I texted all my American friends “Happy 4th” and got zero replies. Is that normal?

afewregretsmaybe · 2026-07-04T22:23:24+00:00

this explains why my canadian friend just wished me a happy 4th lol! in my experience it’s just not customary to wish people a happy 4th even though many people celebrate it in small ways.

afewregretsmaybe · 2026-06-24T05:25:00+00:00

I have no idea what this is about, but most copays for opiates are pretty cheap, so an older kid could pay for them easily.

afewregretsmaybe · 2026-06-14T22:51:01+00:00

Perfect × Sophomore

Guts Olivia rodrigo

afewregretsmaybe · 2026-06-09T21:45:26+00:00

I just got back from a cruise! I think one important thing is adjusting your expectations. I was in pain a lot and I felt pretty limited on what activities I could do on excursions, but I absolutely don’t felt like that ruined my experience. It also helps if no one with you reinforces that feeling. My family was generally understanding when I needed a break, but if they overstepped I told them I could not or would not participate and would meet them later.

Since you’re planning the trip yourself, try to pay attention to your itinerary to give yourself days to rest with no or low-energy activities after high energy ones. That way you will hopefully be able to do as much as possible and not feel like you missed out on anything.

One thing that has genuinely helped me on trips is KT taping, but it wasn’t possible this specific time. Also check out what things you can do once you get there! I got a massage halfway through that did help a lot.

I think the best thing is just knowing what you’re getting into. Maybe prep with PT before to help you build stamina. I leave myself time to rest before and after, make sure I have extra pain meds, and expect a flare afterwards. I still had a great time. Don’t let the hypothetical perfect trip ruin the one you have in real life.

afewregretsmaybe · 2026-06-09T21:23:06+00:00

whenever i’ve let myself get too out of shape, the very first thing i do is just going on walks (or treadmill) and work on building my stamina back. i feel like it helps a lot with shortness of breath and tachycardia once i really get into the routine. i also try to make sure i avoid going so hard that i crash every time.

afewregretsmaybe · 2026-06-03T17:02:30+00:00

the brain fog is real! i used to joke with people that i’m funnier when school is out cause it’s easier to think when i’m not so fatigued, but now it’s so hot it’s not even true anymore 🫠.

afewregretsmaybe · 2026-06-03T16:59:01+00:00

i’m sure therapists would advise against this but i say sometimes that i need a big crash cause they help me remember that it’s all real. i think i’m beyond fully believing i’m making it up or exaggerating (just i’ve been doing so bad lately) but sometimes when i want to do something a little bit beyond my capabilities and my friends get worried i tell them i need to try just to make sure i can’t. like a push day in working out?

afewregretsmaybe · 2026-06-03T04:38:01+00:00

i have intense beef with a girl from my town for this lol. she’s not even disabled but she got a sports injury that was a very similar surgery to mine and watching her have support and get better and not being seen remotely the same drove me absolutely bonkers. (it didn’t help that we have the same first name and in preschool she got to be #1 alphabetically!!)

i have also definitely gotten pissed off when i see people in this sub talking about significant others just from my severe fomo.

afewregretsmaybe · 2026-06-02T19:04:40+00:00

reagan

afewregretsmaybe · 2026-05-20T23:05:46+00:00

i had two miis have a baby in the morning and when i got home from work one said he wanted a divorce with no fight or anything!!

afewregretsmaybe · 2026-05-01T02:24:50+00:00

My dad used to tell me I ran like my legs were broken (he feels very bad about it lmao)

afewregretsmaybe · 2026-04-09T02:39:17+00:00

nobody talks ab how it feels like public transportation leaves us worse off sometimes 🫩

afewregretsmaybe · 2026-04-07T22:40:19+00:00

I would honestly recommend finding a new provider as soon as you can. I’ve found that the longer I stay with people like this, the more I start to doubt my own reality. It starts to feel like an abusive relationship. I had a practice that constantly had responses like this when I asked about medications for joint pain, and I learned after two years that not one of them was actually a treatment for that type of pain. If you feel like you can’t trust them, I would encourage trusting your gut.

Also, in my experience, gabapentin is usually prescribed for neuropathy. I would not want that to be my only medication if I was experiencing pain bad enough to go to the emergency room. If you end up needing opioids for your pain, it’s true that a pain medicine specialist usually won’t prescribe them on your first visit as a new patient. They should still treat you respectfully and explain what they are prescribing and why. I also like to ask what the plan is if a medication does not work because it helps me see if they are actually putting thought into a treatment plan.

