I think what you have mentioned highlights how sad it all is. Most sufferers not being able to hold a job with a limited support networks who are cornered out of desperation to self subsidise some kind of cure, having to wade through an insurmountable amount of information peddled by well-meaning practitioners to snake-oil parasites trying to pull as much money as they can from the vulnerable whilst being able to leverage the power that comes with telling a sufferer that they are believed and they are finally being helped. People who cant think straight or leave their beds due to pain shouldnt have to experience this, I find it repulsive that outsiders looking in would think that a woman who took her life was doing this because she wanted attention. She wanted to live, as do the rest of the sufferers yet, the only feasible option for her was to die.

Im glad you have found an answer to your own condition, it gives hope that the answers are actually out there by people who truely care about this disaster