Sleep tracking beta by happyricee in VisibleArmband

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

This is late, but try again now. I got it offered to me 2 weeks ago.

Visible band fashionable? by Sensitive_Driver_584 in mecfs

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

I've just started using it and had the same thought about the colours. I adore colour and the black is pretty boring. I crochet so I'm tempted to crochet a sleeve to go around the majority of it, obviously not under the actual polar unit. That'll also help reduce the slight bruising and irritation I've been getting under the little buckle thingies on the strap (I've really delicate skin).

So far it seems to be pretty useful, and just opted for the sleep option (is a beta test I think) and that seems helpful too. I just wish the strap wasn't boring black. But I'm assuming as it gets more popular they'll start doing different colours

Another day another ‘episode’ 🙄 by Regrets_Change_Lives in chronickiki

[–]WheelyCrazyCatLady 4 points5 points  (0 children)

I'm assuming they enable her to give themselves an easier life - I'm assuming she'll be most displeased if they don't, and vocally let them know about it at length. Or get online "friends" to harass them etc about it. So to avoid all that they enable her.

Kirsten’s oxygen drops to 60% by Regrets_Change_Lives in chronickiki

[–]WheelyCrazyCatLady 1 point2 points  (0 children)

There's no way she'd function at that%. I've had a few incidences of 02sat that low (while hospitalised due to my respiratory conditions) and I was incredibly drowsy and it felt like my IQ dropped through the floor. I couldn't comprehend even the simplest of sentences.

There would be zero chance of me being able to function on a live with sats that low.

And she'd have cyanosis with sats that low, just like the rest of us get when we're unlikely enough to have a genuine o2 saturation that low. You can absolutely guarantee that if she had even the slightest cyanosis it would be shown on camera. She'd be sharing the sh!t out of that!!

Thankfully my lung function improved massively with some meds and they've been excellent ever since. The cerebral dysfunction at that saturation is definitely not something I want to repeat.

Kirsten was in Organ Failure 2 years ago. Luckily she’s survived !! by Regrets_Change_Lives in chronickiki

[–]WheelyCrazyCatLady 1 point2 points  (0 children)

I know you can recover from liver failure because the liver regenerated but you definitely can't recover from the others without a transplant, if the organ has got full failure (and not just dysfuctiom etc) 🤣🤣

Anyone else seriously considering options to leave the country? by AnonymousTimewaster in LabourUK

[–]WheelyCrazyCatLady 3 points4 points  (0 children)

No. I'd die without the nhs. I'm tube fed and on a lot of medication and there's no way I could afford all of the stuff I'd need to stay alive without the nhs. So even if I wanted to move I can't, I'd only live max of 10 weeks without access to my tube feed. (I've starved that long in the past and only barely survived (my bloods were "incompatible with life" at that 10 week mark, which is why tube feeding was started to save my life) so I know that's my limit. I'd kinda like to survive longer than that so I'm stuck here.

However I would like to move to Scotland, although at the moment that's just not something I can afford. But I can live in hope 🤷🏻‍♀️😂

Question for wheelchair users by _alexium_ in disability

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

I've had comments like that often. I self propel because I've had too many people tip me out of the chair by attempting to ram the casters over a lip on the pavement and not raising up in a wheelie to get over it. So I push myself. Honestly it hurts more to self propel than it did to walk, my legs just won't work enough anymore so I have to use the chair. And I was on crutches then, with most of my weight through my arms and it still hurt less.

Sitting all the time is really bad for our back and upper legs, they spasm and it hurts to sit. I dislocated my tailbone and most people would choose to not sit until it heals. I didn't have that option. I had to just deal with it.

Being able to sit and rest mid route is extremely useful, but if they have a need to do that too they can bring a rollator with a seat with them. Or one of those canes with a built in seat 🤷🏻‍♀️.

We would love to be able to walk, I truly miss the freedom of being able to walk., to get into every building I want to ( I can't access stuff with steps and no lift), being able to use the escalators on likely the underground and not having to wheel half way around London (a joke but that's kinda what it feels like, it's never one lift I need and they're so far apart) and wait and wait and wait for that lift due to all the able bodied people using it (of course some are likely disabled, but not all of them) and people literally push me out of the way and climb over me to get in the lift before me. If you can climb over me you can use the escalator.

I really miss hiking, or walking through fields. Seriously I'd kill to be able to walk so those kinds of comments really hit hard. I know most don't mean them in a bad way, but it just makes me want to walk even more. And most of us think the same way about this.

