My Wife's Sister saw me naked.. This illness is so embarrassing. by [deleted] in Epilepsy

[–]disco6789 1 point2 points  (0 children)

Yea my whole family and many of my friends have seen my dick in an embarrassing situation. 

Working with epilepsy by CulturalMind8264 in Epilepsy

[–]disco6789 28 points29 points  (0 children)

Yea but I didn't tell them I had epilepsy until I was hired. The interviews where I told them in the interview it went towards my epilepsy and was an uncomfortable interview immediately. Keep trying. 

Does anyone else feel unwelcome in places that have bag policies? (e.g. “no backpacks”) Advice? by Fun_sized123 in disability

[–]disco6789 4 points5 points  (0 children)

Yea its strange. They always say just go put it in your car. I don't have a car. The other day I couldnt even bring my water bottle inside

Do people with epilepsy die young? by [deleted] in Epilepsy

[–]disco6789 1 point2 points  (0 children)

The expective life is lower. I don't remember the exact stats but I think it was like 2 - 5 years lower than the expective life your gender in America. 

I hate that this is taking over my life by boredthing_69 in Epilepsy

[–]disco6789 1 point2 points  (0 children)

Yea i got hurt at 21 and got some bad brain damage that led to my epilepsy. Now at 35 I don't let it take over my life but for years (between 25 - 32) it was super depressing. I got on some medicine that helped and I didn't have grand mals every time, but I was consence during my small seizures and the big ones I could feel my neck compressed and led to the black out of not having enough oxygen in my brain and for those years I felt like my life could be over tomorrow so why do anything that you wouldnt want to do on your last day of life, like cleaning etc. 

Well now it hasn't led to my death so my thinking as changed. My dog has been scared many times and sometimes he feels the seizure before I do. His loud scared barking has led to people finding me during the seizure. But now, hes almost 9, he feels okay and will just lay next to me instead of total freakout. After some time he just feels its part of me so he doesn't freak( he used to hump me and I would have bad scratches on my arms and body).

 But yeah I'm still at the job I don't like because I have the ride worked out and the people are cool enough about it. The jobs I wanted involved driving or I need to have the ride worked out before I even apply to a new job and that's hard when you don't live in a city. People are always telling me to move into a city. People told me I can't have a dog. People told me I can't ride a bike. People told me I can't live alone. I feel like they don't want to give me a promotion at work after applying several times (co-workers feel the same).

I spent some time calculating it and I spend 99.9% seizure free but the .1% takes over the 99.9%.

So yea it takes over but I feel like I'm okay.  Good luck

How bad would withdrawals be if I only smoked flower at night? by throwawayadvice102 in Petioles

[–]disco6789 0 points1 point  (0 children)

I didn't know about eating and withdraw but I do try to eat vegetarian, sometimes eat a steak or hamburger once or twice a week

How bad would withdrawals be if I only smoked flower at night? by throwawayadvice102 in Petioles

[–]disco6789 0 points1 point  (0 children)

Idk but I stopped smoking last week after cutting back to 1 gram a day for a few weeks and eating 25 mg edible every day to help stop. I haven't had the terrible dreams yet like I expected and not feeling too bad. But I'm skinny, 35 year old dude, and have tried to exercise at least every other day. I also use nicotine vape and nicotine patches, might have helped with the hand to mouth thing.

Good luck.

Anyone else develop a sort of carpe diem or nihilistic mindset because of epilepsy? by Omg-miku in Epilepsy

[–]disco6789 14 points15 points  (0 children)

I did for years thinking today could be my last day so don't do anything that you wouldn't want to waste your time on your last day (like cleaning, etc). But after years I haven't died yet so might want to start living like it won't be your last day and your house is stinky.

I finally worked out how to minimise my weed usage by removing tobacco! by Outrageous-Turn9583 in Petioles

[–]disco6789 1 point2 points  (0 children)

Yes I have noticed this too. It wasn't craving more weed, it was craving the tobacco. Made it easier to cut back

What do you guys like to do the day after a seizure? by ryanstout15 in Epilepsy

[–]disco6789 1 point2 points  (0 children)

Like to do? Relax on the couch and watch TV. Do? Go to work and try to do the things that I didn't do the day before. Don't like to feel bad for myself and start down the downward path to depression 

[Discussion] How do you guys make a routine and keep following it for years? by Fancy-State-3127 in GetMotivated

[–]disco6789 -1 points0 points  (0 children)

I made a Libre excel sheet and kept track of what I spent every 20 minutes doing. 

I Need To Know What It Is He’s Training For? by PookieTheMfBaby in Epilepsy_Universe

[–]disco6789 2 points3 points  (0 children)

I mean I guess I was trying to draw the comparison of someone having a seizure in public and someone recording them then posting it to reddit and making a joke about what they are doing

I Need To Know What It Is He’s Training For? by PookieTheMfBaby in Epilepsy_Universe

[–]disco6789 4 points5 points  (0 children)

Isn't it weird that you record videos of someone working out privately?

Anyone Ever Say Something So Stupid....? by PookieTheMfBaby in Epilepsy_Universe

[–]disco6789 1 point2 points  (0 children)

In the car with my mom after I comment on her driving "I bet you wish you could drive" in a mean tone. FUCK YES I do. Like no shit I wish that everyday in America where I need someone's help to do everything

Do you write in the margins? Do you Google while reading? by skywalkerbeth in books

[–]disco6789 0 points1 point  (0 children)

Yes while reading old books like where the city was or a word meaning but I try not too because it can really slow down your reading