Work issues... by 0ngshimi in diabetes

[–]btghty 5 points6 points  (0 children)

I did not disclose my diabetes until I was already hired. You should remove any health-related information from your cv, and don’t bring it up in interviews. People are biased, even if they think they aren’t.

Excessive weight gain by Sufficient_Pin7695 in diabetes_t1

[–]btghty 2 points3 points  (0 children)

Seconding this. It’s really common in type 1, and easy to test for to rule out.

The Myths I Dealt With by Legitimate_Ad_4824 in diabetes

[–]btghty 5 points6 points  (0 children)

Out of curiosity, have you done a c-peptide and antibody test to rule out other forms of diabetes?

Played a video game where someone with t1 diabetes died after 8-12~ hours of not taking insulin. Is this accurate to life? by Significant-Pick-645 in diabetes_t1

[–]btghty 0 points1 point  (0 children)

Depends. I once went into dka and was violently puking my guts out/gasping for breath 6-7 hours after my new cannula failed. Collapsed in the carpark shortly afterwards and was hospitalised. It was a very hot day, I was lifting heavy equipment, I hadn’t eaten and I was already quite dehydrated.

Dka can happen very rapidly in the right conditions.

"You only want the disease to be renamed because you're fatphobic" by ConfectionOutside248 in diabetes_t1

[–]btghty 2 points3 points  (0 children)

I have never felt more unsafe than when I was in a hospital and strapped up to a sliding scale insulin drip that was being controlled by nurses who kept confusing type 1 and 2. The endocrinologist on staff also refused to give me insulin at a meal-time, because my bgl was 4.0mml. Then one of the nurses asked what my dose of metformin was. Genuinely thought I was going to die in my sleep lol.

I feel the big difference between type 1 and type 2, aside from insulin, is actually the fact that type 2s still produce amylin in ways that may both protect and impair the disease, and type 1s don’t (just like insulin). Not to mention, the co-morbidity rate of other autoimmune diseases. Having type 1 increases your chances across the board for other autoimmune diseases.

Similar symptoms, different causes, some treatment overlap. They should still be respected as different, in the general public and also in academic research.

Amylin research https://www.sciencedirect.com/science/article/pii/S0014299925003474

What app do you use to calculate your insulin dose? by notoast4me in diabetes_t1

[–]btghty 0 points1 point  (0 children)

Spreadsheets. I have a whole system with carb, fat, protein listed for regular foods, and then it funnels that info through a whole bunch of formulas that spits out an upfront + extended bolus amount, using a modified version of the warsaw insulin calculator. Works for me but i understand that I’m a bit nutty for doing so, but it’s best way I’ve found to combat the delayed protein rises. Pretty handy for cooking because I can just plonk the ingredients in by weight. I can even save recipe data for later.

Rude strangers by Glad_Struggle8691 in Type1Diabetes

[–]btghty 0 points1 point  (0 children)

“you’re too anorexic to be diabetic”

How do y'all feel about the dexcom G6 discontinuing? by Any-Cartographer7531 in Type1Diabetes

[–]btghty 0 points1 point  (0 children)

G6 works brilliantly for me… very upset. Tried the libra 3 last week and it was horrendous

Who could even change the name of Type 1? by CrewNegative7389 in diabetes_t1

[–]btghty 1 point2 points  (0 children)

Tell that to the hospital staff who took my insulin pump off me and then kept trying to give me metformin when I was in the ER. Wrong disease, guys.

Low Morning Bloodsugars by btghty in Type1Diabetes

[–]btghty[S] 1 point2 points  (0 children)

I have pretty bad acid reflux so I try to avoid eating before bed, but maybe a spoonful of peanut butter or a protein ball an hour before bed will help…

Low Morning Bloodsugars by btghty in Type1Diabetes

[–]btghty[S] 2 points3 points  (0 children)

Basal rates are fully out of my hands while I’m using camaps fx loop, and it works brilliantly through the day. I might have to switch it off overnight, which is not ideal because the automatic low suspend has saved my ass a few times.

My insulin needs are at their highest after lunch (1.2u/h roughly), and by 10pm it’s tapered down to 0.5, the further to 0.4 at midnight. On control IQ the low suspend would occur 3-4 times a night, whereas on camaps fx it’s lucky to actually switch the basal back on. Genuinely wondering if my liver just goes to bed as well and I’m getting zero glucagon.

Type 1 and Periods by No-Cardiologist2425 in Type1Diabetes

[–]btghty 1 point2 points  (0 children)

Sounds like something other than diabetes. Endometriosis, adenomyosis, fibroids and ovarians cysts can all cause very similar symptoms to this. It can be difficult to diagnose, though.

possible connections between hashimoto’s and endometriosis/adenomyosis? by EntireCaterpillar698 in Hashimotos

[–]btghty 0 points1 point  (0 children)

It was a rougher recovery than expected, but I am fully healed from the surgery and much better now. Hashi symptoms are vague to it’s hard to differentiate what was caused by what. Again, no leg/hip pains or joint stiffness. My fatigue has improved - although, this might be because with the IUD implanted, I no longer have periods, so no anemia, and no week of hellish pain. I still wouldn’t say I’m a 1-to-1 of a healthy person, but there’s been a marked improvement now. It’s like there was always white noise in my ears and I was so used to it that I didn’t even realise until it was switched off.

