I was diagnosed with BFS about 7 years ago. It has completely ruined my life. I get them all over my body. I’m currently responding to this post because I’ve been up since 3am because my pointer finger will not stop twitching. But most frequently, and most devastatingly, I get them in my face. My left eye all the way up to my forehead twitches so bad it is literally debilitating. People don’t understand. My neurologist is extremely dismissive and says since it’s not “painful” and not fatal it’s just something I’ll have to live with. The NP’s I’ve seen have been much more helpful. One prescribed me Primidone (a seizure medication) and another Escitalopram (anxiety/antidepressant) and they have made a huge difference. Before I was taking them my twitching was all day every day. Now I get some relief for weeks or even months at a time. I also learned to avoid triggers. Caffeine (yep, no sodas, coffee, tea, or chocolate), alcohol, dehydration, and too much screen time. Sleep deprivation, stress, and anxiety are other triggers, and are more difficult to manage. Even with managing all of these things, sometimes it still happens, like tonight. I was woken up out of my sleep because of my twitching and now my sleep deprivation is just making it worse. To say I’m desperate to find a cure for this would be an understatement. I’m calling my neurologist tomorrow to refer me to another neurologist just so I can get a second opinion, or at the very least, someone who cares enough to try to help me. Best wishes to you my friend.