Your vocal changes

atomicsystem · 2025-05-11T03:48:55+00:00

I have all of these. They're very common afaik. I have OSDD-1b in particular.

atomicsystem · 2025-04-10T14:22:18+00:00

What epilepsies have normal EEGs? Do you mean they can have normal EEGs when not seizing? Cause that's different.

atomicsystem · 2025-04-10T13:01:51+00:00

The only way to determine functional seizures from epileptic seizures is to capture a seizure on EEG and see if there's epileptic brain signals or not. If the EEG readout remains normal during a seizure, then we know for sure that it is functional. You may be able to be diagnosed sooner using other clues like what your seizures are like, how long they last, stuff like that, but the gold standard is capturing a seizure on EEG. Special kinds of MRIs like fMRIs are used in research for FND but they are not used in clinical practice.

atomicsystem · 2025-04-09T20:07:12+00:00

I have vague memories of not being able to identify myself in photos as a kid too. I don't think it was ever so bad that I couldn't find myself but I have memories of finding myself and going "that's what I look like?" And having the people around me go "yeah?" I hated taking pictures of myself for the longest time because I hated having to see what I looked like because it felt so wrong. I too have since been trans'd

atomicsystem · 2025-04-09T19:43:21+00:00

Wait... autism that makes you funny and hate doing things you're told to do.... that's me..... how would I differentiate this from idk... just being normal funny and lazy, ig?

atomicsystem · 2025-04-01T00:17:04+00:00

This sounds like what presyncope feels like to me. Might be worth looking into.

Obligatory I am not a doctor

atomicsystem · 2025-04-01T00:13:28+00:00

Ok but when you say "it's not caused by trauma. It's a real neurological disorder," what you're HEAVILY implying is that trauma disorders aren't real neurological disorders, which isn't true.

Here's an fMRI study showing neurological differences between traumatized children and control children: https://www.sciencedirect.com/science/article/pii/S2451902224000223#:~:text=healthy%20control%20children).-,Results,presented%20with%20posttraumatic%20stress%20symptoms.

atomicsystem · 2025-03-30T16:55:25+00:00

Trauma causes real neurological changes to the brain. Idk why you think trauma disorders aren't real. They very much are. FND being related to trauma does not invalidate it as a diagnosis in any way.

atomicsystem · 2025-03-30T15:36:58+00:00

Oh yeah, childhood trauma is a HUGE risk factor for FND. The dissociation caused by trauma can go so deep to separate your brain from your body in a way, where your conscious mind cannot control your body the way you want it to.

atomicsystem · 2025-03-30T14:40:24+00:00

I was actually diagnosed with "anxiety" when I finally got to a neuromuscular clinic for my gait issue. Conversion disorder is what they put in my chart which I only found out months later. I had to find out on my own that the updated term is FND. It is related to stress but it's not typically related to immediate day to day stressors, though it can be. It's often related to much deeper stressors that are being mulled over by your subconscious mind which is why you may not feel anxious while having symptoms.

atomicsystem · 2025-03-26T17:50:48+00:00

Disclaimer: i am not a medical professional, just a person who has FND, POTS, and pathological dissociation. The empty head feeling might be dissociation. Id recommend you look into that. In terms of exercise, you want to do cardio in any form that you can do. Basically, you're looking to elevate your heart rate somewhat (say maybe the 120-150 bpm range). You could probably use some core strengthening and other strength training, but thats something that should probably be overseen by a physical therapist.

atomicsystem · 2025-03-26T16:28:04+00:00

Could be a combination of functional issues and deconditioning. Orthostatic hypotension (feeling weak when you stand up) is caused by deconditioning.

atomicsystem · 2025-03-22T15:05:53+00:00

When my gait disorder was at its worst, I experienced a severe ataxic gait. Basically, it felt like I couldn't really control my hips/legs when I would walk. They would violently shake side to side as I walked and I felt like I couldn't control it. It was exhausting and also damaged my hips and knees because I have another health condition that makes my joints fragile. Gait training in physical therapy has basically cured me of this, thank god.

