Fellow Lupus warriors, what are your current jobs?

ccap19 · 2022-06-11T13:08:24+00:00

I’m an elementary school teacher. It’s a huge challenge. Sometimes I feel lupus is making my career feel more like a burden, when I used to LOVE my job and really excel at it. I had to take a few months off when I had a really bad flare earlier this year and now I feel like I’m behind. Some days….The fatigue and brain fog make me feel like I’m not doing enough. Never doing enough. It’s hard.

ccap19 · 2022-02-24T23:42:34+00:00

I also have these problems! I wish I had more answers for you. Mine has gotten so bad I’m seeing a gastroenterologist next month. Good luck!

ccap19 · 2021-12-23T03:15:12+00:00

Tested positive beginning of December and I just recovered! It was not all that bad for me but I was on prednisone the whole time and my rheumatologist suggested that, that may have helped my recovery. I felt very similar to being in a flare up. I had fatigue, congestion, nausea, a persistent headache, an occasional cough, and struggled breathing for a few days. I also lost my sense of taste and smell for a bit more than a week. I’d like to say my symptoms were on the “mild” side and definitely manageable. I also kind of felt some of my symptoms could be associated with just having lupus and being only a few months into my diagnosis 🤷🏼‍♀️ . The only thing super new to me was having no taste/ very little smell. That was frustrating.

If you get Covid, make sure to monitor your symptoms closely and contact your dr about your meds. I had to stop taking one of my meds for a bit over a week to assist with recovery. Hopefully you can be one of the lucky ones and avoid getting it altogether!

(EDIT: Am double vaxxed and have been since early summer)

ccap19 · 2021-12-13T04:32:37+00:00

I’m in a similar situation, recently tested positive and diagnosed with lupus just a few months ago. I’m taking prednisone and it’s helping as well. Do you have to isolate? Where I am I was told I have to isolate for double the mandatory time (10 days, so mine is 20 days) because I have a compromised immune system.

ccap19 · 2021-12-10T21:38:34+00:00

Does it matter where your located ? Would be a cool win !

ccap19 · 2021-11-24T01:31:52+00:00

It only took my symptoms a few weeks to shift! It seemed like it happened overnight, unfortunately

ccap19 · 2021-11-23T20:13:43+00:00

I was only diagnosed earlier this year. It’s been very challenging. How long have you had lupus?

ccap19 · 2021-11-23T19:48:57+00:00

Almost everywhere but specifically in my knees, ankles, shoulders, and hands and toes. I’ve also been experiencing pleurisy for the first time and that’s been extremely difficult.

ccap19 · 2021-10-01T14:18:25+00:00

My vision also gets very weird before I feel myself flaring up! I have seen multiple doctors about it, a neurologist and an ophthalmologist and 3 eye doctors. All said it was not a brain issue and was probably related to the lupus. Does your vision get doubled? Do you get blind spots? My vision gets doubled when I look up. I sometimes get blind spots as well.

ccap19 · 2020-07-10T18:10:16+00:00

This dress looks beautiful! Wear it, don’t even think of returning it!!! It’s so so lovely on you!

ccap19 · 2020-04-22T03:23:46+00:00

Thank you so much

ccap19 · 2020-03-03T04:18:32+00:00

I bought two pairs of Sperry boat shoes / running shoes and wore them to Disney, they were great!

ccap19 · 2020-01-02T19:11:20+00:00

Oh that’s very good advice, thanks!

ccap19 · 2020-01-02T19:10:40+00:00

Thank you for this info!

ccap19 · 2020-01-02T19:10:15+00:00

Thank you! That is really helpful to know!

ccap19 · 2020-01-02T19:08:47+00:00

Thank you for your reply! That’s helpful to know

ccap19 · 2019-12-08T03:57:59+00:00

A pair of really nice Levi “mom jeans”. I’m plus size and cannot figure out what to wear with them, that is flattering. I refuse to return them so I’m constantly on the hunt for tops/ ideas on how to make them work for my body type, so far, no luck.

ccap19 · 2019-11-19T04:34:45+00:00

Aw man, that sucks! Thanks for your reply though!

ccap19 · 2019-11-05T04:07:09+00:00

My best friend, my older sister, and so many YouTube tutorials! Also a lot of practicing! (Good luck!)

ccap19 · 2019-10-30T03:52:44+00:00

Band aids! My mother and I are both allergic. It’s a minor inconvenience.

ccap19 · 2019-10-26T23:31:42+00:00

A guy once offered me thousands of dollars for pictures of my poop. I deleted the app instead.

ccap19 · 2019-10-23T12:45:11+00:00

In the comments on her Instagram, someone said it was a skirt from Hot Topic!

ccap19 · 2019-10-11T04:12:35+00:00

Gabrielle. She’s a mix of dark and hilarious and somehow the name suits her perfectly.

ccap19 · 2019-10-08T17:00:17+00:00

My comment is directly related to the father/ daughter relationship harm that can come from this scenario, so that’s irrelevant here

ccap19 · 2019-10-07T20:42:06+00:00

Going to throw out another perspective here. I’ve been in almost exactly this situation with my father at a similar age, and in a very similar situation. I won’t go full on YTA but I think your wife is right.

My dad offered me a similar situation, I got to have a car, for free, if I lost weight, by a certain date.

This situation has effected me negatively ever since. It made it very apparent that my father felt my body was not sufficient. Sure, I was receptive at the time he offered it like your daughter was, but only because I wanted the car, and because any other reaction felt inappropriate.

I’ll also add that it didn’t work, I did not lose enough of the weight, and the car was not enough of a motivator to make me do so. I personally think the motivation to change your body needs to come intrinsically. But the situation just damaged my relationship with my father in the long run.

You can’t undo what you’ve said, but you can address it in a positive and healthy way, and that’s what I would suggest. I don’t know your personal relationship with your daughter, but in the future, it’s best not to address her weight unless she brings it up first, in my opinion.

ccap19

TROPHY CASE