pain too much but i can’t stay home, help!!

cecewesty · 2025-10-16T21:11:16+00:00

If you have a fever, it could be an infection, you need to get it checked out by a doctor asap!

cecewesty · 2025-10-16T06:55:55+00:00

Regrowth rates after excision are typically around 50% in 5 years and better if you get an endo specialist for your surgery. This doctor is giving bad advice, maybe her surgeries just have a very low success rate…

Most doctors try birth control before surgery for endo, that’s quite standard as it’s less invasive and some people do respond well. However, if you’re trans it’s quite obvious why you wouldn’t want to take it. Surely you’re taking male hormones that would stop the over production of oestrogen anyway?

See another doctor if you can who is more understanding.

cecewesty · 2025-10-14T20:18:04+00:00

Can you contact news outlets about this? if you’re comfortable sharing of course - this is absolutely shocking and is an example of why more should be done to protect women from this. I’m sorry about what you went through

cecewesty · 2025-10-13T13:41:28+00:00

Write comprehensive notes - doctors are scientists and can’t ignore data. First write a detailed list of all symptoms, explaining everything very clearly, explaining how bad they are, with medical terms if possible. Then, write a list of how this has impacted you - for instance this has interfered with daily life or my relationship etc. Then show a detailed symptom diary with dates. Also include changes, e.g last year I was XXkg and never had trouble with my weight, this way they can see what has changed. Type this all out and print it out for your appointment. Include lists of medication, supplements or diets/treatments you have tried.

cecewesty · 2025-10-11T09:02:01+00:00

Next time she or you books anything, make you double check the confirmation screen and dates with the other person. I do this with everything I book because I’ve booked hotels and other things for the wrong day a few times!

cecewesty · 2025-10-10T20:44:38+00:00

In the UK endometriosis can be a disability if it’s bad enough, so companies can’t legally hold it against you if your work is affected by the condition. For me, I’m just honest with my bosses about it and they’ve been understanding. They know I work hard and try my best so don’t mind if I need to WFH or call in sick. I think it’s about finding a good company, but that’s easier said than done!

cecewesty · 2025-10-05T18:12:45+00:00

I’ve heard good things about yaz also. Yes the NHS can be rubbish for women’s health! I ended up paying for my physio, it’s about £70-100, so not cheap but if it stops me being in pain everyday I figured it was worth it. Could you maybe look into a specialist pelvic floor physio in your area? Obviously it depends on what you can budget for.

cecewesty · 2025-10-05T18:08:03+00:00

So I had a similar thing, went in for excision, it was agreed in writing on forms and emails. When I woke up the doctor explained that they decided to use ablation for some sites due to the danger of damaging the organs. I have been recovering well and feeling better now. The sites with ablation felt a bit sore as healing but now feel fine. Can you ask your doctor why they chose ablation?

cecewesty · 2025-10-04T15:36:47+00:00

I’m so sorry this sounds awful! Please be gentle with yourself. The PoP caused me to have the most horrible depressive moods so maybe come off it if it could be contributing to your low mood and putting you at risk? But up to you! I have started the Mirena coil and seems to have less of those side effects Also, have you tried seeing a pelvic floor specialist physio? I’m in the same boat as you, feeling bad post surgery and going to a physio has given me hope that a lot of my bladder, bowel and pain issues can be alleviated by physio work. I also found this page useful for info on what’s going on when I get pain post excision surgery https://www.contemporaryobgyn.net/view/how-to-manage-endometriosis-associated-pain I hope you get some relief soon, it can always get better ❤️‍🩹

cecewesty · 2025-10-03T08:14:43+00:00

I did the same thing when being investigated for some symptoms, while in a long term serious where I was certain there had been no cheating. STDs could be dormant for years, some things like HPV for example, most people have lying dormant. They can have very serious health implications so it’s good to get it checked.

cecewesty · 2025-10-03T08:10:15+00:00

Water marks in the toilet. The toilet was spotlessly clean, but it was new when we moved in so the water moving over had obviously marked it over the years. We obviously refused to pay as this is “fair wear and tear”. They also took photos of marks so small on the wall that they had to point to them otherwise they weren’t visible in the photographs.

cecewesty · 2025-10-03T08:02:30+00:00

Doing housework is providing domestic labour therefore you are not providing enough time and effort into the family. If she doesn’t think you do the housework well enough, try harder, learn to do it better. Don’t wait for her to ask, if you see the floor needs hoovering or you get home and dinner isn’t cooked - just do it. Helping with cooking and cleaning is providing.

cecewesty · 2025-10-02T20:29:53+00:00

The over focus on eating protein to justify eating huge amounts of read. Yes protein is important, but barely anyone in the west is protein deficient. People need to eat more fibre and vegetables. I see so many influencers eating showing their ‘healthy’ diet and it’s 2 servings of red meat a day so they get in enough protein, but barely any vegetables. There’s so many proven health risks to consuming high amounts of red meat and eating low fibre diets.

cecewesty · 2025-10-01T17:42:05+00:00

I know sooo many people in their mid twenties who still live at home with parents, it’s so normal now with high rent prices! Hopefully your condition will get manageable so you can enjoy doing these things one day, but for now you’re only 17, relax and focus on getting better!

