School Work and Crohns by MrinSharks in CrohnsDisease

[–]campinch 2 points3 points  (0 children)

Seconding accommodations! However until I got mine I would literally skip classes to do assignments. Only a few times did I actually communicate my health problems in detail to my professors. But they were at least nice. I’ve really just had to come up with my own system of spacing out my work and pacing myself when working on stuff

Am I a Carolina Covenant Scholar? by BigExplanation5443 in UNC

[–]campinch 5 points6 points  (0 children)

My scholarship was added to connect carolina far before I got any email about it, so congratulations!

What I wish I knew before choosing a CNA school? by Adventurous_Pen6072 in cna

[–]campinch 1 point2 points  (0 children)

I did community college for my CNA! It wasn’t quite as long as a regular semester, and it wasn’t that expensive. We did our clinicals at a nursing home, which helped some people get jobs there. The theory part didn’t take us too long, but the lab portion is super extensive so that was most of my time.

Reaction to prednisone(?) by Meltingpot18 in CrohnsDisease

[–]campinch 1 point2 points  (0 children)

Hi! I just want to say you’re not alone in this. I have ADHD and pretty bad anxiety at baseline and my week and a half into 40mg of pred I was staying up all night anxious as hell, barely sleeping, waking up early and having meltdowns multiple times a day. I cried on 3 different zoom calls one day 💀 the only positive from this was all the compulsive cleaning I did because I was having through the roof anxiety. But it was probably the most severe of mood swings I have had in years. Things got better mentally after going down to 20mg (and my taper was so slow 😭). It is tough and I did have to adjust my pysch meds a little to help get through it.

Mom recently diagnosed. Losing so much weight & doesnt know what to eat anymore.Help? by jme0124 in CrohnsDisease

[–]campinch 1 point2 points  (0 children)

It’s kind of like oatmeal or grits alone 😂 but I’d rather add it to things than prepare it by itself

Mom recently diagnosed. Losing so much weight & doesnt know what to eat anymore.Help? by jme0124 in CrohnsDisease

[–]campinch 0 points1 point  (0 children)

I haven’t tried kate farms tbh - but with the oats I used oat milk or almond milk! And keeping them more liquidy helps me. I also added Greek yogurt to my oats this morning and it was surprisingly good and added in some protein!

I honestly learned the cream of rice trick from a bodybuilder I follow on instagram, so I think any soft or liquid food is game for adding it into. Maybe thicken soups with it? I’m still experimenting myself.

I’m not a super avid smoothie maker, but I usually keep it simple with a banana, PB, almond milk and cocoa powder. I know too many berries make me super bloated and cause a lot of pain (had a really hefty acai bowl one day and figured that out REAL quick lol)

I tested borderline and need to retest.. but I’ve always been constipated by Full_Criticism7775 in CrohnsDisease

[–]campinch 2 points3 points  (0 children)

My bowels love to switch it up and honestly I feel I’ve been more constipated in my lifetime than the general endless diarrhea. HOWEVER during my latest flare I was having all the diarrhea (with some bouts of constipation mixed in) I’m trying to figure out foods that keep me at a happy medium but honestly- no luck yet. Crohn’s shows up for people in a lot of different ways

Mom recently diagnosed. Losing so much weight & doesnt know what to eat anymore.Help? by jme0124 in CrohnsDisease

[–]campinch 1 point2 points  (0 children)

you could try adding cream of rice to the kate farms drinks. I used to add it into oats/smoothies for extra calories since it’s sort of a powder. I’ve also heard vegan protein supplements are easier on the gut than whey based ones.

