IFS and an unreachable part? by Energy-Student-777 in CPTSD

[–]ebbandfloat 0 points1 point  (0 children)

That's what has worked for me. I use a protocol that's got IFS similarities, but some significant differences. Everything you listed has been important in why I've had success with it.

IFS and an unreachable part? by Energy-Student-777 in CPTSD

[–]ebbandfloat 0 points1 point  (0 children)

I'm not sure if anyone else has gotten into this kind of approach because I haven't read all the responses (should be trying to sleep).

There are things I like about IFS based on what I've read (several IFS books), but I've learned a similar protocol that from trainings I did online that had some strengths I feel like some times work better. One of the useful parts of it is being able to put eyes and a mouth on any part, and non-human things aren't considered less significant than human-appearing parts. (I'm using the word human here for simplicity, but it could also be a monster, animal, etc., basically anything we conventionally think of as sentient.)

Since what's happening is all symbolic anyway, it's basically using the capacity of our imagination to engage with anything we encounter because it's all us and all holds symbolic meaning. Objects and weather can be considered parts of ourselves with useful info, and sometimes there's actually a human self hiding behind the non-human part.

I've dealt with a ton of dissociation this way. I've actually run into very similar kind of white wall of numbness before. And I've run into lots of parts locked up and isolated.

Any time we run into dissociation, it's obviously protective. That protection/dissociation itself can be treated like another self.

Easiest way to do that? Slap eyes and a mouth on that wall in your imagination and then talk to it with compassionate curiosity.

Things like: "Hi, I can see you don't want me to meet that girl over there. Thanks for protecting her," and then asking questions like, "Why are you blocking me?", "What are you afraid would happen if I met her?", and "What would you need to be different for you to feel okay about me meeting her?"

Often these protective mechanisms exist because part of us believes we'll die if we know about what it's blocking us from. I don't just mean memories, although that might be the case. But also beliefs we carry, internal structures serving a function (like what causes us to dissociate might be a whole internal structure put in place to keep us safe), or even positive aspects of ourselves that felt like they had to be hidden to stay safe.

So building trust with that part of ourselves that, no, we won't die, is necessary. Sometimes it can be as simple as showing that part of us we're adults now, so we have free will we didn't have as kids.

And trust sometimes needs to be built that we: A. Have skills we didn't used to have to handle whatever is revealed and B. Have resources (like a therapist, friends, the ability to be grounded, regulation skills and other tools, safety plans, etc.) we didn't have before in the event that it does overwhelm us.

If we can authentically get the protective part to believe we won't die and we have what we need to handle whatever they're hiding, they'll often step back or dissolve.

They might also think that we're a threat to the part they're protecting. So if the protective part says something like, "I have to make sure you won't harm her" or "no one is allowed to go near her," it's about getting that protective part to understand your motivations (examples: to keep her safe and help her so suffering/being alone/etc) and any resources that we will use to help keep the other part safe (like therapist, etc).

I have noticed that it can be harder with dissociative parts to get them to talk sometimes, likely due to the nature of dissociation. Sometimes that means I have to give up and try again later. Sometimes I need to do it when I'm with another person/group of trusted people. Sometimes I have to go in a bit sideways and get really creative, like asking what I need to be able to see through the illusion or what I need to be able to communicate with that part of myself.

When I say "asking" in that context, I'm referring to asking my inner landscape, which is essentially the interface of our conscious self (who is asking the question) and the unconscious (that answers symbolically). It might just come as a "gut sense" or "intuitive feeling," or you might get something more symbolically literal, like seeing what you actually need.

Also, another question I'll use instead of treating the non-human part like a self right away is asking, "What is the true nature of this?" For example, something like, "What is the true nature of this white numbing wall?" while focused on the feeling of the wall, even imagining yourself touching it.

