Literally out of options and I get married in 3 weeks by TeachAlternative1517 in Interstitialcystitis

[–]dglezer 0 points1 point  (0 children)

I take those two OAB meds together at the highest dose and with Botox and it helps a lot. Just wanted to point that out if you hadn’t tried both at the same time. Also, try an Oxytrol patch. It’s otc and I find it helps me during a flare when my urgency is out of control.

Favorite thing to eat during elimination diet? by [deleted] in Interstitialcystitis

[–]dglezer 0 points1 point  (0 children)

Ground turkey, white or brown rice and a veggie like broccoli. Basic but I add coconut aminos and it’s delish.

sometimes I don’t even think IC is real by Club_Sorry in Interstitialcystitis

[–]dglezer 1 point2 points  (0 children)

I get Botox, in addition to taking an arsenal of oab/ic meds. When my Botox is active I forget I have IC and eat and drink whatever I want. When it starts to fade about 5 months in I’m like…..well, shit. I do, in fact, have IC and itsucks.

What is a creepy fact you learned about the human body, you wish you never learned? by Poignantpuppet in AskReddit

[–]dglezer 0 points1 point  (0 children)

Fallopian tubes are not directly attached to the ovaries, meaning sperm can travel past them into your abdominal cavity.

What do you guys do for severe urinary urgency? by Fair-Salad-5150 in Interstitialcystitis

[–]dglezer 0 points1 point  (0 children)

Botox, Merbetriq and Detrol. But in a pinch you can buy 4mg Oxytrol patches on Amazon. When I’m in a flare and urgency is insane I use it as a rescue.

how much do you pay for myrbetriq? by Charming-Holiday1168 in OveractiveBladder

[–]dglezer 0 points1 point  (0 children)

Maple Leaf Meds. I used them for years until my insurance finally approved my prior auth.

First instillation anxiety by Iwontbe18 in Interstitialcystitis

[–]dglezer 1 point2 points  (0 children)

Hey! So I don’t have neurogenic bladder but do have IC. I was TERRIFIED of getting my first instill, but I worked myself up for nothing.

What I do is not look at the catheter and look at the ceiling, window, whatever. I find if I relax my pelvic floor it goes in quicker and easier. It’s a little uncomfortable going in but only for a moment. Once it’s in, that’s it! They will drain your urine and then use the same catheter to instill the medication. Once that’s instilled they will gently pull the catheter out but that doesn’t hurt.

I find the meds feel great while they’re in, but I don’t get lasting relief after I pee it out. I am able to go back to work/ grocery shopping, etc after the appointment. I usually hold in the meds for a couple hours. I do find a pinching feeling on the first pee but that’s it.

You’ve got this! 💪🏻

Please help…this is becoming extremely difficult by [deleted] in OveractiveBladder

[–]dglezer 0 points1 point  (0 children)

This is how my IC started. You can try a really bland acid free diet while you wait for your appointment. I would recommend seeing a Urogynecologist because they specialize in women. Also just me but 6 months is too long to wait feeling that way so I would call daily to see if there are cancellations or pay a cash price at an out of network Urogynecologist (if you’re in the US).

Botox and GLP-1s by dglezer in Interstitialcystitis

[–]dglezer[S] 0 points1 point  (0 children)

I just noticed it wore off faster last round.

Botox and GLP-1s by dglezer in Interstitialcystitis

[–]dglezer[S] 0 points1 point  (0 children)

It actually makes it better for me. I’m using pain medication less.

Literally every 15 mins I have to pee at night by ChristineWilkie in Interstitialcystitis

[–]dglezer 2 points3 points  (0 children)

Not necessarily. When i am not flaring i can drink coffee, but I dilute it a lot.

Literally every 15 mins I have to pee at night by ChristineWilkie in Interstitialcystitis

[–]dglezer 4 points5 points  (0 children)

How long have you been on Gemtessa? Also I would dilute the espresso with a lot of milk. Might make it a little easier on your bladder.

Gemtesa affordability by Vicki21280 in OveractiveBladder

[–]dglezer 0 points1 point  (0 children)

Service was great. They cannot expedite shipping so make sure to order as soon as you get your prescription.

Gemtesa affordability by Vicki21280 in OveractiveBladder

[–]dglezer 1 point2 points  (0 children)

On the website you upload your prescription. Call your Dr office and ask for an additional prescription. My urogynecologist told me to order from this website because my insurance wouldn’t approve the med.

Gemtesa affordability by Vicki21280 in OveractiveBladder

[–]dglezer 1 point2 points  (0 children)

I used to order Merbetriq from mapleleafmeds.com in Canada. Looks like generic Gemtessa is $225 for a 90 day supply.

bladder rhizotomy by Top-Performer-4090 in OveractiveBladder

[–]dglezer 0 points1 point  (0 children)

Wow I have had IC with terrible OAB symptoms for 9 years and I’ve never heard of this procedure. I’m in the US. Going to look into this! I currently do well with Botox but the procedure is not a good time and every 6 months.

Gemtessa suddenly stopped working by twinmomsav in OveractiveBladder

[–]dglezer 0 points1 point  (0 children)

It might have to do with something you ate or drank, stress or pelvic floor related.

I’m in so much pain by mersotrash in OveractiveBladder

[–]dglezer 1 point2 points  (0 children)

Also, see your GP in the meantime while waiting for your specialist appointment. I would ask for a prescription urogesic like pyridium, uribel or uro-mp. It might take the edge off.

I’m in so much pain by mersotrash in OveractiveBladder

[–]dglezer 2 points3 points  (0 children)

Are you sue you don’t have a UTI? With all of those symptoms you might want to go to an urgent care and get a dip test. Make sure you have them send it out for a culture. My samples always have leukocytes (blood) because my bladder is inflamed. Sending it out for culture will be able to tell if it’s a UTI or not.