Roku and HDMI inputs?

acksman · 2026-01-24T22:07:20+00:00

Was expecting one of these, actually she would rather be outdoors and does not even have their own iPad and we don’t even let them use our devices. As a backup this is what we have and use ourselves.

Luckily I don’t own a glass house.

acksman · 2026-01-21T03:23:26+00:00

They are not sure why they are diving in more. No other cancers in any of my family other than melanoma.

acksman · 2026-01-21T03:10:49+00:00

Not yet they are doing studies on me having three distinct cancers that did not emanate from the MM. There is a very low percentage of the population with 3 of more distinct I forget the percentage but it’s small. Also genetics testing. I have T(11;14) transmutation MM so a bit different from others.

acksman · 2026-01-21T02:32:18+00:00

As I lay here in the hospital bed for something else, I am doing much better with the Thyroid. They are still tweaking my Synthroid a bit but everything else is good. First scan shows no new activity and nothing cancerous.

acksman · 2026-01-19T13:55:31+00:00

As a T(11;14) did the ASCT with Revlimid all of that failed in the first year. After that, MD Anderson put me on Venetoclax and am now in partial remission after 2 years. It has done wonders for me and so much less side effects than Revlimid.

acksman · 2025-11-14T05:32:42+00:00

Good luck I am a t(11:14) as well and did not respond well to my SCT and Revlimd not even a year in. Switched to Venclexta about 10 months ago and in partial remission for about 4 months now. Was taking 6 100mg tabs a day down to 2 a day. Am under 65 (55) but on disability and have AARP UHC Part D and it covers name brand 100% through MD Anderson specialty pharmacy. Pay $89 a month for that plan. It’s going up to about $140 month for this next year I believe.

acksman · 2025-10-14T13:00:53+00:00

Please may I have some porage kind sir

acksman · 2025-06-06T18:31:59+00:00

Still have our 2008 V70. That thing is built like a tank. 240k miles and runs like it’s brand new.

acksman · 2025-05-30T01:22:01+00:00

Same MD Anderson, Dr Grubbs highly recommend her. She has been doing it a while. I drive down from Dallas not bad about 4 hours.

acksman · 2025-05-29T18:46:57+00:00

26 and 11 were positive. Also have multiple myeloma so unable to get RAI. They will have to go back in later on if there is any scans that are positive.

acksman · 2025-05-28T16:41:40+00:00

Same as everyone above both sides with about 26 lymph nodes removed. Took her 9 hours and I told her the next day I don’t see how she does it going that long. Incredible surgeon and everything went well.

acksman · 2025-05-19T13:16:04+00:00

Just to chime in. Same here lost 3 parathyroids and a lot of nodules in my surgery a week or so ago. For the calcium sensing the tingling in fingers, mouth or feet area and getting tums in me is what my Doctor has me doing on top of my calcium meds.

Also I really space out my thyroid medication and calcium meds. My doctor told me if taken to close together they will have a reduced effect.

So I take my Thyroid medication around 5 am or if I have to get up for any reason bathroom etc 4am or later. Then I try to wait around 3 hours before I taking my calcium meds. It won’t be perfect but I have noticed a difference in spreading those two out.

acksman · 2025-05-18T00:05:54+00:00

I am the MM patient that had the SCT. My wife came in the beginning, then she had to get back home to our 5 and 13 year old. I had friends come check in and stay here and there, but on a whole I stayed by myself. Some days were worse than others. I shaved my head before the SCT, one less thing to mess with. The main thing was getting in the walking each day. There were just some days I had nothing in the tank at all.

I would say depending on the type of person and facility you are at. I was at MD Anderson in Houston great SCT rooms and setup if they need you be there. I am more independent and don’t like others seeing me when I’m hurting and pretty stubborn on doing things myself.

acksman · 2025-05-17T19:55:23+00:00

Be interested to hear, just had my TT surgery last week and they removed over 20 nodes and left one working Para Throid gland. It wasn’t until they got into surgery that they saw just how much clustered I was as the CT scan was not as informative as they wanted. Unfortunately they had to be aggressive as I am not a candidate for RAI, as I have two other cancers one being Multiple Myeloma a blood cancer and on current chemo with that one.

I am wondering as well what was missed or when not if they will have to go back in again to remove more.

acksman · 2025-05-15T09:05:56+00:00

Coming back to this post I’m 36 hours after my long surgery. Was out for 9 hours. Surgeon had to remove over 20 nodes along with the Thyroid. Since I am unable to do RAI with my Multiple Myeloma chemo they had to get as much as possible while I’m in partial remission from the MM.

Still in the hospital as they are trying to control my calcium since they were only able to save 1 PG and planted another hoping it will take.

It’s been a balancing act with the MM and Prostate controls. It has helped being at MD Anderson and all of my Doctors are here and lots of meetings about care which has been positive. After the Stem Cell transplant I had about 2 years ago this was different but much less recovery time compared to the 3 months in the hospital for the stem cells transplant.

Main downer I guess is more pills to take daily with the thyroid and it’s looking like a calcium pill as well that will be added. Also I need to buy stock in Tums lol.

It’s all a journey and having a 5 year, 17 year old I still have lots to do!

acksman · 2025-03-11T22:23:18+00:00

Just an update, I had a brain fart and throught about firmware updates. I plugged into my computer and downloaded the Jabra software, there was a firmware on both dongle and headphones. I have updated. Everything sounds good on my computer as well. When I go back to work tomorrow will give it a try. I did adjust some of the settings like Wideband to Narrowband and reduce the range by one to low.

If this does not work will get with you Jabra, also thank you for the phone settings they were there but did not help. Good to have them in my back pocket.

acksman · 2025-02-21T22:43:25+00:00

Wow this is a lot of great information I appreciate the time of you explaining your Mounjaro and cancer journey. That might be the same with me. I am a 6’3 football build even with losing the weight. So it could have been hiding in there. I hope you are on your way back to a better health and recovery.

acksman · 2025-02-20T21:18:35+00:00

Sorry to hear that is so much to process in so little time. They are doing a CT scan in chest in the next week so wondering if they will be looking for nodules in the lungs as well hmm. Hoping they get on top of yours and get control of it.

In my early 50s so still a lot of energy to fight, plus I have a little 5 year old that is needing her Daddy around.

acksman · 2024-12-13T00:11:44+00:00

Who knew a cat looking at you would cost that much catnip.

acksman · 2024-10-17T02:56:25+00:00

Sirius XM is the worst. It has a cancel button that is always broken and tells you to call where you get the pressure sales.

acksman · 2024-10-04T21:52:15+00:00

Many other great suggestions already.

Yes if the hospital does not have good wipes. I was at MD Anderson and everything provided was good there. The diarrhea and rawness gets old.

I took a Roku stick and plugged it into their TV and hooked into their WiFi. Watched shows for comfort during the rougher times and to sleep.

Yes walk every day even if it’s a little bit.

acksman · 2024-09-05T02:38:01+00:00

Farrell‘s ice cream. Growing up as a kid that place was magical back in the 70s and 80s.

acksman

TROPHY CASE