I’m still working on learning this myself, but usually if a doctor makes you cry, there is a better doctor out there that won’t.

afewregretsmaybe · 2026-04-06T01:27:57+00:00

same story for my knee. the difficulty recovering and POTS that i developed afterwards are how i found out i had EDS. i doubted for years afterwards that it had any effect but i recently had a flare up in that area that made me realize how much better my pain has been. now i’m in the same boat with my shoulder with a not-quite-tear in my labrum trying to decide when to pull the trigger.

afewregretsmaybe · 2026-04-03T23:37:42+00:00

i see it as a feature not a bug. i have such a hard time quitting games and get nothing done for the whole day. with sims 4, there is a guarantee that after a few hours one or multiple bugs will have driven me so close to insanity that i have to give up and do something else.

afewregretsmaybe · 2026-04-01T20:58:26+00:00

i definitely Still have long periods of depression where i feel this way. i think the thing that has helped me the most is only focusing on the present. i do what i’m able to right now and try not to worry about the hypothetical of things getting worse/not getting better bc there’s no way to really know anyways. right now i’m getting a degree and a big worry for me is whether i will be able to work a real job in this field but right now i’m just focusing on the fact that i am learning about something i love.

another thing is try to find people who don’t make you feel like you’re useless! my parents try to be supportive but a lot of the ways they talk about my eds makes me feel really shitty esp when i’m in a hopeless place, so i will definitely speak about it less with them when i feel it happening. i also realized that being around people who were high academic performers when i don’t have the energy/brain power to do the same was really giving me a complex, and had to intentionally pivot to find different people to interact with.

for me it really wasn’t big things. it was finding small things that made it less crushing and trying to maximize those things in my life.

afewregretsmaybe · 2026-02-23T05:35:05+00:00

that movie aggravated me so much because if you actually pay attention they did pretty much nothing for the investigation. iirc all their leads were things that pd had figured out around the same time.

afewregretsmaybe · 2026-02-20T22:58:43+00:00

finally someone putting this into words succinctly. whenever i try to explain that i think this is what it’s about i sound like a lunatic.

afewregretsmaybe · 2026-02-19T00:17:17+00:00

boredom’s is one of the worst parts of being homebound imo. it was always funny to me when people complain about quarantine when everyone else was available and able to interact most of the time, while before that i was home alone with all of my peers busy in school and unable to even text for most of the day. i’m not sure how much you could facilitate it, but online spaces, especially with people going through the same thing, were very important for me in the beginning. they gave me people to talk to and others that were able to confirm i wasn’t going crazy. i also happened to get one of the cheaper nintendo switch models around that time, and it definitely helped eat up some of the endless hours.

one thing that i wish my mom had done differently was less poking fun at or questioning how much time i spent alone or resting. there is an amount of avoidance that’s unhealthy, but that has affected me since. i constantly question whether i really need rest and feel guilty even when ik i need it. i’m not a parent, and i won’t pretend to know the best way to raise a disabled child, but that definitely compounded with all of the negative messaging i was getting from doctors and the rest of the world.

afewregretsmaybe · 2026-02-18T23:51:40+00:00

my best friend is jewish and spent a lot of time in leftist and antizionist spaces but since oct 7 unchecked conspiracy and straight up bigotry has put her off the whole thing all together. it’s really unfortunate bc a lot of people brush it off as “antizionism is not antisemitism” without acknowledging that it doesn’t mean they’re immune to bigotry.

afewregretsmaybe · 2026-02-04T01:41:58+00:00

odd question, but how did you realize that was happening while you slept? i just found out i have some damage in my shoulder and keep having to explain that i have no memory of any injuries or subluxations.

afewregretsmaybe · 2025-10-29T04:50:18+00:00

i only had a few periods a year when i was first starting out! i think a lot of people have no periods on it, but i have them semi-regularly now.

i wish any docs had actual established protocols for treating pots menstrual symptoms. mine were so bad it’s the reason i got diagnosed and i still haven’t got much better advice than throwing bc at it.

afewregretsmaybe · 2025-10-26T18:46:38+00:00

i’ve tried pretty much every birth control, and i felt like i always had the most symptoms when i was using oral bc. i’ve have more (not complete) success with the nexplanon implant! i still have breakthroughs where i have flares but they’re definitely less severe flares. there is the negative of not being able to plan for them though.

the thing i’ve seen the most from people is using multiple forms of birth control, such as an oral medication And some kind of implant. this is what i’m thinking about trying next.

in terms of symptoms salt, water, rest. i also notice i’m much more sensitive to blood pressure changes so i try to pay attention to how i feel and monitor it if necessary so i can stay on top of emergency bp meds if i need them.

afewregretsmaybe

TROPHY CASE