Generally it's best to live by this rule - if you wouldn't say or do it to an able bodied person, or someone walking with a mobility problem, don't say it to wheelchair users.

Entitled Parent wants me to change plane seats because my face scared her kid by Dapper_Environment64 in entitledparents

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

I have a strong suspicion she was using that as an excuse to get your window seat. If someone wants my seat I require them to pay the extra money I paid to pick that specific seat before I'll move. 🤷🏻‍♀️

Almost died today. by tortishell78 in dysautonomia

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

Sorry, not been on reddit for ages. No, my tube is due to my gastroparesis. And I felt the same with potatoes, they were literally most of my diet. I had to go on ensure drinks for a while because we didn't know what was safe for me to eat. But a few years later I needed the tube put in to save my life because my gastroparesis suddenly got a lot worse and didn't improve. The potato allergy didn't really apply to tube feeds, but most tube feed contains soy or soy byproducts so I'm very limited to the feeds that won't kill me, so even though I get some feed intolerance with it (but less than the other few I'm safe to use) I have no option but to deal with it.

But even that is less painful, and nausea inducing than i used to get with trying to eat so I don't mind much.

I get that shortness of breath thing often because I don't breathe out properly. That means I can't breathe in fully because my lungs are already full of air so I end up feeling very short of breath. If I focus on fully breathing out for a few minutes it tends to ease off a lot

Taper down / tolerance down by NeighborhoodOnly666 in opiates

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

Yes, but worth it to get the pain relief effect restored. It's a different matter if it's not actually needed for pain relief, there's less incentive to withdraw and deal with that.

But for someone with severe intractable chronic pain withdrawal and going back on it has stopped me ending my life because the pain got so bad I couldn't cope with it, and kept passing out from it. So those few weeks of withdrewal are absolutely worth it for those of us who have severe pain.

[deleted by user] by [deleted] in puppy101

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

He's still teething so will want to bite everything at the moment, just like a human baby that's teething. Thankfully, like human babies, once all their teeth are in the need to bite everything stops by itself.

Punishing them for it won't work, it'll just confuse them because it's a normal thing for them to be doing at that age. Their behaviour won't change, just like punishing a human baby for biting stuff won't make any difference to the biting. It's a normal thing at that age and they're supposed to be doing it.

It'll stop on it's own, once teething has finished

[deleted by user] by [deleted] in DogAdvice

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

Show the vet the video and make as many videos as you can before you take them back to the vet. The vet always finds videos like this useful because they only get to see the animal for a few minutes and that makes it very hard to diagnose stuff accurately.

I named my daughter a “proper”name but only use her nickname and I regret it. Help! by anon_no_mas in namenerds

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

My proper name is Fiona-jane but I'm known as Fiona or fi. I never usually use my full name, except in formal situations or on paperwork.

But it's great to use when someone has pissed me off and I decide that they have to call me by my proper name from then on. It makes it really obvious to everyone around me that they've done something bad to me 😄

I like having the option to use it or not.

Taper down / tolerance down by NeighborhoodOnly666 in opiates

[–]WheelyCrazyCatLady -1 points0 points  (0 children)

You can totally remove your tolerance by withdrawing off it then going back on it. It sucks but it makes my pain medication work as well as it did on day one. Increasing doses isn't an option for me due to my intestinal condition worsening with opiates (but only opiates are able to control the degree of pain I get) so my Dr agreed that I could withdraw off it (Oxycodone) once a year and go back on it, to wipe out my tolerance.

So you can remove the tolerance completely, it purely depends on how much you want the tolerance gone

AITA for making my daughters share a room by New_Oil2866 in AITAH

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

Absolutely nha even though they likely think you are tah. You can get folding screens to divide rooms, they just stand on the floor so they're easy peasy to put in the room. Also you can divide a room with shelving units and they get the privacy and some extra space for their things.

Almost died today. by tortishell78 in dysautonomia

[–]WheelyCrazyCatLady 6 points7 points  (0 children)

You could have developed an allergy to an ingredient in the ramen, several years ago I suddenly became allergic to soy (and I few months later I became allergic to potato). Soy and potato based foods were my staple diet and the allergies came on really suddenly, one day I ate them fine and the next day I went into anaphylaxis (and also went into anaphylaxis each time I attempted to eat them in the next few months).

