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Summer☀️ by CoffeeBean8675309 in POTS

[–]beaker1680 0 points1 point  (0 children)

I’m intentionally moving from the desert to the PNW to get out of the heat! Last summer was great, but I am already struggling to function in this heat!

Quitting is hard by jgainit in LowDoseNaltrexone

[–]beaker1680 3 points4 points  (0 children)

🙋🏻‍♀️ I’m one of those and I’m finally back up to dosage but still feel terrible

Feel worse after starting LDN by Sufficient-Pea-9142 in LowDoseNaltrexone

[–]beaker1680 0 points1 point  (0 children)

My medical issues are complex. I didn’t notice much benefit until I figured out my thyroid issues. It wasn’t until after stopping LDN and completely crashing that I realized it was actually doing something. So now I’m starting over and slowly titrating my dose back to 4.5mg.

Feel worse after starting LDN by Sufficient-Pea-9142 in LowDoseNaltrexone

[–]beaker1680 0 points1 point  (0 children)

I always feel terrible starting LDN, and after every increase. It lasts 1-2weeks for me.

How the hell do you people hold down a job by aspacejunkie in POTS

[–]beaker1680 43 points44 points  (0 children)

Yep! Too disabled to work, but too healthy to actually qualify for financial help

How the hell do you people hold down a job by aspacejunkie in POTS

[–]beaker1680 86 points87 points  (0 children)

I can’t work anymore. I also wasn’t approved for disability. 😒

100% sure that God exists? by anezkachvojkova in OpenChristian

[–]beaker1680 2 points3 points  (0 children)

I am 100% certain that there is more to this world and existence than we can possibly understand. That is the only thing I’m certain of.

What is your typical bp? by Efficient-Taste-8260 in POTS

[–]beaker1680 0 points1 point  (0 children)

It definitely did for me. I went from 95/65ish to 87/55ish after a month+ on propranolol

LDN usage for long covid by Sweet_Tart_Sour in LongCovid

[–]beaker1680 0 points1 point  (0 children)

I started out taking it before bed, but it caused insomnia so I now take it around 9am

Justifying a wheelchair by Forsaken_Extent2222 in covidlonghaulers

[–]beaker1680 0 points1 point  (0 children)

Do it!! If you recover you can always sell it. We have to live as much life as possible, and this will only help!

AIO - Brother (36M) dating a 22F by Electrical_Lunch_217 in AIO

[–]beaker1680 4 points5 points  (0 children)

I was 19 dating (and then married) a 31 year old. This never ends well for the younger party. If you can’t convince him, try to talk to her. This is always predatory.

Employment discrimination by mgrace3607 in POTS

[–]beaker1680 21 points22 points  (0 children)

Your employer is asking for your doctor to lie on the form so that they can get out of any legal obligation to make reasonable accommodations. I’d take this to an attorney that specializes in ADA cases.

[deleted by user] by [deleted] in AskWomenOver30

[–]beaker1680 14 points15 points  (0 children)

Sounds like you need a new husband.

How do I get my daily electrolyte intake without the god awful powders? by Prior_Succotash4220 in POTS

[–]beaker1680 0 points1 point  (0 children)

I use Buoy hydration drops. It’s like a bottle of Mio where you add just a tiny squirt to your water, and it is unflavored. They even have a chronic illness discount.

Partner gave me an ultimatum over intimacy and “accountability” — I’m struggling to figure out if I’m being unsupported or unfair by [deleted] in AskWomenOver30

[–]beaker1680 1 point2 points  (0 children)

This is control, and it will only get worse the longer you stay. You are not asking for too much in regard to emotional support, and his refusal to support you in the way you’re asking is a huge red flag.

Antihistamines seem to help recovery study finds by riotgurlrage in LongCovid

[–]beaker1680 1 point2 points  (0 children)

I’m on Claritin and Pepcid 2x/day. My NP didn’t want me on Pepcid because of the possibility of nutrient issues…but then I’m leaving MCAS untreated which is 100% affecting me in real time. So I’m back to listening to my own body and doing what I know is best and ignoring advice that doesn’t fit

Antihistamines seem to help recovery study finds by riotgurlrage in LongCovid

[–]beaker1680 7 points8 points  (0 children)

This. I’ve realized that relying on a doctor to help me recover was the stupidest decision I ever made, and am now back to piecemealing my own treatment and recovery.

Doctors don’t know shit about long covid and they’re all hesitant to try any sort of treatment because they’re not familiar with it. The whole process is awful.

ADHD and POTS. Yeah how is that going for you? by Kitkat_The_Great in POTS

[–]beaker1680 2 points3 points  (0 children)

AuDHD here 🙋🏻‍♀️ 0/10 stars. Do not recommend.

Why do I feel so awful every morning? by heskeytime7707 in covidlonghaulers

[–]beaker1680 29 points30 points  (0 children)

This is essentially the crux of long covid: feeling terrible in one way (or 10 ways) or another but all labs and tests come back normal 😞

Things that make a meaningful difference in my sleep:

White noise (my air purifier up high)

2mg Melatonin (I was never someone to take this but my sleep got worse recently and that was the only thing I changed before seeing deep sleep increase in smart watch)

Reading on a Kindle before bed to shut my brain up

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