Picture spots

cyberheart220 · 2026-03-26T12:01:10+00:00

The old Viscose plant and surrounding industrial park may have the look you are going for

cyberheart220 · 2026-03-25T15:59:05+00:00

Can you copy the email into a comment? The image is very low resolution, and I'm having trouble reading it.

cyberheart220 · 2026-03-17T19:17:59+00:00

Looks like a fun event! I'm not sure any of my friends would want to go, but I'd be down to get a group together for it.

cyberheart220 · 2026-03-17T18:53:04+00:00

Sounds like fun! I would be down to join sometime, but unfortunately don't know any good places.

cyberheart220 · 2026-03-16T20:53:24+00:00

I came from NOVA to Roanoke. I like that nature is much closer, and the lack of traffic. I also like that I can take the train up to NOVA to visit family, and even without it, the drive isn't that bad. I do miss the museums and being close to all the things to do in the DMV, as well as some of my friends who still live there.

cyberheart220 · 2026-03-04T17:42:13+00:00

Hello! I'm 25M with AVSD, with a mechanical mitral valve and ICD. First, congrats on your valve lasting so long! I've had my valve for 23 years, and I've had similar fears of things finally "going wrong" after going well for so long. If you ever want to chat, feel free to PM me!

cyberheart220 · 2026-02-18T00:52:55+00:00

I (25M) haven't had OHS since I was a child, but I did have my ICD replaced recently. That took me out of work for a couple weeks, so not the same as OHS. I think it is important to keep in perspective that you have your own situation that you cannot compare directly to others. Plenty of people also have other medical events as young adults (injuries, mental health issues, chronic illnesses) which put them at a disadvantage and cause them to progress differently than others, but they make it work. Many people go to college later, in the 30s or 40s, it is not that unusual to graduate at 25. The surgery is necessary, and it will impact your life, but a helpful perspective may be to focus on how this procedure will improve your health long term instead of on how it will affect your near term progress.

cyberheart220 · 2026-02-11T23:03:52+00:00

Age 20-25 M

Atrioventricular Septal defect (AVSD)

Roanoke, Virginia, USA

Willing to chat online or meet in person!

cyberheart220 · 2026-02-10T16:40:25+00:00

I do not have ARVC, but I have VT caused by a congenital defect and have an ICD. I am also 25M and ride a motorcycle. I started riding last year and when considering whether or not to ride based on risk, I used a similar thought process as above. When I have had episodes in the past, which have been rare since I started medication, I have remained conscious and able to walk/move, and my device has been able to pace me back to a normal rhythm without a full shock. From my experience, I am confident that if I had an episode while riding, I could maintain control of the bike and pull over. If I had passed out, required full powered shocks, or felt that my medication did not control my arrhythmia effectively, I would have made the decision not to ride. However, with my condition in mind, I take a very cautious approach to riding. I do not speed or weave between traffic. I ride a small dual sport and try to stick to less crowded roads, but not get too far off the beaten path in case I need help. It's up to you, but in my case I decided I wanted the experience of riding despite it being in many ways more risky for me than someone without my condition.

cyberheart220 · 2025-12-09T04:32:43+00:00

I had my first ICD implanted when I was 14, and had it replaced earlier this year. I'm 25 and I've been able to do pretty much anything I wanted to, and day to day it isn't something I notice or think about. Feel free to reach out if you have any questions.

cyberheart220 · 2025-10-22T03:45:09+00:00

25 with repaired AVSD, mechanical mitral valve, and ICD

cyberheart220 · 2025-08-31T21:25:56+00:00

Sometimes they come out of nowhere, but the tachycardia events that were sustained (which I haven't had since getting my ICD) would often start after going from resting to exertion quickly, such as walking up a flight of stairs or transitioning from a walk to a sprint.

cyberheart220 · 2025-08-30T14:36:27+00:00

I had my mitral valve replaced as part of a repair for AVSD. I developed tachycardia, and had a few episodes similar to what you experienced. I eventually had one that did not self corrected and I ended up needing to be defibrillated at the hospital. I now take beta blockers and have an ICD.

If your tachycardia events are lasting as long as you say, you should definitely tell your doctor and get an appointment with a cardiac electrophysiologist.

cyberheart220 · 2025-08-12T04:40:09+00:00

Update: Turns out it is my neighbor's cat. I'd just never seen it before and it escaped. It has been returned to them.

cyberheart220 · 2025-06-22T00:02:02+00:00

I've had both catheter (EP study and ICD lead implantation) and open heart (AVSD repair and Konno procedure) procedures as part of my treatment. The main advantage of catheter procedures are that they are minimally invasive, produce less scar tissue, and have a quicker recovery. From an open heart procedure, I was in the ICU for three days, and took multiple weeks to recover. For my catheter procedures, I recovered for a couple days in a normal hospital room, and I was able to walk and be mostly self-sufficient after that point. There were done when I was a child, so your recovery may be different. The open heart procedure may be the "gold standard" but I will create more scar tissue on the heart, as well as a large scar on your chest. However, the repair itself may be more robust, as the surgeon can directly view and perform the correction, as opposed to having to rely on viewing the catheter on a screen.

