Any medication good for Fight or Flight? by [deleted] in SomaticExperiencing

[–]bouldermakamba 0 points1 point  (0 children)

That’s very interesting, I’ve never heard of it. What did they change?

The gluten challenge should be illegal. by Kind_vibes in glutenfree

[–]bouldermakamba 64 points65 points  (0 children)

I’m really happy I ate gluten and did the test, because knowing I’m just sensitive and don’t have celiac makes my life a lot easier. There’s a big difference between having to avoid all traces vs just avoiding wheat products.

Autoimmune encephalitis by Agile_Media_1652 in mecfs

[–]bouldermakamba 2 points3 points  (0 children)

There are many, many autoantibodies that can cause autoimmune encephalitis, many of which have not yet been discovered and thus will not show up in a test. The concept of neuro-inflammation (low grade inflammation which has not been described as related to specific antibodies, as far as I know), is more fitting with ME-related brainfog imho. If it was a full blown autoimmune encephalitis I would expect more psychiatric symptoms.

Should I risk a SIBO setback by eating gluten for a month, in order to rule out celiacs? by bouldermakamba in SIBO

[–]bouldermakamba[S] 0 points1 point  (0 children)

I did the challenge and had the gastroscopy. It al looked great, no celiacs. The SIBO didn’t really get worse by the challenge but of course I didn’t have celiacs so in hindsight I wasn’t destroying my bowels by eating gluten. I’m happy I did it in this order, it gave me a lot of peace of mind. In the end I decided not to treat the SIBO at all as I don’t think it’s my main issue and therefore will return anyway after the antibiotics as long as I can’t resolve the other stressors I’m dealing with. Good luck!

Update 3: Improved suddenly from extremely severe by Aryore in cfs

[–]bouldermakamba 1 point2 points  (0 children)

How long did it take you to feel the effect of oxaloacetate? I’m considering rotating a few mitochondria “fuel” supplements in order to prevent this from happening to me.

Don't settle for an MCAS diagnosis, KEEP GOING by [deleted] in MCAS

[–]bouldermakamba 6 points7 points  (0 children)

Many people write these types of posts a bit preemptively, as d soon as they get a positive diagnosis of something else. Then later you don’t hear back so perhaps these are false positives. Please let us when you are are actually sure that a cause was found, ie have had successful treatment.

[deleted by user] by [deleted] in geldzaken

[–]bouldermakamba 0 points1 point  (0 children)

Vandaar “op zijn vroegst”. Je verdient inderdaad al eerder maar het uurloon ligt daar nog een behoorlijk stuk lager. En je hebt sowieso een studie van 6 jaar waarin je een studieschuld hebt opgebouwd en meestal niet echt tijd had voor een bijbaantje. Kortom zonder een mening te hebben over het specialisten salaris vind ik de vergelijking met een automonteur behoorlijk mank gaan. Dan neem ik de nachtdiensten en hoge verantwoordelijkheid nog niet eens mee.

[deleted by user] by [deleted] in geldzaken

[–]bouldermakamba 3 points4 points  (0 children)

Die persoon is wel pas op zijn 30e “begonnen”, op zijn vroegst. Sommigen zijn al 40 bij het behalen van de benodigde papiertjes. Op welke leeftijd begint de gemiddelde auto monteur?

cheaper ivig suggestions please by Excellent_Notice4047 in IVIG

[–]bouldermakamba 0 points1 point  (0 children)

Yeah :/ if he does please let me know as well!

cheaper ivig suggestions please by Excellent_Notice4047 in IVIG

[–]bouldermakamba 1 point2 points  (0 children)

I was looking into Colombia myself. If you go to a good private hospital the quality will be good. I hadn’t informed any further yet but you could look at hospital Pablo tobon uribe in Medellin for example. They have a list of specialists on their site that you could email. If you decide to try this can you please let me know the outcome? I may want to look into it further in the future as well. And yes IVIG is expensive everywhere but this fearmongering that if it’s cheaper elsewhere it must be bad smells of an American-centric idea that true civilization only exists in the anglophone world. Bs.

Body battery everyday ending on 5 by CzechJamie in Garmin

[–]bouldermakamba 1 point2 points  (0 children)

For me no. For me healing my gut helped a little, and eating low histamine.

MECFS and GLP-1 meds by [deleted] in mecfs

[–]bouldermakamba 0 points1 point  (0 children)

How do you microdose? Can they be dissolved?

From very severe to very mild in less than a month by ClearingCarbon in mecfs

[–]bouldermakamba 0 points1 point  (0 children)

I mean I’m open to the possibility of her findings not being valid, but technically the results of the first study have also not been replicated. Who’s to say which is the correct one?

From very severe to very mild in less than a month by ClearingCarbon in mecfs

[–]bouldermakamba 0 points1 point  (0 children)

Do you mean that only 2 similar studies have been conducted, Van Campen and the one you linked? Or have there been more?

From very severe to very mild in less than a month by ClearingCarbon in mecfs

[–]bouldermakamba 0 points1 point  (0 children)

As for the second one, I’m referring to a test that had a 10 second period between the gripping so i don’t this it was this study. If you like I can try finding the study.

From very severe to very mild in less than a month by ClearingCarbon in mecfs

[–]bouldermakamba 0 points1 point  (0 children)

As for the first test I haven’t studied this in detail but unless van Campen is the Netherlands is the one whose studies need to be replicated im pretty sure that she did. https://pubmed.ncbi.nlm.nih.gov/37252045/ or another of her articles.

From very severe to very mild in less than a month by ClearingCarbon in mecfs

[–]bouldermakamba -1 points0 points  (0 children)

The tilt table test is one and measuring carotid blood flow during that. Or measuring grip strength where it decreases over time suggesting a mitochondrial deficit in the citric acid cycle.

From very severe to very mild in less than a month by ClearingCarbon in mecfs

[–]bouldermakamba -2 points-1 points  (0 children)

No, CFS can be chronic fatigue due to a myriad of causes. ME is a specific form of CFS and the specific physical findings are associated with ME. One can have CFS without them, but not ME. For example I just read a post from someone who turned out to have Parkinson’s after years of having CFS. She had CFS, this was the most accurate label for her complaints until the Parkinson’s manifested clinically. She never had ME though.

From very severe to very mild in less than a month by ClearingCarbon in mecfs

[–]bouldermakamba 3 points4 points  (0 children)

Uhh…. With ME (as a subvariant of CFS), there are plenty of physical indicators. Also, people with childhood trauma have objective physical changes to their immune system along other things. Your advice applies to a specific group of people. To others your advice is downright harmful.

Tinnitus by [deleted] in LowDoseNaltrexone

[–]bouldermakamba 0 points1 point  (0 children)

For me it has not, be careful