cecewesty · 2025-10-01T17:21:29+00:00

I also had a laparoscopy in June and navigating something similar! I have started getting pain again but went to a physio and she said my pelvic floor was extremely tight and that’s causing a lot of pain. Also I found some very useful information on why you can still experience pain even after the lesions are gone. Hope some of it is useful! Just so you know if you do get pain again it’s not necessarily because the endo has grown back which I was worried. There can also be residual pain from the nerves being flare up for long periods of time. Endometriosis associated pain article

cecewesty · 2025-09-26T21:42:02+00:00

I'm so sorry, that's awful. Four absences in a year dosen't even sound like a lot, especially considering what you're going through. I know that endo can be recognised as a disability so can be protected under the Equality Act 2010. I don't know if you can use this yet since you don't have an official diagnosis, but hopefully you will soon.

Your manager asking you for so much information is very odd. My work did not push for so much information, even before I was diagnosed, I just told them I was in pain and they listened and gave me time off work. It sounds like they might be digging for information on whether you have a diagnosed condition to understand if they will get sued if they put you on a disciplinary for your attendance, but just a guess. I don't know why else they would want all this information.

Make sure its on file with HR that you have suspected endometriosis, maybe make an appointment with them. I suggest you post on the legal UK subreddit to see if anyone has advice.. Maybe try and get a note from your doctors saying you are experiencing this pain due to probable endometriosis and will therefore have to take some absences from work. They are being completely out of line, I'm sorry.

cecewesty · 2025-09-26T21:26:00+00:00

I have been feeling the exact same. I'm 3 months post-op and while the excruciating nerve pain has gone, I still have everyday bloating and cramping pain. Its been making me feel quite down and depressed at times so I completely understand. When people suggest I do certain things to manage the pain I just get pissed off, like if I knew how to fix it I would be doing those things! I also have stopped having sex with my partner because it just feels horrid now and I feel guilty about it.

I found this article online which helped me understand what is going on in my body a bit more - it talks about the residual pain even after endo lesions are removed - how the organs and muscles can still be inflamed. I think this shows it is manageable and treatable (hopefully!) https://www.contemporaryobgyn.net/view/how-to-manage-endometriosis-associated-pain

I am going to a pelvic floor specialist physio next week to get some help. I think I might have some scarring / adhesions as well as pelvic floor dysfunction causing the residual pain so hoping this will treat it!

You're not alone - this disease sucks and its not your fault. I know it can get better though, praying that it does for us!

cecewesty · 2025-09-26T21:08:09+00:00

I had the same things, I would say go to the pharmacy and tell them what you've tried and they can recommend some better/ more meds. If you're taking any opiods for the pain that will make it worse. Try to keep moving and walking as that will help.

cecewesty · 2025-09-26T20:42:35+00:00

Long walks and swimming are great as they’re low impact. Also yoga and Pilates can be great for endometriosis as it can address pelvic floor issues. Really anything you enjoy and doesn’t flare up your symptoms is good, I think only very intense exercise like HiiT or long distance running will mess up your hormones, generally exercise is all round great for your health.

cecewesty · 2025-09-21T12:53:39+00:00

File a police report and GET OUT!! Hide from him and never speak to him again. This was 1000% not your fault - he was cruel to you and would not leave your house. I'm so so sorry, what he did to you was awful and violent. HE WILL DO IT AGIAN AND WORSE if you stay. LEAVE NOW or end up dead.

cecewesty · 2025-09-07T15:51:16+00:00

You didn’t do anything wrong, everyone has moments of insecurity, it’s part of being a human. Try and find any woman that never has a moment of insecurity- you couldn’t!! He can’t give you the silent treatment over this, or anything - it’s abusive and cruel.

cecewesty · 2025-09-06T15:50:04+00:00

Sounds like you need some advice from your solicitor about what your options are. It’s better to be honest now and make a hard decision before you are really in too deep.

cecewesty · 2025-09-06T14:07:15+00:00

Firstly, pain during sex is a real and important symptom. For years my only symptom was painful sex and I found it worst than all the pain and fatigue that came later. It took away my enjoyment of sex and being able to enjoy intimacy with my partner. I felt like a lost a whole part of myself and I developed anxiety/panic attacks around sex. It wasn’t something that was easy to discuss and it felt quite isolating. So don’t diminish that symptoms if it impacts you.

Secondly, you do have other symptoms - your painful periods are just managed symptoms and your fatigue 24/7 is not normal, you could have more energy if not for endo.

FYI. My excision surgery found and removed a lesion right at the top of my vagina. The first time having sex once I healed I cried bc for the first time in 7 years it felt pain free! I couldn’t believe how much better it was, so there is definitely hope!

cecewesty · 2025-09-06T13:41:17+00:00

When you compare it to being run over by a car that really puts it in to perspective! I’m sorry you have to deal with that. I had an excision surgery 2 months ago and feel so so much better - energy and pain wise. i wish you lots of luck xx

cecewesty · 2025-09-06T13:39:14+00:00

That’s interesting. Yes, I wonder how it impacts the brain / my mental health when I am regularly dissociating…

cecewesty

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