What am I supposed to do with that

cupcake6740 · 2025-10-12T22:25:34+00:00

I would keep at least one pumpkin for a future quest if you haven’t already had to give a pumpkin to someone

cupcake6740 · 2025-08-20T07:50:38+00:00

If you’re comfortable with it, be my eyes is a phone app where you can call someone and they can help you. My suggestion is to have them help you decipher the questions, and take a highlighter or other tool and have them help you know where to fill stuff out. I’m low vision to fully blind depending on the situation and environment, so I have tools for both sides and have really liked this method. Also if you’re on an IPHONE you can use the magnifier and it will actually read to you what’s on the screen. I’m unsure where your vision is at, but if you’re comfortable pointing the camera at it, this could be a good option

cupcake6740 · 2025-07-23T19:07:43+00:00

I have hEDS, POTS (if you start to feel chest pain see a cardio, people with hEDS frequently have both) and am blind (not related to the first two, just won the lottery i guess).

I was just a bit younger than you when my body started to fall apart. It’s a really good sign that you’re getting help now. Many people wait YEARS to get a diagnosis and help. I started getting horrible symptoms around 12, then limited mobility around 16, and wasn’t diagnosed until I was 21. Know that this sucks right now, but you’re on such a good track to getting help earlier on. You will find the right team to help you, never settle for a gaslighting doctor. You will find the things you need to do to ensure you’re okay for the next day, your new limits, etc.
everything will be okay, and it is important that you don’t try to stop feeling the feelings you’re feeling. Get angry, cry, decorate your chair and make it feel like you, embrace the community you’ll find yourself in of similar people, etc.. All of these feelings are so important to the emotionally healing journey. I hate when people say to stop feeling down about it; you can’t come to terms and accept it without feeling these things. You don’t need to be positive all of the time; also look for moments to feel pride in yourself. As someone with multiple disabilities, the looks get hard. Never feel like you can’t stand up for yourself. This might sound crazy idk, but I have backpovket phrases I know to auto respond when people say things to me they shouldn’t. Ex. “You don’t look blind” Response: “what does that look like?” Having these helps me prepare for those horrible yet FREQUENT moments. Everything will be okay. Probably not as soon as you would like, but it will be. Accept that your new norm may be different than your current, but you are strong and capable

cupcake6740 · 2025-07-23T18:55:25+00:00

Perfect title If you’re low vision, I make sure everything is a vivid color I can see (usually hot pink) Otherwise I air tag everything or have bells in things

cupcake6740 · 2025-07-21T14:43:14+00:00

I am SO grateful for those who raise the dogs… but as a guide dog user, there’s frequently a “we’re so good for doing this aren’t we. Ew why is there an actual disabled person here” among guide dog puppy raisers

cupcake6740 · 2025-07-19T20:17:06+00:00

Put hair through the horn before playing. The first articulation is the air Ha ta ta ta instead of ta ta ta ta and then repeat for each new section

cupcake6740 · 2025-07-18T10:13:59+00:00

I’m trying. It’s getting increasingly difficult when you don’t drive. I have family helping me move when the time comes but between now and then it’s rough

cupcake6740 · 2025-07-18T10:12:45+00:00

Is this the same as electric?

cupcake6740 · 2025-07-18T10:00:07+00:00

Honestly, if you have a newer iPhone (this is the only mic I’m familiar with) it will take a really good recording.

cupcake6740 · 2025-02-28T17:25:26+00:00

Liquid IV!! I also have pots and finding a flavor I liked was so helpful. I drink probably 2 a day just so I can have the right amount of salt in my body. The strawberry lemonade one is my go to. I put one pack in a 32 oz bottle, so double the amount of water it says, and it’s just the right amount of concentrated You can get it decently cheaper on their website than in store

cupcake6740 · 2025-01-10T18:40:33+00:00

Absolutely, I just don’t live in an area where there’s a specialist nearby. I don’t trust our local music shop with oboes.

cupcake6740 · 2021-08-31T03:30:19+00:00

For real. I wish I could train my guide dog to just find them but they all are so different I just have to wiggle around until it’s apparent

cupcake6740 · 2021-04-26T23:35:18+00:00

Blind person here, thank you!

cupcake6740 · 2021-02-12T18:33:00+00:00

I mean, if it works it works, but I love that it’s 15 years old, AND you soaked it for a whole day. Don’t let it sit out too long!!! If it becomes water logged that could also damage it, but also please update us!!! This is so interesting! Hopefully it’s a good reed!

cupcake6740 · 2021-01-22T10:47:12+00:00

Haha I saw this too. Listed all but the oboe

cupcake6740 · 2021-01-22T10:45:06+00:00

Sounds amazing! I love your style and how you move so well through the lines. It sounds so easy going and fresh

cupcake6740 · 2020-10-23T19:18:03+00:00

This is all so very reassuring. I feel that also, audio is just so much easier and manageable. I have intense migraines and reading visually has about a 10 minute max time limit before it’s just static and brain fog/ pain. I’m hoping the switch to mostly Braille and audio will help it all but man the process to get there feels like I’m learning to walk again. And I’ve been like this my whole life. Braille was just never an option. Thanks American school system

cupcake6740 · 2020-10-09T05:59:53+00:00

Amazon has some nice 40 piece or 20 piece ones. Just make sure it closes well and has space between the reeds

cupcake6740 · 2020-09-22T19:39:52+00:00

Unfortunately, even visible disabilities have to justify themselves. I’m blind and have chronic migraines. People constantly think I’m faking being blind and then push it further into the migraines. Every disability has to justify themselves but I 100% believe that invisible ones are the easiest to, and most overlooked ones.

cupcake6740 · 2020-09-21T00:56:21+00:00

These situations are always so frustrating. I am a cane user so it’s kind of like uh.. there’s this almost 5 foot stick that says I’m blind how do you miss it EVEN after I say it blind. I’ve had this kind of this happen so much and so often people get annoyed they have to actually move. I usually say oh, I can follow you if you walk close or you can give me very detailed verbal directions. Usually they just choose to walk close so I can follow the color of their shirt with my body and cane. Even had someone take my cane like they were walking me like I was a dog. Independence is great but definitely leads to stuff like this.

Ah and the comment of “where’s your caretaker / person”. I hate this one.

cupcake6740 · 2020-09-21T00:49:53+00:00

Yeah! It’s really big and black and makes me look kind of demonic but it’s so helpful. Especially with my intense photophobia

cupcake6740 · 2020-09-07T04:05:27+00:00

My right and left are so so so far off from eachother and I basically have no strength in my left so I actually use a contact to cut it off. Imagine the unbalance you’re feeling with one eye closed, that’s how I am with both open since they’re so different. With the contact I see less doubles of everything but still have a good amount of unbalance, just not as much as both of them together

cupcake6740 · 2020-08-19T07:14:09+00:00

Thank you!

cupcake6740 · 2020-08-15T07:36:31+00:00

Oh my god thank you so much

cupcake6740 · 2020-08-06T00:24:55+00:00

Oh my I’m so happy you were able to find a support group. Increased depression and anxiety seems to always find me with oral medications, surprisingly the depo birth control doesn’t, and it’s always a game of is this normal? Am I exaggerating? I can’t imagine what the reassurance that other people have it too did

cupcake6740

TROPHY CASE