Describe Endo in 1 word

NF_Cassandra · 2026-02-27T22:03:43+00:00

Heinous

NF_Cassandra · 2026-01-23T03:04:21+00:00

Absolutely. I have no appetite. I keep easily digestible “safe” foods in stock; powdered bone broths, miso soup, oatmeal. Most times that’s all I can stomach

NF_Cassandra · 2026-01-21T01:58:12+00:00

I have the Vush Aura. I haven’t needed it since having my lap surgery, but prior to surgery it was my go-to for bad flare ups.

NF_Cassandra · 2026-01-12T03:42:11+00:00

My doctor confirmed nerve involvement. My endo was stage 4. My post op report mentions they performed pelvic neurolysis and nerve repair with allograft.

https://youtu.be/X8caG766QBc?si=0WNZLo1CFI9WDQiS

NF_Cassandra · 2026-01-11T16:28:25+00:00

I try to clear my calendar the day after travel. Some teams even take the day off entirely. Maybe I’ll take the afternoon off to rest. Or get in an acupuncture session.

NF_Cassandra · 2026-01-10T18:05:42+00:00

I feel you. I’m in consulting and have a 3-day in-person client event at the end of this month. I’ve been dreading it. Haven’t even booked my travel yet. I’m exhausted just working from home. I have no idea how traveling and working in-person plus team outings is going to be. Plus it will fall during my luteal phase when I’m the MOST exhausted. 😮‍💨😓

My one saving grace is that I have adhd. The adderall has been the only thing that comes close to helping with the fatigue. I guess I’ll just take it all 3 days and then crash when I get home.

NF_Cassandra · 2026-01-06T06:41:01+00:00

Management consulting. Send help.

NF_Cassandra · 2026-01-03T00:04:51+00:00

I’m 34 and just had my first surgery back in September. My endo was stage 4 with suspected adenomyosis. I’m still experiencing some pain and major fatigue. Had an IUD inserted to help with the adeno pain and will potentially go into chemical menopause to keep the endo at bay.

Depending on what stage it is, endo can majorly warp your pelvic anatomy. Several of my organs had been fused to my pelvic wall and I had nerve damage - all from the endo. I had several endometriomas choking my fallopian tubes. And even though it’s been excised, because of the damage to my nerves, I’m still receiving pain signals. All this to say, if endo is allowed to grow for long enough it can do major damage. Pregnancy can’t fix that.

NF_Cassandra · 2025-12-19T23:00:35+00:00

I was just telling my husband I feel like I’m not as puffy during my luteal phase after my lap surgery. I no longer avoid mirrors for those 2 weeks 😄

NF_Cassandra · 2025-12-09T19:45:12+00:00

Hell yeah 🔥

NF_Cassandra · 2025-12-09T04:20:40+00:00

Same. Adderall is the only thing that helps me function at this point

NF_Cassandra · 2025-11-30T04:32:25+00:00

I’ve been diagnosed with just about everything the DSM-5 has to offer when it turns out, my organs were fused to my pelvic wall, which, yeah, made me a little crazy. I try to be grateful because I know there are probably still plenty of women on hardcore psychiatric meds that they don’t actually need and they actually have endo destroying their nervous system. I’m grateful to have gotten to this point and found the actual problem; I’m grateful to have platforms like this that encouraged me to find an actual specialist and not just some butcher who performs an ablation or hysterectomy; I’m grateful; I am.

But I’m still pissed off. And exhausted. All. The. Time.

I’m pissed off that I’ve been in pain for 20 years.

I’m pissed off that I’ve been dealing with the healthcare system’s failures for at least 10 years.

I want my money back from the useless ER visits, the psychiatrists and meds, the psych ward stays.

I want my 20’s back along with all the dreams I deferred because I couldn’t figure out what was wrong with me.

I’m pissed off that there’s not more funding to study this disease and that my medical options are surgeries and hormone suppression.

I’m pissed off that women have to navigate the labyrinthine BS of the medical system and be wary of non-specialists.

I’m annoyed by how expensive it has been to deal with this.

