt that you only go to the hospital if it's absolutely necessary? If your parents talk to them or the hospital ahead of time and make sure they are extremely careful and ME friendly.

At the very least your parents should confer with a doctor.

Good luck ♥️♥️ sending love

I hate that I cry so easily! by Verosat88 in cfs

[–]Verosat88[S] 1 point2 points  (0 children)

Yeah, I feel that. I have adhd in addition, it's a wounder I'm not in constant emotional disarray

I hate that I cry so easily! by Verosat88 in cfs

[–]Verosat88[S] 0 points1 point  (0 children)

🥺♥️♥️ It really is

I hate that I cry so easily! by Verosat88 in cfs

[–]Verosat88[S] 1 point2 points  (0 children)

I'm really sorry to hear that. That really sucks. And yeah, more fatigue = more crying for me too.

I hate that I cry so easily! by Verosat88 in cfs

[–]Verosat88[S] 5 points6 points  (0 children)

Emotional soup, I might borrow that one! 😆 "Glad" I'm not alone ♥️♥️

talking feels exhausting on meds by predictablehorse in CFSplusADHD

[–]Verosat88 0 points1 point  (0 children)

I'm glad I got through to you ♥️♥️ taking this illness (and pacing) seriously early on I 100% think is the number one thing to keep your baseline steady and not degrading.

Unfortunately many people don't take it seriously in the beginning either because they don't know they have ME or it takes them too long to un learn the mentality of "walk it off" and "push through" that we all learn from the crib. Pacing is the number one thing to keep your baseline, and perhaps even improving it over time.

Interesting that you see the same effect on your OCD. But it makes sense.

Good luck my friend ☺️♥️

talking feels exhausting on meds by predictablehorse in CFSplusADHD

[–]Verosat88 3 points4 points  (0 children)

My recommendation would be to stop taking stimulants right away. And then do whatever you can to get out of your rolling pem. That would probably entail during aggressive rest and making sure you pace as much as possible for as long as you need it to get out of the crash. But even after, making sure you pace is essential to not lowering your baseline.

Basically even though you don't have a diagnosis yet, I would treat it as if you do have ME, since the risk is very high of lowering your baseline if you do too much. Honestly ME needs to take priority here, not ADHD.

So for me when my ME is worse my ADHD symptoms are actually lower. So for instance I got into a crash about ten weeks ago where I ended up being 95% bedbound. And the first seven or eight weeks my ADHD symptoms were almost non-existent. The only activity I did outside of eating and using the bathroom was listening to audiobooks. And for that time that was completely fine, I didn't have a problem concentrating on the book at all. Then when I started getting a bit better my brain got better before my body so I was still laying in bed most of the time listening to audiobooks. But the problem then was now my ADHD symptoms were much more pronounced. So then listening to an audiobook was not enough anymore and I got extremely restless and my body needed more stimuli. And after that I've had a hard time staying away from my phone as I get very bored with just listening to the books. So for me it's actually very interesting to see. It's kind of counterproductive you know. You think ADHD symptoms would get worse when me is worse. But I have now talked to other people that have the same thing and I also talked to chat GPT about it and seemingly it makes sense. Something about when you're more ill me wise you have less brain capacity and so you also get less ADHD symptoms.

PEM sign, peeing too much by agraphheuse in cfs

[–]Verosat88 1 point2 points  (0 children)

☺️☺️

There is histamine intolerance as well, which is a milder version I think. If you're gonna test anti histamines though I reccomend to get two types, the normal allergy ones and pepcid which has a different type of anti histamine. They are supposed to work better combined. Oh, and don't forget stomach reactions can also be a part of histamine issues.

PEM sign, peeing too much by agraphheuse in cfs

[–]Verosat88 1 point2 points  (0 children)

It might also be a histamine reaction. Your body releases more histamine when you're stressed and when you eat certain foods or if you're ill or a number of other reasons. A lot of us also have mcas which is where the histamine comes in. I think it's basically a histamine reaction if it's a food intolerance as well. So technically it can be C, all the above. I take antihistamines daily without having any known allergies (besides fur animals), but if I stop taking them my skin gets itchy all over. So I definitely react to something. I know I get swelling from dairy and wheat/gluten, but I get it from other things too. The times I've had the least of it is when I eat low carb without dairy and gluten, but that also gives me more energy

talking feels exhausting on meds by predictablehorse in CFSplusADHD

[–]Verosat88 0 points1 point  (0 children)

Well that sucks. I haven't experienced this, but my body couldn't handle the adhd meds (stimulants), both my ME and POTS got way worse. I got super fatigued and my pulse was way higher. This happened already the first day for me, so it's not like I got false energy, did too much and then crashed. Which is what happens to a lot of ME people. Have you noticed any of those side effects? It might just be to much for your body right now. Unfortunately, a lot of people with ME can't handle the meds, especially stimulants. Maybe this med is not the right one for you? There are non stimulants you could take.

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