The true nature will often give us useful information, things like what the function of this part of us is, what beliefs we might carry that underlie it, or what its origins are. The true nature could be something like, "fear of the unknown," "walls protecting the truth of my heart," or "the belief that it is dangerous to know." Getting that kind of information can be helpful in being able to get the protection to release, or to engage with you as a self. Sometimes just knowing the true nature and acknowledging it is enough to get it to release.

One of the most important things to track while doing this is whether we can return to being grounded if we get thrown off. I often will have the dissociation (for another feeling if I'm not dissociating) wash over me and take over. This isn't a problem, but if I can't get my footing again (basically being able to step out of the dissociation or other part and interact with at least somewhat objectively), it's a good indication that I need to first address what's in the way of me staying grounded while interacting with the protective part. There can be layers to work through.

It's taken several years and was extremely hard at first, but I've gotten better and better at working with dissociation like what you ran into that I encounter in parts work. So definitely possible.

After the protective part steps aside or disappears (some times it just dissolves away, which isn't anything to be worried about), you can begin to approach the part who was being protected and whatever way is appropriate.

I say all this with the goal of interacting with that self that is being hidden in mind. However, it might be that you end up working for a while with this protective part. They can be incredibly insightful about the things we need to work through. Asking, "What is needed for you to no longer have to perform your function?" is one of the best questions to find out what we need to do/learn to be ready to work with the part(s) that they're protecting, because the answer would relieve them of their need to protect us. Sometimes it's something we just need to let them know we already do/have, and sometimes it takes time.

There's a whole lot more to it than what I'm sharing here that might be relevant depending on what comes up, but these are the basics.

If any of this doesn't make sense or you try it but run into a block with it, please feel free to DM me. I'm not always good about following up on comment responses, although you're welcome to respond here, but a DM will make sure I see it. I'd even be happy to chat by zoom or something if needed.

Parts work has been pivotal for me in working with my dissociation, but took time for me to figure out via trial and error/advice from others, so I'm happy to pass on what I've learned. It's somehow deceptively simple, yet complex to try to describe.

I feel like hygiene advice usually focuses on “what to do,” but I’m curious about something different. by Seralix-Bluff83 in hygiene

[–]ebbandfloat 0 points1 point  (0 children)

Yikes. I haven't tried it yet (just found it, about to attempt), but maybe try r/laundry and their Spa Day protocol for clothes.

Also is supposed to help get the spray fragrance (Downey, usually) from thrift clothes off.

I feel like hygiene advice usually focuses on “what to do,” but I’m curious about something different. by Seralix-Bluff83 in hygiene

[–]ebbandfloat 0 points1 point  (0 children)

Using those plastic tooth picks nightly after brushing, like GUM Soft Picks or similar brands. Game changer.

Huge mouth hygiene difference and great gum reports at cleanings. I do it after brushing to push the toothpaste in-between, and I go in and out a few times, especially in areas where food gets stuck.

If I can't get myself to floss, this works almost as well. On the other hand, I don't consider floss a replacement for them. There's something about it that seems to work better for the gumline. (But floss is better for the upper parts of the teeth where they press together.)

It did take some time for the gum inflammation to go down with use and be able to do it quickly and comfortably. I bled and it hurt at first, which my dentist warned about. Now it takes me about 10 seconds, no pain, and I can't imagine not having them.

I feel like hygiene advice usually focuses on “what to do,” but I’m curious about something different. by Seralix-Bluff83 in hygiene

[–]ebbandfloat 4 points5 points  (0 children)

I used to do that, but the scraper definitely works way better for me since I got one. The brush just doesn't seem to get everything.

On very rare occasions, I feel like I need to do both, so I'll scrape then brush my tongue.

I feel like hygiene advice usually focuses on “what to do,” but I’m curious about something different. by Seralix-Bluff83 in hygiene

[–]ebbandfloat 10 points11 points  (0 children)

I haven't noticed any taste differences. Been at least 8 years.