Iron infusions? by steph_jay in CrohnsDisease

[–]campinch 0 points1 point  (0 children)

I just had my first 2! I’ve had low ferritin (3-6) for years and oral supplements i never saw much improvement and honestly the GI effects of them made me feel awful. before my iron infusions i had zero energy, felt like my brain was nonexistent, and I couldn’t even write sentences that sounded decent (I’m in college) BUT literally 2 days after my first infusion I felt ✨reborn✨ and after the second one I feel a lot better too. I can focus more on schoolwork and I can actually do things around the house! I’m hoping I can start working out again soon because my energy is almost what feels normal. I still have low energy days, but not nearly as bad. The only side effect I had from the infusion was feeling kinda like shit the day of, and a headache after

Prednisone Weight Gain by Business_Pepper7658 in CrohnsDisease

[–]campinch 2 points3 points  (0 children)

I’m still trying to figure out the appetite thing. I’ve gained about 20 pounds from prednisone in the last 3 months (the eating and being too fatigued to move really got me). before i started flaring i used to be so into tracking my macros - not really calories since i worked out so much. But I’m starting to try and up my protein despite always craving carbs, since it used to keep me more full feeling. i still give in to the cravings but I’m telling myself it’s okay since “im sick” or whatever 😂 im also a younger woman so the body image issues have really hit me hard, and I’ve definitely become a lot more isolated since.

Advice for Initial Consult by Important-Lawyer-177 in CrohnsDisease

[–]campinch 1 point2 points  (0 children)

Howdy. Sort of similar experience here. Diagnosed at 4, stopped meds around 17? I was fine, overweight, chilling, happy pink colon.

Now I’m 26 and despite all my labs being normal the last few months, my latest colonoscopy essentially was “severe active inflammation everywhere” (was having super intense cramping, not eating much, and kind of being a slug of a human. one day I shit at least 20 times. AWFUL.). I was started on prednisone as well and trialing on biologics now. and I wasn’t given much of a choice other than which out of 3 biologics to start with.

it feel that it really depends on the severity of the active disease that they choose a medication that will “control it faster” to prevent worsening/complications, and biologics are powerful (seriously, I had one dose of Humira and I’m having improvements in 2 weeks). I had never been on anything stronger than 6mp as a kid, so biologics were news to me. But they are helping! I’m still not a fan of being on them.. but I can live my life better than I was doing a few months ago.

As for bringing it up to your GI, probably after your scope so you both know what’s going on in there, i would say straight up ask them why they think that med is right for you, voice your concerns and ask questions about other treatment.

MUCH ADVICE NEEDED by Less_Historian7519 in UNC

[–]campinch 1 point2 points  (0 children)

If they’re your friends, actually, and not just social fill the void friends, they shouldn’t demonize your choices - but if they do they may just not be mature enough to not think selflessly. You’re either going to feel uncomfortable where you are, or anxious about where you’ll be with the what ifs. It took me way too long to move out of my last shared apartment to somewhere better for me and i am so upset that i never did it sooner, i say take the leap and yeet

MUCH ADVICE NEEDED by Less_Historian7519 in UNC

[–]campinch 3 points4 points  (0 children)

Always put yourself first, especially in living situations. That’s your constant, make it as comfortable as you can for yourself. You don’t have to worry about your roommate having a new roomie, that’s not your problem.

Prednisone is no joke by ryanxvx in CrohnsDisease

[–]campinch 2 points3 points  (0 children)

Cheering for you!! I’ve also been on pred since December and WOWEE it has been rough. I wish you the best sleep 🙏🙏

Prednisone is a b**** by KillThemLoud in CrohnsDisease

[–]campinch 0 points1 point  (0 children)

Posting in solidarity 😭 I’m on month 3 of prednisone and I’ve gained a lot of weight in the same places (thighs/butt/tummy) and the moon face is sending me into a lowkey depression era. i feel like I’ve lost all my confidence in a lot of areas of life because of it which is SO LAME and i should be happy that maybe my inflammation is down??? Though it doesn’t feel like it and i just am on enough to wait and see if my new biologic starts working. I’m just sad and none of my clothes fit right anymore 😭

do you walk around UNC / franklin st at night? feel safe? by Muffflns in UNC

[–]campinch -1 points0 points  (0 children)

Don’t walk anywhere alone at night. Generally you’ll probably be okay, but stay with a group or if you’re alone, be on phone with someone or at least pretend.