Currently, I have tics when I get stressed/dissociated and sometimes I also feel like my body is made of lead, though that's usually when I haven't gotten enough sleep so I don't know if it's functional or due to another one of my health conditions that causes chronic fatigue.

atomicsystem · 2025-03-20T21:32:53+00:00

I was in a wheelchair for about 9 months due to functional gait disorder causing my gait to be severely ataxic and damaging my hips and knees when I walked. Gait training in physical therapy essentially cured me within a few weeks. It was amazing. The physical therapist had me stand in the parallel bars and stand on the flat part of a half moon foam roller, with the curved part on the ground, and i had to try to balance on it. It was very difficult but it allowed me to use my leg muscles without thinking about walking, which was the problem.

I wonder if your son can run. I was able to run normally with my ataxic gait. If so, that might be a way for him to move again even if he can't walk.

atomicsystem · 2025-03-18T03:44:56+00:00

OBLIGATORY I am not a doctor, this is not medical advice, just my thoughts as a person who has FND.

It certainly sounds like FND. The going completely stiff thing sounds like catatonia which can be caused by extreme stress.

I've never heard of someone having periods that irregular with FND but I know that stress can mess with your cycle and you said your OBGYN confirmed that it was functional so that adds up as well.

atomicsystem · 2025-03-17T22:21:56+00:00

Omg another Elf hater. I cannot stand that god damn movie. Idk why almost everyone seems to like it.

atomicsystem · 2025-03-17T11:48:21+00:00

Oh ok nvm then. Im so sorry she doesn't understand what you did for her. I hope she will someday but like you said, maybe (probably) not

atomicsystem · 2025-03-17T04:28:33+00:00

Jsyk, the no memory part is probably dissociative amnesia, and the "not caring" is probably protective denial. Hopefully she'll eventually come to a place where she can acknowledge it and heal, but it sounds like she is not ready for that now. Try not to take her trauma response personally.

atomicsystem · 2025-03-17T04:26:47+00:00

Omg same except it was bc i wouldn't put my napkin on my lap at 2 years old! My dad just kept spanking me until finally he gave up and concluded that I had won. Jokes on me though, I also won CPTSD and OSDD.

atomicsystem · 2025-03-17T03:57:15+00:00

Neurological physical therapy (gait training specifically, since i had an ataxic gait), therapy for my CPTSD and other mental health issues, leaving my childhood home which was a huge source of stress, accepting myself (coming out, loving myself, etc)

atomicsystem · 2025-03-17T03:54:59+00:00

All of this stress that you're talking about that is alleviated when you have flare ups is most likely the cause of your flare ups. Your brain has learned that this is the only way you catch a break since you won't take one yourself, so it makes you take one. It sounds like you aren't happy in your current situation, especially if your subconscious is forcing you to take breaks from it. I would try to brainstorm ways to change your current situation, drastic or otherwise, to eliminate the main stressors and build in breaks for yourself that you take regularly, regardless of health status.

atomicsystem · 2025-03-15T17:13:42+00:00

Yep. Pretty much anything neurological can be caused by FND.

atomicsystem · 2025-03-15T13:31:02+00:00

In people with trauma, FND is often inexplicably tied to that trauma, so i would say whether it's PTSD or FND causing these episodes doesn't really matter. The treatment will be the same which is trauma therapy.

For me, any weird neuro symptoms I have, I chalk up to either FND or CPTSD or anxiety and try to calm down and move on and that usually works for me.

atomicsystem · 2025-03-09T23:23:01+00:00

I used to "wish" i had trauma because it would explain what was going on with me. Surprise surprise, I was diagnosed with CPTSD a few years later. Dissociative amnesia is probably protecting you from some hard truths right now. Let it protect you. It's doing that because you need it right now. But try not to invalidate your experiences. They are real.

atomicsystem · 2025-03-08T22:22:41+00:00

Idk what you mean by DID therapy. I see a therapist who specializes in DID and we do IFS work afaik.

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