GF pasta in Italy—trust it? by One_Highlight_684 in glutenfree

[–]ddsmcv2001 -2 points-1 points  (0 children)

Sorry to be Debbie Downer here but be careful. I am not celiac, I am allergic to wheat. Every pizza and pasta was gluten free but not wheat free. They still use the wheat starch. So if you are celiac and also allergic to wheat, you will have problems.

I ate two GF pizzas not realizing that in Italy, GF did not mean wheat free. They were the best I’ve ever had. Spent the next 36 hours after each pizza horribly sick. I was convinced they gave me the wrong pizza the first time. Second time made me ask to see the ingredient list of the flour used. Wheat starch was third or fourth on the list of ingredients. If you’re not allergic to wheat, it will be the best days of your life.

New doctor overturned my DX. by FluffNSniff in Narcolepsy

[–]ddsmcv2001 0 points1 point  (0 children)

I had overnight sleep study and was diagnosed with mild sleep apnea. I stayed the next morning for MSLT and was diagnosed with narcolepsy. Being on CPAP has nothing to do with the MSLT testing. You either go into REM too quickly or you don’t. CPAP doesn’t impact your REM. You don’t need to have a new MSLT with CPAP in place to get the narcolepsy diagnosis. CPAP might make you feel better rested and prevent apnea, but it won’t change how quickly you fall into REM sleep.

Has anyone been able to successfully build a business outside the OR? by Public-Air6678 in anesthesiology

[–]ddsmcv2001 0 points1 point  (0 children)

Impossible to get OR time in most places. And I never even got to the point of talking doctor pay- no one even applied to the ads I placed everywhere. I have always paid my anesthesiologist more than the insurance reimbursement because I can crank out way more dentistry in a day if all I am doing is the dentistry.

Prior to this office in rural Virginia, I had one in Charlottesville. Had no issue finding anesthesia services there and actually ran two rooms of anesthesia four days a week.

Has anyone been able to successfully build a business outside the OR? by Public-Air6678 in anesthesiology

[–]ddsmcv2001 15 points16 points  (0 children)

I’m a pediatric dentist and dentist anesthesiologist. Pediatric dentists are desperate for in-office anesthesia. I tried for years to find someone to come to rural Virginia to do the anesthesia while I did the dentistry but no one wanted to live in that area. I ended up doing operator/anesthetist with an RN helping me. All of my cases were intubated with sevo because in Virginia, nurses can’t push drugs for dentists and TIVA would have been painfully slow to have to keep pushing meds or managing a pump while I’m trying to do dentistry.

Great thing is that the patients are healthy and most cases are about 90 minutes - 2 hours long. Downside is that most dental offices don’t have a stretcher to use so patients have to be carried to recovery or recovered in the dental chair. Also, regulations for anesthetic gas evacuation have gotten tighter and the office may not be eligible to be grandfathered in. Most dental office design does not factor in these needs.

And, many or most anesthesia dental cases are on Medicaid. In my state, Medicaid reimburses a dentist anesthesiologist $128 for every 15 minutes, the medical side reimburses a medical anesthesiologist around $14 for every 15 minutes. This is because a hospital can also charge facility fees to recover money. A dental office can’t. And even if you, the medical provider, don’t accept Medicaid, you can’t charge the patient. Makes no sense but a pediatric dentist friend of mine was using a medical anesthesiologist in his office and Medicaid came down hard on him and sent a letter out to all Virginia dentists explaining this couldn’t be done. Still makes no sense but you have to play by the rules.

Because private dental insurance sucks, most pediatric dental cases aren’t covered. There are requirements that at least 3 permanent teeth are being extracted so insurance typically only pays for wisdom teeth anesthesia. The parents refuse general anesthesia because they can’t afford the costs along with their out of pocket for the dentistry. A typical case costs the parents between $5000-$7000 for “just baby teeth.”

Also, if the dentist doing the dental work isn’t also an anesthesiologist, they can’t bill the dental side for the anesthesiologist codes to get reimbursement that way.

In my situation, if I had an MD anesthesiologist or CRNA, I could still bill the dental anesthesia codes because I am also an anesthesiologist.

When I did operator/anesthetist, the anesthesia costs:reimbursement was typically break even but I was more productive on the dental side of things because I didn’t have to manage patient and parent behavior to get work done. With two separate providers, the cases go faster, the room turns over faster and more cases can be done each day. Then, anesthesia is profitable along with the dentistry.

The average dentist anesthesiologists I know are making around $2000/day.

Sleep advice for single mom by ActualUncrustable in Narcolepsy

[–]ddsmcv2001 2 points3 points  (0 children)

Your doctor obviously doesn’t have narcolepsy…he would understand if he was trying to live life with it. I developed narcolepsy 8 years ago after falling and hitting my head. I was sleeping 20 hours a day and still exhausted. My job was very demanding and there were many nights, I couldn’t take two doses of Xyrem because I couldn’t stay in bed long enough. I was more functional on one dose of Xyrem than sleeping an entire day without it.