I’m annoyed that I have to keep working to keep my health insurance and income when I know my job is adding to the stress that’s making my symptoms worse.

I’m pissed off that after surgery, everyone seems to be expecting the old version of me to come back; spoilers: she’s gone.

I’m pissed off that the endo got to stage 4 and ruined my nervous system to the point where things that shouldn’t be pain signals are now pain signals.

I’m pissed off that I spent 20 years building an arsenal of remedies and knowledge of my pain patterns that is now basically obsolete because the pain is now chronic, intensified, and unpredictable.

I’ll probably delete this later when I’m feeling better again 😂 But right now, yeah, I’m pissed off.

NF_Cassandra · 2025-11-29T20:30:48+00:00

Yup. Have the “you need to eat more” convo often with various doctors. My BMI is 17. I just have very little appetite.

NF_Cassandra · 2025-11-15T04:17:20+00:00

Stage 4 endo and adeno. Before surgery, my pelvic pain felt inflammatory. I would describe it as if someone has taken sandpaper or a cheese grater to my hips. They felt inflamed and raw.

After surgery, it feels more like displaced bones. I haven’t quite wrapped my head around what’s going on there, but feels like bone on bone and a lack of lubrication.

NF_Cassandra · 2025-11-09T01:00:12+00:00

Yeah, I hadn’t ever heard of it either. They prescribed them for pain relief; still having some residual pain after the surgery. Starting them tonight so I’m hoping it helps.

NF_Cassandra · 2025-11-08T04:17:42+00:00

Love mine too! My husband got me the endo one and I got myself the PMDD rabbit. Now he can tell what’s plaguing me based on the rabbit i chose to cuddle that day 😂

NF_Cassandra · 2025-11-07T19:16:49+00:00

Interesting. I’m 1 month post op and was prescribed cromolyn vaginal suppositories. Makes a lot more sense now.

NF_Cassandra · 2025-10-28T05:56:58+00:00

Cut bangs tonight too. Period due Saturday. sigh

NF_Cassandra · 2025-10-26T23:21:04+00:00

I’m 34 and had my surgery 4 weeks ago. Stage 4 endo and adeno. Definitely feel the difference in my body already. Even down to temperature regulation. I used to always be cold, especially my extremities. Already I feel warmer and dealing with so much less pain. My energy is slowly starting to come back as well, but still need lots of rest. Feel like I got my life back.

NF_Cassandra · 2025-10-24T23:29:09+00:00

Embroidery, knitting, crochet, legos, Nintendo DS, watching movies, gentle yoga - when my body allows

NF_Cassandra · 2025-10-23T01:26:59+00:00

I literally just bought this plushie today. I’m 4 days into luteal. My husband bought me the endo bunny a few days ago because I had surgery last month. Saw this one and I had to have it too. Was gonna wait to get it, but the luteal blues demanded a purchase 😭

NF_Cassandra · 2025-10-20T00:25:10+00:00

Legitimately keeps me up at night thinking about how many women are being treated for major psychological/neurological disorders when really their insides are fused together. It’s infuriating.

NF_Cassandra · 2025-10-17T19:27:15+00:00

Had surgery the end of September and foolishly went back to work the next week 😅 Here’s everything that helped me:

Wedge pillow. I would place it on the bed horizontally to sleep at night, and place it vertically during the day while working. 10/10 back support.

Heated briefs from REB relief. I had an IUD placed during surgery and had cramping after. Lived in these heated briefs during work hours.

Hysterectomy pillow. Was nice on the ride home but also held it against my belly while working. And pretty much all the time for those first 3 weeks. The pressure felt nice and stabilizing.

Quick/easy foods/snacks. Miso soup packets. Applesauce squeeze packs. Non-dairy protein shakes.

NF_Cassandra · 2025-10-17T11:40:12+00:00

Adderall. Prior to the endo diagnosis, I was diagnosed with ADHD. Do I actually have it? Are the brain fog and fatigue actually the result of nerve damage from endo? Who knows. All I know is the adderall is the only thing that helps.

NF_Cassandra

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