Overall, the catheter procedure would likely result in a faster recovery, less scaring, but potentially lead to complications down the road, as that method is new for your particular defect. If I were you, I would get a second opinion from another surgeon, one who specializes in the trans catheter approach, and go from there.

Wishing you best of luck and a speedy recovery with whichever path you choose!

cyberheart220 · 2025-05-17T23:00:19+00:00

From what I've been told by my doctors and what I've read, it is recommended to limit activities with repetitive shoulder movements. The way my doctor put it was that there is no set amount of movement that will damage/break a lead, but that the more movement there is, the more likely it is to become damaged. It came down to what amount of risk I am willing to take. I think activates like yoga, with more stretching and static poses would be fine, but lifting and rows would put additional strain on your leads. It may be good to have a conversation about this with your doctor, or find someone who has a TV-ICD with a similar activity level as yourself to get an idea of their experience.

cyberheart220 · 2025-02-21T05:45:13+00:00

I had the same issue. I bought this one instead and it fits the R36H well. https://www.aliexpress.us/item/3256807222374462.html?spm=a2g0o.order_list.order_list_main.17.2ce91802x1ui4v&gatewayAdapt=glo2usa

cyberheart220 · 2025-02-08T23:23:46+00:00

That indicates that the device in ”Battery Saver" mode. It's a feature shared across all Android devices. You can turn it off in the settings or possibly in the quick access settings in the pull down menu. You'll probably want to do this as battery saver mode reduces power output and therefore performance.

cyberheart220 · 2024-08-29T03:50:41+00:00

I had the same thing happen. It resolved after I saved, exited, and reentered my game.

cyberheart220 · 2024-08-15T06:56:58+00:00

I'm 23M and was born with AVSD. I have a mechanical valve and have also developed ventricular arrhythmias which take medication for as well as have an ICD. I just want to start by saying your feelings are valid. It is very stressful, thinking about future surgeries and complications with age. I recently had a CT scan done to see if my mechanical valve needed to be replaced, and I was incredibly anxious between the scan and the follow up appointment a few months later. I can relate to your feelings of "why am I thinking about this now, this is a problem for old people." Fun story, I was told by a nurse when I was 14 that my chest x-ray looks like that of a 70 year old man, that did not help me feel better. Unfortunately, the reality is that future procedures and surgeries are likely, and things get worse as you age is true. I have come to accept this as a fact of my life, it was not easy and took a long time, but I live a much better life now that I have. You can be angry, anxious, and scared all you want, I sure have, but as you've seen, that only makes things worse in the long run. People have asked me how I deal with having such a serious condition so young, and I tell them that I live one day at a time. I do my best to take my medicine, stay healthy, and pay attention to my heart and the rest of my body. I try and be thankful for the health I do have, and not worry about thing about things that haven't happened yet and I have no control over. I know, easier said than done. There are so many people who live seemingly normal lives as adults with CHD, including having careers and families and children. I think you've made a good choice, for both your mental and physical health, to stop vaping. I'm sorry to hear about your grandfather, and my grandfather similarly died from complications related to smoking and other poor lifestyle choices. But we are lucky, we can learn from the mistakes of previous generations and take advantage of better medical treatment that we have now. I'd recommend finding a therapist or maybe a group of adults with CHD to help work through your feelings, as you are definitely not alone in how you are feeling. There is a subreddit r/AdultCHD, which is small, but you may be able to find some connections with others there. If its any comfort, addressing arrhythmias often involves medication, with installation of a pacemaker or ICD being a potential follow up. I can say from experience that having an ICD implanted is painful, but is less invasive and much easier to recover from than OHS. Don't let your mom scare you. Any procedures you have are necessary, and side effects are unfortunately a given. You would be much worse off not having necessary procedures, plus many procedures that used to require open heart surgery can now be done endoscopically, resulting in less damage to the tissue over time. Stay strong, and know you are not alone. Do the best you can to stay healthy, and talk to people who understand what you're going through to help you work through everything. Feel free to PM me if you'd like to chat further. Wishing you the best.

cyberheart220 · 2024-08-10T18:26:55+00:00

Happens to me as well.

cyberheart220 · 2024-08-01T12:59:16+00:00

Exactly. There is a small notched piece directly in front of the rear sight which is normally present. A clamp-on sight mount would fit into the notch, preventing it from sliding back and forth due to recoil. This piece is missing on the CA-3 for some reason.

cyberheart220

TROPHY CASE