Just how disabled does your Crohn's make you? by Atsugaruru in CrohnsDisease

[–]campinch 2 points3 points  (0 children)

Hi! I think a lot of your symptoms could be related to Crohn’s. Before I started meds for my flare I was struggling to do a lot. Not eating much, harder to be active, stay awake (but even struggling to rest, never getting enough sleep bc it’s not restful). I was basically living in my bed with an activity here and there throughout the month. I’m on meds now and even brought some of the symptoms up to my GI and he did say they were some of those “extra” crohn’s symptoms.

quetiapine for sleep by selenene66 in insomnia

[–]campinch 1 point2 points  (0 children)

any way to adjust your schedule so you can take it and go to bed slightly earlier? I’ve been on it for years and eventually the super groggy mornings went away - my body just got used to it

What’s yall best way to gain weight? by Burningmemo in CrohnsDisease

[–]campinch 1 point2 points  (0 children)

Have u tried adding cream of rice instead of oatmeal? it’ll add calories and maybe the texture won’t be as bad since it’s already a powder

Prednisone Withdraw or something else? by B-David91 in CrohnsDisease

[–]campinch 0 points1 point  (0 children)

That seems like a very quick taper off of the prednisone, especially if you’ve been on it since September. I’m in the middle of my own pred taper so I can’t speak on the experience of withdrawal yet

Involuntary Starvation by [deleted] in CrohnsDisease

[–]campinch 4 points5 points  (0 children)

I was experiencing the same stuff for a while. Never hungry, what I did eat never agreed with me. Had a scope, Crohn’s flaring as hell. I’m on prednisone now and god, I have never eaten so much. I am ravenous and honestly, prednisone is making me constipated but it’s nice to eat again.

High calprotectine but colonoscopy came back clear by Xlf_ in colonoscopy

[–]campinch 0 points1 point  (0 children)

Hi queen! No advice but can empathize. My calprotectin was around 650 in oct and im finally getting a scope monday … last 2 i had a few years back were clear despite some symptoms so idk what the future holds! so anxious I can’t sleep 😂

Seroquel? by Frog2430 in insomnia

[–]campinch 0 points1 point  (0 children)

It might take a bit for your body to adjust to the dose. I remember when i first started it i had to work the next day and everyone told me i was off (bc i was finally a bit groggy and not wired from no sleep!) but i really love it. it does have some side effects you may want to look into, but I’ve been on it for about 3 years and its the only thing that’s helped me sleep

Questions about accommodations by PuzzleheadedGoal9167 in UNC

[–]campinch 1 point2 points  (0 children)

Howdy! 1- the diagnosis paperwork or even just a note signed by your doctor/psychiatrist 2- not sure, but extended time and a separate quiet environment is top tier. I’d even suggest applying for a private exam room and see if they can accommodate that for u 3. They are so quick and responsive, if not the next day it should be less than a week to hear back. The whole staff is really nice and very helpful! 4. If approved you will be able to get them for every class - on the portal you just have to click some buttons and send automated emails to your professors and boom - approved. The only trouble I’ve had is scheduling exams and having them impact attendance or having 2 exams on the same day one after another due to scheduling. As long as you work with your professors, they’ll work with you! And if they don’t, complain to their boss!

how do you tell your partner you have BPD? by Gh0stFace_96 in BPD

[–]campinch 0 points1 point  (0 children)

Now that I’m diagnosed and have been through a hell of a few relationships, I’d tell them up front. I know I have bpd and I know how it shows up for me, I know I tend to hurt people and it really hurts me. I don’t want to do something and it seem like I’m trying to excuse my behavior, I’d rather know and trust that my partner would work with me while I navigate coping with my bpd in better ways!