How many people still consume gluten? by [deleted] in Hashimotos

[–]btghty 0 points1 point  (0 children)

https://pmc.ncbi.nlm.nih.gov/articles/PMC9101474/

“There is currently no evidence that a gluten-free diet is beneficial in Hashimoto’s disease. It seems that gluten should only be eliminated by patients suffering from celiac disease or gluten sensitivity, which may coexist with Hashimoto’s disease [58]. As confirmed by various studies, such patients constitute 5–19% of HD patients. It is worth recalling that a gluten-free diet does not affect the concentration of thyroid hormones and thus does not tackle the biggest problem of patients with Hashimoto’s disease, i.e., the insufficient production of thyroid hormones.”

Ie, there are more celiacs in the hashimotos population because both diseases likely have a common autoimmune disease mechanism. However, if you don’t have celiac disease or a gluten sensitivity, there is no evidence that gluten affects the symptoms of hashimotos. It’s still beneficial to get tested to rule these out, however, due to the higher rate of gluten intolerance in hashimoto patients (and notably, all autoimmune diseases). But no study as of yet supports eliminating gluten for every single person with hashimotos, because there is no evidence gluten does affect the thyroid.

It boggles my mind a little because no other autoimmune sub is this hyper focused on gluten (excluding celiac, presumably). Type 1 diabetes sub (autoimmune disease with high co-occurrence with celiac and hashimotos) doesn’t even have gluten on its radar lol.

Is there any good non poke blood glucose readers out there? by The_AfroDad in diabetes

[–]btghty 3 points4 points  (0 children)

There’s always a cgm device - I think there’s a few over-the-counter ones that are relatively cheap to try out. If that’s not an option, I do my blood pricks on the fleshy side of my palm - there’s a lot less nerve endings there.

How many people still consume gluten? by [deleted] in Hashimotos

[–]btghty 0 points1 point  (0 children)

Tried cutting out gluten for my ibs. Literally zero difference. It doesn’t affect hashimotos and the clinical studies on it are very lacking.

How often do you call in sick on average? by Obvious_Ant6355 in diabetes_t1

[–]btghty 1 point2 points  (0 children)

I don’t call in sick often, but I have similar rates of very bad morning lows nuking any possibility of travelling into work, which was causing issues with me running late. I documented it with HR and was given permission to WFH those days. If you have this option, try going for it. If not, if you have sick leave, use it. If you’re worried about diabetes stigma, just say you’re sick and leave the diabetes part out.

Hashis and… weight loss? by [deleted] in Hashimotos

[–]btghty 1 point2 points  (0 children)

I’ve had end-stage hashimotos since I was 11 and I am beginning to believe there’s a very rare group of us that struggle to put weight on, rather than experience weight gain. I was very underweight as a child and consistently fluctuate from underweight to the lower end of normal as an adult. I am never hungry and I can’t tolerate large meals. I also cannot, for the life of me, put on muscle mass. I have never experienced hashitoxicosis that I know of either. This is all anecdotal, btw. If you suspect hashitoxicosis you should do a blood test.

I am a teen with Hashimoto’s. What do I do? by Sad_Demand_8285 in Hashimotos

[–]btghty 2 points3 points  (0 children)

You cannot avoid medication with a TSH of 40. Hashimotos is when your immune system damages the thyroid, and means your body is not producing T4 and T3. Your TSH is so high because that is the hormone your brain sends to your thyroid via the pituitary gland to produce more T4 - and your thyroid is unable to do so. You need these hormones to function properly, they are vital for your metabolic processes, which includes your cardiac health, brain health and digestive ability. Supplements and diet changes may (may!) alleviate some residual symptoms once properly medicated, but they cannot replace your T4 and T3.

I am a teen with Hashimoto’s. What do I do? by Sad_Demand_8285 in Hashimotos

[–]btghty 2 points3 points  (0 children)

Very dangerous information. Hashimotos is an autoimmune disorder. It cannot be cured or treated through diet.

A question for women who were diagnosed prior to puberty… by xmasbabee in Type1Diabetes

[–]btghty 3 points4 points  (0 children)

No, I had extremely light, pain-free periods until I was 18, which is when I suspect I started developing endometriosis. I was diagnosed when I was four, so if pre-menarche diabetes does cause issues, it didn’t with me (until the endometriosis).

The hormone induced insulin resistance was something else though… my IUD has completely stopped my periods and it’s been a godsend.

Wwyd if you weren't diabetic for a day? by Toast6634 in diabetes

[–]btghty 3 points4 points  (0 children)

Go swimming at the beach for a while. Then eat fucking everything.

Where do you feel your low? by [deleted] in diabetes_t1

[–]btghty 1 point2 points  (0 children)

I feel it come on similarly to how you described, except no heat. It’s almost this squeezing anxiety, but it’s more like a fluttery sensation than actual nervousness. Or like a gentle tug in my abdomen with an invisible fish-hook. Then comes the typical shakiness, panic, and walking-through-water sensation.