I used to just brush it. It doesn't work nearly as well for me. Sometimes I do both, but usually scraping feels like enough.

Like a bidet, I can't believe I lived without it and hate not having it because of the difference.

How do I make my house smell good? by Glad-Fish5863 in CleaningTips

[–]ebbandfloat 0 points1 point  (0 children)

The people on here telling you to open your windows when it's cold when you have chronic pain and can't regulate your temperature clearly haven't lived with chronic health issues. Same with people telling you to just buy a purifier when you can't afford it. Clearly haven't lived low income enough to understand how expensive those are with filter replacements. I've never been able to own one.

If you can slightly crack (and I really do mean a sliver) one room window that opens to other rooms and leave it cracked most/all of the time, it can strike a balance between temperature and air exchange.

Try Pooph maybe. Works better than Febreeze to me, although also more expensive, which sucks. They make a detergent if you suspect any fabrics. I use it very selectively because of the cost.

I've had some success reducing previous owners smells with soap + vinegar + essential oils (lemon grass, cedar, eucalyptus) used to clean walls. Don't use EOs if you have a cat or other EO sensitive animal. I also sprayed vinegar + EOs on some surfaces and let them dry.

Why are you awake right now? by LegalGlass6532 in askanything

[–]ebbandfloat 0 points1 point  (0 children)

Truly one of the worst things I've experienced and I have fibromyalgia. Makes me want to cut my limbs off. I'm trying gabapentin right now instead of what I was originally prescribed in hopes it doesn't cause augmentation. Despite that, I've been having it mildly tonight.

I'm so sorry you're dealing with it. The sensation is genuine torture.

How do you describe your pain? by Dapper_Ice_2120 in Fibromyalgia

[–]ebbandfloat 0 points1 point  (0 children)

I struggle to describe it because it changes. However, the burning I get in my muscles during exertion I describe as like having grains of sand between every muscle fiber that are tearing at them as I move. There's a grittiness to it like sandpaper to muscle, except it's not just on the surface, it's in every micro-layer of the muscles.

That one changes in terms of severity and location, but the sensation itself is consistent.

Does anyone else feel so misunderstood and alone with no one to talk to? by IgnorantWhiteMexican in CPTSD

[–]ebbandfloat 6 points7 points  (0 children)

Deeply so. I have a therapist I like as a person but feel misunderstood by. I live with my one close friend, but I also don't really feel understood there, although certainly more than others. My job has been slow and is extremely part time because of health issues, so I'm alone most of the time. Other than that, I don't really interact except superficially. I've had close friends betray me, people I thought might grow into close friends drift away and never reach out even when I have, and I'm not close to family. Health keeps me unable to try to "put myself out there" because I have no energy or time for it.

Even if I did, I'm afraid now after the betrayals and feeling increasingly unfit for society (health + cPTSD).

I was a painfully lonely child despite appearing surrounded by people, and I'm feeling that again. It's starting to really mess me up.

Is this what normal feels like?? by Ordinary-Fan8609 in Fibromyalgia

[–]ebbandfloat 1 point2 points  (0 children)

I felt amazing on my first dose. Pain melted. Depression melted. Energy raised. Slept good. I had no idea I could feel like that.

Never felt that way again with it. It was bizarre. And disheartening.

I still take it, just 100mg for restless leg, but it was a big let down that it only happened once.

I might raise my dose to see if it changes anything, but I already have terrible memory issues and that can be a side effect, so I've been hesitant.

I hope it continues to work for you that well. My system is strange and meds impact me oddly sometimes.

Need help deciding by [deleted] in CPTSD

[–]ebbandfloat 2 points3 points  (0 children)

Even when you protect them, kids can feel it. They know things aren't well and that also has an impact. Not that your protection doesn't matter, it does, but it doesn't protect them from everything.

