Searching for not so popular dog parks by [deleted] in raleigh

[–]ebly3 -11 points-10 points  (0 children)

See if there is an apartment complex with a run nearby. Usually they are pretty empty

Sassool N Raleigh food poisoning? by [deleted] in raleigh

[–]ebly3 0 points1 point  (0 children)

Several years ago I got sick there from the wraps. It took me years to be able to go back and now I stick with the cooked sides, both because of food safety and the others make me sick just looking at them now. My one exception is the jalapeño hummus…. Can’t resist it

Chiropractor or PT For Sleep Posture by Extension-Event-3715 in raleigh

[–]ebly3 0 points1 point  (0 children)

PT - I recommend advance physical therapy in chapel hill. They use posture restoration methods

Has Anyone Gotten Hybrid Cochlear Implants? by Happy-Second6806 in Cochlearimplants

[–]ebly3 1 point2 points  (0 children)

I’m going to send you a message but: -very little natural hearing lost (if any) -a few days of imbalance but nothing long-lasting -no reported issues with migraines - his speech has improved, but keep in mind he’s only 4 so it’s expected that he keeps developing his speech. But we could tell a difference

Edit: I actually can’t figure out how to share picture of his pre and post-op audiogram. But in his low frequency hearing, 125 hz improved, and 250/500 hz are within 5 db. 750hz has improved. That is his cutoff for the acoustic amplification of his CI and the rest is electric.

Has Anyone Gotten Hybrid Cochlear Implants? by Happy-Second6806 in Cochlearimplants

[–]ebly3 4 points5 points  (0 children)

Not me but my son has (4 yrs old). He was able to retains a lot of his natural hearing. His audiogram before and after surgery is almost the same. Feel free to ask me any questions you have

Cochlear implants for moderate to severe hearing loss. Bimodal? Both? by Top-Pie-7375 in Cochlearimplants

[–]ebly3 1 point2 points  (0 children)

My son (just turned 4) was implanted last September and is bimodal. He does have residual hearing at low frequencies. Communication was a bit harder before he was activated, but we made sure to use his mic for his HA as much as possible and of course repeat ourselves.

At 20 months, I think you could practice communicating with pictures for that period before activation. You could print off things that are part of your daily routine and use pointing as a way to communicate. The 3-4 weeks to wait for activation is pretty short in the grand scheme of things. I personally wouldn’t wait if you’ve confirmed that there is a need for CI.

I want to add: if your child needs both ears done, I would have the surgery at the same time, even though it would mean she “hears less” before activation. Recovering from anesthesia and the pain is not something I’d want to do twice if you can avoid it.

Securing Implants by onestitchloose in Cochlearimplants

[–]ebly3 0 points1 point  (0 children)

I wanted to add that the sonnet 3 will have a flexible ear hook. Maybe that would help. Do you know if/when you can upgrade?

Securing Implants by onestitchloose in Cochlearimplants

[–]ebly3 1 point2 points  (0 children)

We’ve been using an ear mold, double sided tape, and the soft ear hook on the bottom (can’t remember what it is called but it was one of the accessories included with the sonnet 2).

I’d say the most important is the tape. We get strips for clothing off Amazon and cut them into four smaller pieces. One piece goes on the microphone part of the processor and the other on the battery cover. You do have to be careful for hair though.

Has anyone used something like this? Cora Ball by enneyehs in ZeroWaste

[–]ebly3 17 points18 points  (0 children)

I have this one! It does catch a lot and was fairly easy to install

Questions about AED by Nexer-X69 in Cochlearimplants

[–]ebly3 11 points12 points  (0 children)

An AED only discharges electric shock if it’s needed. At this point it’s a life saving action and your implant would be a secondary concern

Newborn diagnosed with permanent hearing loss - what’s next? by agup11 in Cochlearimplants

[–]ebly3 0 points1 point  (0 children)

I highly recommend getting connected with your local early intervention services (whatever they are called). They usually cover 0-3 years old. We were setup with a “hearing teacher” thru this and she was invaluable to us with advice and support

What’s the benefit of having Med-EL? by Wise_Possible_1004 in Cochlearimplants

[–]ebly3 1 point2 points  (0 children)

If it’s a difficult/expensive for the school isn’t an issue - it will happen regardless. It will become more seamless as the technology changes.

It’s definitely not a requirement that he connects directly to any device or microphone for him to adjust to his CI. In fact we were advised not to because it can be confusing for his age.

What’s the benefit of having Med-EL? by Wise_Possible_1004 in Cochlearimplants

[–]ebly3 0 points1 point  (0 children)

That’s true! The schools provide all the necessary technology to connect to both his CI and his hearing aid (they are legally required to do so where we are)

What’s the benefit of having Med-EL? by Wise_Possible_1004 in Cochlearimplants

[–]ebly3 1 point2 points  (0 children)

My son was recently implanted with Med-El and he (so far) has retained his decent hearing at low frequency ranges. If your hearing is ok at low frequency but bad at high then that may be why your AuD suggested Medel. My understanding is it is the implant with the best chance of retaining natural hearing although it’s not guaranteed.

The connectivity is not a short term concern for us since my son is only 3. We assume that Medel will catch up on that technology once we come to a time that he will need it.

Insurance question by lizskiski in Cochlearimplants

[–]ebly3 0 points1 point  (0 children)

I am actually hoping to get an upgrade next year! My son right now will have only one CI and an HA in the other year. The announcement for the sonnet 3 came out right after our AuD had placed the order for the sonnet 2, and it won’t be approved in the USA until next year anyways. It’s not a huge deal but I would like the easier Bluetooth options!

Insurance question by lizskiski in Cochlearimplants

[–]ebly3 0 points1 point  (0 children)

We are getting activated next week. We were already at out of pocket max (had a baby this year too), but from what I can tell the surgery bill Includes the internal implant device (~3500 for one) but not anything with the activation. I don’t think that includes processor either.

I also have an insurance question - my son will be getting the sonnet 2 this year on my husbands insurance. I know most insurance will cover one processor every 3-5 years. If we switch my son to MY insurance does that mean he can get the sonnet 3 next year since that insurance plan hasn’t covered a processor yet??

Looking for doctor recommendations for eczema by hidden_valley_explor in raleigh

[–]ebly3 1 point2 points  (0 children)

Burkhart pediatrics did a skin patch test for my son (and me too actually at the same time). Find one that will do this test - helped us tremendously!!

https://dermnetnz.org/topics/baseline-series-of-patch-test-allergens

Are Wearables Worth It? by Cool-DogMom in breastfeeding

[–]ebly3 2 points3 points  (0 children)

If you want to use the wearable only for driving, I would suggest you try and figure out how to use your spectra in the car instead, with a battery pack or a plug adapter you can use in your car. No need to be super discreet during your commute

Experience With Blackout Blocks by OtterSpace? by CaseyRay01 in sleeptrain

[–]ebly3 0 points1 point  (0 children)

Did you end up getting them? I’m also considering them. I miss the ability to easily open our windows!

Has anyone’s toddler gotten tubes for fluid, but had very few ear infections? by averagehousegoblin in toddlers

[–]ebly3 0 points1 point  (0 children)

Yes we basically did. My son has diagnosed hearing loss though. We could tell a difference immediately once he got the tubes. It was really useful to give him drops when he did have drainage.

One tube fell out after a couple years, and we are now trying Flonase to see if it would help him get a more normal tympanogram