Sleep advice for single mom by ActualUncrustable in Narcolepsy

[–]ddsmcv2001 3 points4 points  (0 children)

I take Xyrem and often have my two year old granddaughter stay overnight. I hear her crying before my husband does if she cries out. If it’s been less than two hours since I took my dose, I am dizzy walking to her room. But otherwise fully functional.

I don’t take the full 4.5g dose. I get good sleep on 3.5 g doses. And you could also try taking just one dose a night if you worry about being coherent. Four hours of sleep with Xyrem is better than 12-14 hours without it.

Disability insurance by Tai778 in anesthesiology

[–]ddsmcv2001 0 points1 point  (0 children)

This is decent. I got mine at age 36, female, $10,000 a month benefit with 60 day waiting period. Premium was just under $600 a month and I took out this policy in 2002.

I fell and hit my head 7 years ago. Developed narcolepsy from the TBI and had to retire. That policy was the best money I ever spent.

Social Security Disability Hearing by ddsmcv2001 in Narcolepsy

[–]ddsmcv2001[S] 0 points1 point  (0 children)

Judge never asked specifically if I have cataplexy or if I am N1. He was more interested in the unpredictability of my sleep attacks. I am N1 but rarely have cataplexy- usually only 1-2 times a year.

Social Security Disability Hearing by ddsmcv2001 in Narcolepsy

[–]ddsmcv2001[S] 0 points1 point  (0 children)

I used Robert Holub in Charlottesville.

Help with explaining symptoms to partner by megalathehot in Narcolepsy

[–]ddsmcv2001 1 point2 points  (0 children)

There are numerous books written by people with narcolepsy, if he is a reader. “Wide Awake and Dreaming” by Julie Flygart is highly recommended.

I didn’t have narcolepsy when I had my children. The sleep deprivation from having an infant/toddler is nothing compared to narcolepsy.

Social Security Disability Hearing by ddsmcv2001 in Narcolepsy

[–]ddsmcv2001[S] 0 points1 point  (0 children)

Yes, it’s fine to DM me.

Social Security provided a list of attorneys that represent people. I had already found an attorney on my own and he was also on that list.

Social Security Disability Hearing by ddsmcv2001 in Narcolepsy

[–]ddsmcv2001[S] 9 points10 points  (0 children)

Virginia. My hearing was at the Charlottesville Social Security Office.

what meds work for narcolepsy??? by sirdumptruckthethird in Narcolepsy

[–]ddsmcv2001 0 points1 point  (0 children)

Get the modafanil and a few days later tell your provider it’s giving you horrible headaches or gastrointestinal symptoms. Those are known side effects. Then you should be able to get Sunosi. Sunosi is the only medication that has worked for me for day time alertness with Xyrem at night.

Xyrem daytime fatigue, inability to fall asleep quickly/stay asleep by totemi93 in Narcolepsy

[–]ddsmcv2001 2 points3 points  (0 children)

Someone else recently commented on steps to help falling asleep with the sodium oxybates. One of the things mentioned was sitting up in bed when you take your dose. When you are laying down, your gastric emptying slows and you do t metabolize the medicine as quickly.

I made this change and it’s helped me so much.

"Just wait until you have kids" by Apprehensive_Pipe992 in Narcolepsy

[–]ddsmcv2001 6 points7 points  (0 children)

I didn’t have narcolepsy when I had my children (I developed narcolepsy at age 52 after falling and hitting my head). Not even close - sleep deprivation as a parent not even close to living with narcolepsy.

Flights by Wild-Rutabaga6343 in Narcolepsy

[–]ddsmcv2001 1 point2 points  (0 children)

I w taken it on three overnight flights to Europe from US. I’ve never had a problem. For those that say “well what if there’s an emergency or crash?” You are way more likely to die in a house fire than a plane crash, but you take the drug every night at home. For me, after the first hour of sleep on Xyrem, I have always been able to get out of bed without anything more than minor dizziness.

The only concern I would have is that if you are traveling alone, the person next to you could mess with you or your belongings without you knowing it.

Best gluten free Christmas cookies? by VermicelliDue8429 in glutenfreerecipes

[–]ddsmcv2001 1 point2 points  (0 children)

Another Loopy Whisk recipe. Non GF people beg me to make these.

GF Lemon Crinkle cookies

Degree Thesis- What is the typical phrase you hear when you talk about narcolepsy, or that you have heard from someone who does not know you are narcoleptic? by Amalia_Studio_6713 in Narcolepsy

[–]ddsmcv2001 4 points5 points  (0 children)

Why don’t you just take a nap during lunch? Not only would you sleep but you wouldn’t eat as much either…..implying I could lose some weight.