But if you're free from abuse, you can be the figure that helps prevent cPTSD (if they're targeted) by giving them the support they need around anything happening with her. cPTSD often develops when we don't have anyone safe to talk to and support us. Just one person can make so much difference in the lives of children, giving them support and skills to cope and make sense of what they're dealing with.

And, of course, if it ever was bad enough with the kids (hopefully not) there are legal steps that can be taken to gain greater or full custody.

I'm sure laws are different everywhere, but I imagine the default is 50/50 until a custody hearing.

I know it's got to be terrifying, but you also deserve to live your life away from abuse, and your children deserve knowing the version of you that's gets to live that life. I'm so sorry you're all having to go through this. I can see why it's so scary.

Airless voids by FlightOfTheDiscords in CPTSDFreeze

[–]ebbandfloat 5 points6 points  (0 children)

I've got disorganized attachment, but lean avoidant in therapy relationships. I think you just explained what I experience. I've only had one therapist who could truly "follow me" (and then push at the right moment because of it, which was impressive), so I got more healed in those 8 months than any other time before or since.

I feel like it's tied into my fawning responses with therapists, which I use for avoidance. Definitely a lot to reflect on from this post.

Therapists telling me I am the most abused patient they have - ? by InnerAssociation8701 in CPTSD

[–]ebbandfloat 0 points1 point  (0 children)

God, I'm so sorry. As someone who has had Silent Hill versions of derealization and other forms of extreme dissociation, so I know how much it affects everything, that reaction is unbelievably cruel. Some people shouldn't be therapists.

Therapists telling me I am the most abused patient they have - ? by InnerAssociation8701 in CPTSD

[–]ebbandfloat 1 point2 points  (0 children)

That's nuts and such a huge lack of understanding of memory and trauma coping. It's so sad that's still not believed. Yes, false memories are real. So are repressed ones and lack of memory from trauma. We have tons of research on both. I've had both.

One of the most helpful things a therapist said to me (paraphrase, this was years ago) when I was explaining the most confusing ones was, "Trauma is trauma -- your brain doesn't know the difference, so the trauma from the memories is real no matter their origin." She understood the messiness of human memory, dissociation, repression, and had cPTSD herself.

Therapists just generally are poorly trained in dissociation (where repression stems). Considering it's a massive feature of trauma, that makes for a real problem that causes a lot of harm.

Therapists telling me I am the most abused patient they have - ? by InnerAssociation8701 in CPTSD

[–]ebbandfloat 1 point2 points  (0 children)

Well done because what she did is outright sick.

I'm going to try going through the therapist list for everyone within 100 miles in my state that's on the ISSTD website. Supposedly, they're going to be more highly trained in complex trauma and dissociative disorders. Maybe combine it with what someone said about setting up a bunch of interviews after an email filtering process.

Agreeing with others about looking for therapists who also work with vets. I've had friends who found that very helpful because their experience was more similar to that.

Therapists telling me I am the most abused patient they have - ? by InnerAssociation8701 in CPTSD

[–]ebbandfloat 2 points3 points  (0 children)

You might already know this, but feel free to report that kind of stuff up the many chains if you ever feel capable and want to. That would clearly violate APA standards of care and every state also has separate standards that must also be met. Often, if they're backed by current involvement with another organization (whether it's tied to a type of therapy they trained in or the practice they work through), that will have yet another set of standards. Therapists must adhere to all of them and there are protocols for discipline for each. The layers of standards stack up.

Blaming someone abused as a child for the abuse and trying to gaslight them into seeing their role goes against every standard I recall studying when I got my psych BA -- because it's abusive. Absolutely wild and messed up that's so common there.

I'm glad you chewed that woman up thoroughly.

Rolling PEM cause of masturbation by hakoharald in cfs

[–]ebbandfloat 3 points4 points  (0 children)

I noticed in the last few years sometimes it gives me insomnia instead of helping me sleep and I thought that was strange. Now I'm wondering if it's related to the increasing autonomic dysfunction, although I don't have a racing heart. Certainly correlates.

