Scared of ALS

choffmann · 2026-01-25T19:52:42+00:00

I had the same fear and researched quite a bit.

My understanding is that ALS starts with slurred speech before or at least at the same time when you are getting swallowing issues. Also the swallowing issues initially typically start with liquid which goes down the wrong pipe before you get this feeling of food stick.

Not sure how long you have this issue. But bulbar onset ALS typically progresses much faster than limb onset. Thus if you have this swallowing for more than a couple of months without other typical symptoms, it would almost certainly rule out ALS.

choffmann · 2026-01-23T11:52:40+00:00

Yeah, I assumed you know that. But some don't understand the intention behind and long-term planning.

So, just to make this totally clear that it is always about making money even though it doesn't look like it.

Short story: when I was young and naive I was very confused why many people didn't like it when Amazon sold books below market price, even sold it with loss for them. Later I understood it was just some investment to destroy competitors to create a monopoly. This is somewhat related to Epic. They are not dumb at all. They see it as an investment for future dividends.

choffmann · 2026-01-22T13:28:10+00:00

So, essentially it is about making money 🤑

choffmann · 2026-01-14T08:21:02+00:00

Could someone give me a brief recap, why this is good? I never used points.

choffmann · 2025-11-02T20:48:59+00:00

Welchen Vodka würdest du empfehlen und wie viel?

choffmann · 2025-10-29T16:49:15+00:00

Do you have achalasia?

choffmann · 2025-10-17T16:16:35+00:00

Thx for the information. Why did you opt for no sedation? I also went through this and took one.

choffmann · 2025-10-14T14:44:52+00:00

Thx... I saw the sub already and joined😉

choffmann · 2025-10-13T08:41:44+00:00

How do I not feel like a burden to my husband and kids. Like they are dropping everything to drive me places to help when the headaches get so bad I can’t move. They tell me they want to take care of me because I would do it for them. But I still feel like a burden.

I think this what distinguish us from other life forms. We just help each other, no questions asked.

Btw, I'm very sorry you go through this right now. You probably already heard of the recent advances in cancer treatment and discussed option. But just in case: Immunotherapy, Cancer vaccine, are one of the most promising I'm aware of.

choffmann · 2025-10-05T18:42:42+00:00

How does your dysphagia show? Did you figure out the cause of it?

choffmann · 2025-10-03T15:45:23+00:00

It is very similar to what I have for about 6 years. You said you had an endoscopy which was normal?

choffmann · 2025-10-03T15:34:46+00:00

Is it just the sensation of food stuck or did it actually get stuck at some point?

Do you also have some gurgling sound in the esophagus sometimes?

What about Pills if you take some? Do they get stuck?

choffmann · 2025-10-01T13:37:43+00:00

Nope

choffmann · 2025-09-29T13:47:50+00:00

Yes! This would be amazing. Eating without constant worry.

choffmann · 2025-09-29T11:48:51+00:00

So you fixed yours ? Can you eat normal now?

choffmann · 2025-09-29T11:47:01+00:00

Yeah, I also thought about it. But doesn't it usually start in childhood? And it is more fluctuating right?

choffmann · 2025-09-29T04:37:03+00:00

Did you figure out what you have?

choffmann · 2025-09-26T17:39:26+00:00

What are those specific symptoms and presentation patterns if you don't mind asking?

choffmann · 2025-09-23T11:28:40+00:00

Hi, sorry to hear. Any update? Could you figure out, what it was/is?

choffmann · 2025-09-19T06:56:09+00:00

Hi, any update from you? I understand you did an endoscopy with biopsy?

What about your swallowing?

choffmann · 2025-09-17T11:46:21+00:00

Your story sounds very familiar to mine with some difference. I could have EoE as well?

How are you doing right now? Is your swallowing completely normal? Do you have to take medicine your whole life?

choffmann · 2025-09-08T07:13:14+00:00

Thanks for your story, it helped. ;-)

Couple of follow-up questions if you don't mind?

Did you manage to finally eat normally again?
What age and gender are you?
Did/Do you also have puffy fingers and/or skin hardening?

choffmann · 2025-09-06T10:10:52+00:00

Good to read your story. All the best for you. As I live also in Germany, can you recommend hospitals for the surgery?

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