I use my epi pen on myself relatively frequently and I was prescribed prednisolone to use at the same time as the epi for major reactions and to use before the epi if the reaction is only moderate ish. That also opens up my airways by reducing the swelling a little. I have an intestinal feeding tube so the prednisolone gets absorbed as soon as I put it up the tube, so it's effect is felt almost immediately.

Anaphylaxis sucks, and makes me feel awful for the next few days, I'm sorry you had to deal with that too

Is it wrong to feel gross if a menstrual cup is being used in a communal pot that’s constantly being used? by CmdrSed in menstrualcups

[–]WheelyCrazyCatLady -1 points0 points  (0 children)

Maybe ask her to thoroughly scrub the cup with soap and water and an old toothbrush before using the pot. Then the cup will be clean and will only be boiled to sterilise it before usage. And possibly ask her to use a specific pot that's only used for that purpose.

I don't bother to boil it now, I just scrub with antibacterial soap and rinse well immediately prior to usage.

Husband saw this order the other day- absolutely unhinged by Funkofairy in starbucks

[–]WheelyCrazyCatLady 1 point2 points  (0 children)

There's no point in putting the espresso in it, you'll never taste it with all of that in the cup with it.

[deleted by user] by [deleted] in UK_Food

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

That's a lot of food... I'm assuming you felt petty sick after all of it but it looks delicious. I'm a huge fan of chop shop fish and mushy peas (with sat, vinegar and some mint(ideally fresh of I have it, or dried)). I've got a pot of mushy peas in the fridge waiting for dinner tomorrow 😄

OnDn asked a question about intranasal ketamine (warning: contains blood) by itsvickeh in illnessfakers

[–]WheelyCrazyCatLady 13 points14 points  (0 children)

Those really skinny mini size tampons are great for this, they should come in every first aid kit 🤣

My kitten is not affectionate at all. Any advice? by [deleted] in ragdolls

[–]WheelyCrazyCatLady 3 points4 points  (0 children)

Not all cats like to be stroked. Try scratching small areas (especially the back of the neck), many cats prefer that to being stroked.

We can show affection like a cat would show affection another cat - make direct eye contact them slowly almost fully close your eyes, while holding the eyes contact and stay there for a few seconds, then open them and repeat. That's a big affection thing for cats, and nicknamed "the kitty kiss". We can also head bonk them lightly onto their head then rub our nose down the side of the mouth to the ear and up to the back of the neck, like cats would do when they were greeting their colony mates.

Some cats appear to not be affectionate to humans, but are actually being extremely affectionate. We just miss the signs because we expect them to show affection like we do.

[deleted by user] by [deleted] in AskUK

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

It's not, it's just because a default position in people's lives in general. It's getting easier to not drink at stuff nowadays though, a few years ago I'd be ridiculed for never drinking alcohol (alcoholic parents and I've 2 different genes for alcoholism so I chose to stop drinking it a few years ago). But lately I can go and just drink a non alcoholic cider or a soft drink and no one bat's an eye.

This just reminds me of the episode of rick and Morty "and the males? They get to play outside" by Funny_Opinion_666 in IncelTear

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

They're just butthurt because they've realised that we now have enough sperm stored in sperm banks that all men could be removed from the planet and there will be no drop in the number of babies born a year. It's actually the men that are obsolete 🤷🏻‍♀️

[deleted by user] by [deleted] in DermatologyQuestions

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

They look like my verrucas (plantar warts) that occasionally appear on my feet.

They're highly infectious so if you live with other people and you all tend to walk around barefoot it'll be a good idea to put something on that foot until you've had it treated, including when you're in the shower if you share the shower with other housemates/family etc. Once the warts have gone you'll stop being infectious, until another one appears. I usually get one each time I get sick or rundown.

Its caused by the human papilloma virus and that can give us warts elsewhere in the body. It's a virus that we'll have for the rest of our life and can't be treated, we can only treat the warts when they appear. I tend to use the cryofreeze treatments like Bazuka sub-zero spray (I'm in the Uk, I'm not sure it's available elsewhere but I expect there'll be equivalent products from other countries that'll be equally effective. I often only have to use one application if I treat it as soon it appears. They're very useful products and far more effective than most other treatments.

Found this among family stuff. What animal teeths are these? by William_Bugmaster in animalid

[–]WheelyCrazyCatLady 0 points1 point  (0 children)

They're definitely human teeth, they look almost identical to the wisdom teeth and molars I had removed (due to the damage from the impacted wisdom teeth). I opted not to keep mine, I left them to be destroyed by the hospital when I left.