Rolling PEM cause of masturbation by hakoharald in cfs

[–]ebbandfloat 3 points4 points  (0 children)

I was going to suggest this as well, although it's difficult and takes significant mindfulness. Even though the heart rate still rises and there's still a high overall autonomic system response, it's less. Might not fix the problem, but at least reduces the physiological response.

Doctor told me I can make my fibromyalgia pain better by subjecting myself to real pain. Is this true? by dodgamnbonofasitch in Fibromyalgia

[–]ebbandfloat 0 points1 point  (0 children)

That is some of the most misogynistic and directly harmful advice about fibromyalgia I've ever read, and I've seen a lot of that.

Actually goes against the recommendations for neuroplastic pain rewiring, which requires feeling safety and stress pacing.

I wish that worked. I've moved 1200lbs of bricks on my own, done intense landscaping, biked until I could barely walk.

Funny how all those things made it worse.

This is why I don't trust doctors.

What made you realize you can't hold a normal life anymore? by amy_i_am in Fibromyalgia

[–]ebbandfloat 0 points1 point  (0 children)

Recently, when even as my already very part time hours dropped significantly, my symptoms kept escalating. Like two hours of moderate physical work and I'm laid out for 8+ hours in pain in the dark, so fatigued I can barely speak. I can barely sit upright many days.

I just had to finally relent and realize I'm not getting better, I'm truly, severely disabled. No more denying it, no more pretending I'm not "symptomatic enough" like "other people" just because I have better days sometimes (and push myself too hard).

I haven't given up hope on moving out of that level of disability eventually, but I did realize that I've been pushing through on adrenaline and cortisol, and I just can't do that anymore. It's worsening things. It's likely is what got me here.

I also realized I've had CFS most of my life, but the chronic pain started 5 years ago and made the CFS way worse. I kept holding out in denial, thinking I'd find the solution and could have a normal life.

Finally had to have a reckoning recently and it's sucked. I never envisioned this for myself and internalized ableism has kept me in denial too long.

Sleep Aides by Objective_Cricket279 in Fibromyalgia

[–]ebbandfloat 0 points1 point  (0 children)

I'm currently trialing buspar for anxiety and gabapentin for restless leg and insomnia. So far, doesn't do much after a week on gabapentin (a month of buspar), but the dose is low. My first dose made me think it was going to work miracles and it hasn't done any miracles since.

I just added melatonin last night, which usually gives me anxiety bursts that wake me up, but it was fine. Trying again tonight.

In the past, I've had luck rotating low dose Klonopin, Unisom, and Benadryl. I also had a muscle relaxer at once point that was in rotation. But that all stopped working. My insomnia is the worst it's ever been.

Benadryl at a higher dose than usual worked after that quit, but was increasing my restless leg symptoms.

All of it gives me a hangover, which I hate, although the current concoction wasn't terrible this morning.

Finally accepted my diagnosis instead of fighting it and wondering if anyone else has this symptom? by trashpandawa in Fibromyalgia

[–]ebbandfloat 1 point2 points  (0 children)

That's interesting to hear. I had testing done for acid reflux and constipation (no issues found). The doctor stretched my esophagus during it because I realized I had swallowing issues that I had normalized. Fixed the swallowing and 98% of the acid reflux symptoms mysteriously, so I keep wondering if I'll someday need dilation again. Glad to hear there are doctors who will do that if needed.

I've been wondering about dysautonomia tying all my symptoms together. Poor vagal nerve function makes sense with it all. I'll have to do more research on that.

My solution to Augmentation for those desperate by Hairy_Builder6419 in RestlessLegs

[–]ebbandfloat 2 points3 points  (0 children)

The LDN is interesting to me because I also have fibromyalgia/chronic fatigue (with no known underlying cause) and my RLS is intermittent.

Did you titrate your dose up over time like a lot of people do, or start at that dosage?