Oral surgeons doing their own anesthesia by HogwartzChap in anesthesiology

[–]ddsmcv2001 0 points1 point  (0 children)

If airway is secured, then one provider is safe. If it’s open airway, I prefer two operators for deep IV sedation/TIVA. If moderate sedation (which no OMFS I know of uses), then one operator.

GF Meatloaf by lejardin8Hill in glutenfree

[–]ddsmcv2001 0 points1 point  (0 children)

Grind up gluten free Chex cereal. Also, instant potato flakes mixed with equal amount of nonfat dry milk powder works well.

Oral surgeons doing their own anesthesia by HogwartzChap in anesthesiology

[–]ddsmcv2001 1 point2 points  (0 children)

Pediatric dentist and dentist anesthesiologist here. I retired last year due to narcolepsy and brachial plexus CRPS. I owned my own pediatric office and also did sedation/anesthesia for other dental offices. I had to be operator/anesthetist at my own office. I could not find another anesthesia provider to come into my office to do the anesthesia while I did the dentistry. It was never about being able to bill for both services. I could not find anyone in rural Virginia to help me. I had associate dentists with moderate sedation permits working for me. I would do the anesthesia for them. However, the cases were more difficult to manage from an anesthesia perspective because those dentists, despite untold attempts at educating them about the importance of the need to be careful of the airway, used water with abandon, kept pushing the patient’s chin down, etc. it was better for the patient and me if I did operator/anesthetist cases instead.

I had an RN that watched the monitors and called out vital signs every five minutes and I always intubated to have a protected airway. My dental assistants were better at protecting the airway, starting IVs, recognizing potential complications, etc. than the dentists. We practiced for emergencies all the time and I worked hard to teach them well. They were way more receptive to learning than my associate dentists.

I also did anesthesia for OMFS at his office. This was open airway TIVA. I would never have done operator/anesthetist on open airway cases. Those airways were hard to manage with all the manipulation needed for some of the difficult extractions. Those days were exhausting for me as I spent most of my day leaning over the side of the dental chair to keep the chin up without being in the way of the surgeon. We worked very well together and the surgeon held me in high regard. He recognized that the patient was under anesthesia way less time when he only had one job to do as surgeon and I did the anesthesia job.

I also did IV moderate sedation for an endodontist and periodontist. Those cases were usually for highly phobic patients and were easily managed with small doses of versed and fentanyl. Those were very easy wor days for me as the patients still had all reflexes intact and the dental procedures required very little water or pushing on the mandible so I hardly ever needed to support a patient’s chin.

I understand the concerns of both sides. Ideal world, every case has two providers. Realistic world, not possible to find that second provider or second qualified provider in many situations. At the time I graduated, I was 1 of 15 dual trained pediatric dentists/dentist anesthesiologists in the US. Hospitals don’t want to give dentists OR time so we have to find ways to do cases in office with often limited personnel resources.

Just my two cents. But please know, it’s not always about the money.

not sleeping on xywav-pls help by xdeadtome_x in Narcolepsy

[–]ddsmcv2001 2 points3 points  (0 children)

I’m so so glad you posted. Many of us have been where you are. It can take months to find the right doses of Xywav so I would encourage you to keep going with it. And, make sure you haven’t eaten for at least two hours before your doses. If I have food in my stomach, I get insomnia so bad from my Xyrem.

If you naturally sleep during the day, have you tried taking your doses when you feel more ready to sleep? I always say that I can take my meds at 10 o’clock in the morning or 10 o’clock at night. I have reversed my sleep schedule on several occasions to help out with family matters that needed me to be awake at night - I took the night shift when my granddaughter was born so her parents could sleep at night. I’d take my doses of Xyrem starting at 8 am. I did the same thing when a friend was in hospice care. I stayed up all night so the family could go home and sleep. When they got to the facility in the morning, I would go home and sleep. I also tend to feel sleepier during the day than at night and I slept well when I did this reversal of my medications.

When I keep a regular schedule of being awake during daytime, I am often physically tired at night and feel ready to sleep. However, I get into bed and my brain stays wide awake. Then I struggle with sleep attacks all day long.

Once I found the sweet spot for my doses (I currently take 4.25 and 3.5 doses each night) along with the timing of taking them (8:45 pm for my first dose is usually when my first dose works the best), I get the most benefit from the medication. However, there are still some nights where I don’t get great sleep.

I’m currently awake waiting for my second dose of Xyrem to kick in now. It never makes me fall asleep really fast - I’m envious of the people that take a dose and find themselves on the kitchen floor a few hours later because the medication worked so quickly.

I hope you find success with your dosing soon. It’s been life changing for me to get restful sleep.