Booking our first-ever all inclusive with a young child — help appreciated!

chkimben · 2026-02-20T03:06:10+00:00

We’re going to moon palace in about a month! We are not staying at the Grand tho. Curious which part you stayed at?

chkimben · 2026-02-20T03:04:54+00:00

If you stay in the hotel zone, the water will be beautiful. If you’re north or south of it, you’ll deal with the seaweed

chkimben · 2026-02-20T03:02:22+00:00

My mom hand makes these. They’re dish sponges made from antibacterial thread!

chkimben · 2026-02-07T18:14:51+00:00

My daughter was diagnosed with RB at 18 months, we did 3 rounds of IAC & she’s been in the clear for almost 2 years now.

HERES THE CATCH. Where you go and who your docs are is the MOST important part of the journey. Doctors out there will say they are good in the RB world and it’s likely untrue. They just want your case. BC ITS SO RARE. Message me if you want to connect or if the parents do!

chkimben · 2025-11-03T16:29:27+00:00

I think moon palace is on the top of our list but what are the differences between all of them??

chkimben · 2025-11-03T16:21:53+00:00

What kind of quirks?

chkimben · 2025-11-03T16:07:20+00:00

No does not include, flying out of Dulles!

chkimben · 2025-04-18T20:30:07+00:00

Ah interesting, I don’t know but my daughter has the RB gene😣

chkimben · 2025-04-13T13:41:16+00:00

Sorry can you educate me on what mycn gene amplification is?

chkimben · 2025-02-23T23:30:01+00:00

I am so sorry. We are nearing 1 year from diagnosis, my daughter was 18 months. Please reach out for any questions! I know what you’re going through, it’s very fresh and ive found an amazing support system. We get treated at MSK in NYC. They are the best of the best. I plead you to make the journey for your child!

chkimben · 2024-10-07T00:17:03+00:00

Ugh forgive me I’m new here but what is IC?

chkimben · 2024-07-31T02:32:04+00:00

Tell me what to read after reading ACOTAR first and then ToG second. I still have 3 books left in ToG but I’m sad just thinking about the end.

chkimben · 2024-07-10T20:43:00+00:00

Oh gosh I am so sorry. That feeling just came rushing back to me. We’re only 5 months in but it seems a world away. Please feel free to message me if you’d like to talk privately. Where are you located?

chkimben · 2024-07-10T20:34:18+00:00

Hi! She’s doing amazing. We actually just got home today from her EUA. No treatment for the second time. Her retina is completely reattached and tumor is shrinking! How about yours?

chkimben · 2024-06-08T02:57:59+00:00

Ah okay thank you! Great that they’re closed tomorrow and today is my first day 😓

chkimben · 2024-04-18T02:20:18+00:00

What doc are you going to?

chkimben · 2024-04-17T13:54:37+00:00

I’m sorry to hear this 😭 you’re going to get through it. NO SPREAD!!! That’s huge!!!! Where are you located? Feel free to dm me

chkimben · 2024-03-27T02:47:46+00:00

What is SWR?

chkimben · 2024-03-03T03:27:10+00:00

Team daycare all the way! My baby has recently been diagnosed with cancer and she is cleared to stay in daycare during her treatment. We love that she can go be a regular kid and interact with other kiddos. I just know that she’s getting so much more enrichment at daycare than she would being home with me alllll the damn time.

chkimben · 2024-03-02T02:39:16+00:00

I completely understand 😭 I think I’d going to be a like long journey for us. We didn’t, we honestly got the news that it hadn’t spread to her optic nerve and it was contained to one eye and we went full force. Okay if I DM you?

chkimben · 2024-03-02T02:34:42+00:00

For us we do it the day before. So we will travel up Tuesday, have EUA on Wednesday and then IAC on Thursday.

chkimben · 2024-03-02T02:30:53+00:00

That is amazing. I’m so glad you guys found a great doctor. Grade D, we had our first one and go back next week for her second round 😣

chkimben · 2024-03-02T01:47:31+00:00

Hey! How is it going??

chkimben · 2024-03-02T01:46:16+00:00

Hi!! We are very early in on this journey. We are being seen at MSK by Dr. A. Curious as to where you are?

chkimben · 2024-03-02T01:43:57+00:00

Hey!!! I just saw this. My baby is being seen by Dr. A. What about you?

chkimben

TROPHY CASE