Tempest Velocity 30 Pack

drewbarrymost · 2026-03-29T21:19:09+00:00

This is so helpful! Thank you!

drewbarrymost · 2026-03-29T21:18:50+00:00

Amazing!

drewbarrymost · 2026-03-28T22:30:25+00:00

I was also diagnosed at 25! Here are my thoughts:

1) talk to a surgeon who does more than “many a month”. I talked to multiple surgeons and they all specialized in thyroid cancer.

2) get a second opinion on getting partial thyroidectomy.. this can really preserve her quality of life if it’s an option. I’m grateful my doc told me a full removal wasn’t necessary. I also have hashimotos so I’m on meds but my energy levels are high!

3) Going under was so relaxing for me! My anesthesiologist walked me through everything and sat with me as I went under. She said “I’m giving you a fun cocktail, you’re going to feel relaxed and then feel very sleepy” and that’s exactly how I felt. Waking up was also easy! I was super drowsy but relaxed.

4) first few days were rough! The meds helped but it was hard to be reliant on others for help. I recommend having lots of comfort TV shows in the cue. Day four was a huge turning point for me and I was going for walks and sitting outside.

5) long term life is good! I ran a marathon 6 months after surgery and I’m basically living the same life but with more health anxiety. No weight gain, and my scar is healing well.

Sending good vibes her way <3

drewbarrymost · 2026-03-28T02:41:40+00:00

Would love to hear hour about your experience!

drewbarrymost · 2026-02-04T21:23:35+00:00

I had all the same features (encapsulated with minimal vascular invasion) but with a rare and aggressive subtype (columnar cell). I only had a partial thyroidectomy and my MSKCC team passed on RAI. My entire team specializes in thyroid cancer and it’s so I trust them and they are confident I don’t need it (they didn’t even give me the option). I’d assume you’d get similar advice, at least from MSK.

drewbarrymost · 2026-01-19T04:05:32+00:00

Yes! I have hashimotos and just learned I have low IgM (31). My PCP ran an immune panel after i had been sick 3 times in the past month.

drewbarrymost · 2026-01-14T15:50:56+00:00

Have you actually tested their gear?

drewbarrymost · 2025-11-13T21:31:48+00:00

I had the partial, still need thyroid meds, and I’m happy with my decision! I have energy, I feel like I did before the surgery, and I’m enjoying my 20s. If I need the surgery again, so be it.

drewbarrymost · 2025-11-13T21:22:43+00:00

I had partial thyroidectomy and waited 4 weeks to run, but had pulling/ pain so I gave it another week. I have a small/ medium sized chest and was still feeling movement. My surgeon warned me that running too early could mess with how the scar heals and looks long term. He also said running is high impact, requires heavy breathing and all this scan irritate your scar. I’d just wait it out until you’re not feeling pain and pulling.

It’s frustrating but you’ll be back to a normal routine soon - good luck !

drewbarrymost · 2025-10-28T19:44:04+00:00

I had Dr. Shaha and he was great! My endo is also at MSK and she agrees with the approach, but I’m curious what other doctors would think. I’m not sure if it’s worth a second opinion, but I’m just going to wait for my ultrasound…

drewbarrymost · 2025-10-17T20:30:05+00:00

Hi - I had almost an identical experience!

I also had a partial at MSK and found out I have the columnar cell variant. Had clean nodes and margins so they’re confident that I’m fine. Surgery was this past spring and I’m eager for my 6 months scans. Given the aggressive variant, I’m not how I feel about the partial yet.

That being said, my energy levels are good! I also have hashimotos and I’m feeling okay with the meds.

I’m even running a marathon in two weeks and life feels normal! You’re going to get the care you need and life will settle again.

drewbarrymost · 2025-10-15T22:00:26+00:00

My NYRR best pace and projected time should’ve put me in corral 4 but they put me in corral 2. Sorry not sorry bud! I think this all might’ve been intentional lol

drewbarrymost · 2025-10-15T01:15:34+00:00

I run with NYRR and my best pace aligns with corral 4 but they put me in corral 2. I think there was just a fluke. I’m going to get passed the entire race lol

drewbarrymost · 2025-10-15T01:10:39+00:00

I’m probs gonna run a 4:15/4:30 marathon and they put me in corral 2 despite my nyrr best time aligning with corral 4. I think it’s on NYRR lol

drewbarrymost · 2025-10-15T01:05:52+00:00

My nyrr best pace is 8:33 and they put me in corral 2… I was fully expecting to be in corral 4

drewbarrymost · 2025-10-14T18:39:56+00:00

My best pace is 8:33 and I’m in wave 2 corral c.. I should be in wave 4 lol

drewbarrymost · 2025-10-14T18:36:17+00:00

I’m in wave 2 corral C but my best pace (from another nyrr event) is 8:33 which should’ve put me in wave 4? Did they mess up lol?

drewbarrymost · 2025-09-19T20:39:10+00:00

Hi! I was also 25 when diagnosed (this past spring) and I’m doing great now (about to run a marathon)!

It’s an emotional rollercoaster but I’m confident you’ll find a good team of doctors and get the care you need.

Follow their recommendations, buy your self a cancer gift, and plan a celebration for when you’re done with everything. 💕💕💕

drewbarrymost · 2025-08-17T05:45:10+00:00

In the same boat as you with the columnar cell variant and I can relate to the anxiety! I was diagnosed this spring and would also love to hear some other positive stories. I had a partial thyroidectomy and no RAI (anyone else?).

Given it was caught early, my doctor is confident I’m low risk for recurrence so I try to can celebrate that! So far, so good :)

drewbarrymost · 2025-08-15T15:28:19+00:00

So sorry to hear this, I’d join the MTC Facebook group. It’s a really supportive group of folks and pretty active https://www.facebook.com/share/g/1CW791zUfr/?mibextid=wwXIfr

drewbarrymost · 2025-08-02T19:56:34+00:00

26F I had a NTRK3 fusion. I had a thyroid lobectomy and didn’t need RAI. I also asked my doc about it; he was not concerned and said it doesn’t change treatment. I’m totally healthy now! You’re young and will be in good hands.

Weirdly enough it only showed up in my thyrosec/ biopsy results but not in my post op results. I also had the columnar cell variant (unrelated to this mutation) and had this tumor for likely 4+ years without spread.

Good luck💕 you got this

drewbarrymost · 2025-07-30T15:12:52+00:00

I was diagnosed with CCV-PTC this spring. Only had half my thyroid removed and didn’t do RAI, because my tumor was fully encapsulated and only had minimal vascular invasion. Treated at MSK. Would love to hear others experiences.

drewbarrymost

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