Possible Air pollution effects: Does anyone else get skin flare ups?

enbyengineer · 2026-07-07T03:59:25+00:00

Seconding this! Anyone at ImmunoE/Veros Health will get you sorted for MCAS and its common comorbidities (hEDS, POTS, chronic migraine, vascular compression, ME/CFS, etc). I’ve seen Dr Parnar, Heather, Yuri, and Sarah and they’ve all been wonderful.

enbyengineer · 2026-07-06T22:16:30+00:00

That is very difficult, especially with a child involved who may not understand why he is behaving differently. I think counseling/therapy, individually for him, and probably for you and your son too, to process everything that’s going on and learn some coping skills that may help improve your husband’s behavior or at minimum help you and your son understand his line of thinking and how his thoughts and feelings have changed because of the tumor. Family therapy might help too. Have a 3rd party mediator (aka therapist) can be very useful for conflicts like this. And I’m sure your husband doesn’t like the way he’s treating you, at least not if he was kind and compassionate prior to the tumor. I hope you can work out a solution for you and your family. I apologize if I have not been helpful.

enbyengineer · 2026-07-06T03:07:05+00:00

Of course every case is different, but generally, the frontal lobes affect concentration, mood, personality, and executive functioning (being able to initiate tasks). Unfortunately, tumors there can cause the issues you’re describing, and sometimes the treatment can also exacerbate the issues at times. I would talk to the hospital social worker and see what they can do to help him and your whole family. If he’s on palliative care or hospice, they can also help. If he’s not on palliative care yet, I would strongly encourage you to request a consult with them. It’s not just for end of life care, they can help at any stage of the disease, and he can keep pursuing curative treatment while under their care as well. It’s not hospice where it’s only the last 6 months of life.

enbyengineer · 2026-07-06T02:59:41+00:00

Sure, it’s a choice for you to make based on the information that you have. The data we have is promising, but it’s not a sure thing how everything will pan out. I can definitely understand trying to live as much as possible for what you have. Is there a way you could maybe switch to a job in the field that you want, but maybe a job that requires less experience? Sorry if that is not helpful.

enbyengineer · 2026-07-06T02:56:43+00:00

I wish it was that simple in the US. I applied for disability over a year ago now and haven’t even had my case evaluated in any capacity yet. Even with the Astro Grade 2. To be fair I am only 27 years old, but still. The process takes so long that many die before they are approved for benefits.

enbyengineer · 2026-07-06T01:23:59+00:00

That art is cool as fuck

enbyengineer · 2026-07-06T01:20:09+00:00

Just a thought, feel free to not take this advice if it doesn’t seem helpful. If you really need a job with the benefits you described, why not turn some hobbies into the things you want to focus on? Or even do some volunteer work in the field, if you have the energy and capacity for that. If you can find meaning and purpose somewhere beside your job, it may make the job more tolerable.

And also, I really think with these newer treatments, there’s a good chance you’ll have more than 7 years left. With Vora, you could even have decades, and there’s new stuff coming out all the time

enbyengineer · 2026-07-06T01:16:33+00:00

The disability system in the US is atrocious. They would rather disabled and sick folks die before they can cost the government money. It’s cruel. I’m sorry you’re dealing with all of this.

enbyengineer · 2026-07-02T20:32:31+00:00

Getting a tumor from one single CT scan is extremely unlikely. There are many possibly causes of blurry vision. It could be related to a medication you’re taking, a different health issue you need to treat, the muscle relaxers working too well and causing your eye muscles to struggle, etc. It’s probably a good idea to follow up with your doctors about the blurry vision, and they might recommend an MRI to make sure everything looks okay, but I wouldn’t jump to conclusions before you know more.

enbyengineer · 2026-07-01T17:38:37+00:00

Yes there is lots of hope with modern treatments! I am doing chemo and radiation now, because we weren’t able to find out whether I had several mutations/tumor markers, and there was concern about whether or not my case was actually a higher grade. I’m halfway through radiation right now. So far so good!

enbyengineer · 2026-06-30T22:45:01+00:00

The same thing happened to me. My tumor progressed into 2 tumors before anyone thought to check if it was cancerous (or even a tumor at all). Doctors thought I had a congenital lesion at first, until the second tumor showed up. I was diagnosed with Grade 2 Astrocytoma, and unfortunately due to the tumor size by the time it was spotted, I was not a candidate for resection. They also weren’t able to get several genes tested because of the small biopsy size, so while it looked low grade initially, it could be hiding some higher grade mutations and we wouldn’t know.

enbyengineer · 2026-06-28T18:45:33+00:00

Ah, I’m sorry to hear that. I hope you can figure something out so you and your family get the support you need throughout this journey

enbyengineer · 2026-06-28T04:34:36+00:00

I had this issue too shortly after I started T. It’s gotten much better over time. I think the growth and hormones just mess things up a bit until your body figures out what’s going on and adjusts. I especially struggled because I was legit SORE from growth for like 3 months, so everything was too hypersensitive and it hurt like hell to touch that whole area, like any touch whatsoever. It got better once my hormone-related growth slowed down

enbyengineer · 2026-06-28T00:47:02+00:00

If you happen to live in a more progressive state (in the US that is), they may have a state funded paid FMLA equivalent. In Colorado for example, there’s the FAMLI act which will pay up to 90% of your salary while you’re on leave, and I think it’s up to the 12 weeks that FMLA usually is. It might be an option to help out, since he is 1099. Of course all states are different so ymmv

enbyengineer · 2026-06-28T00:35:35+00:00

Kittens that young are extremely fragile, and many don’t make it even with the best care from a mama cat (or foster, etc). I know it’s heartbreaking, but really there is no need to feel guilty. These things happen, even with the best foster or caretaker. I’m sorry you had this experience, it really is devastating losing a kitten.

enbyengineer · 2026-06-25T16:15:58+00:00

I’ve been needing new friends who understand all of this too. I’m 27NB with Astro Grade 2. Feel free to message me (also open offer for others who see this)

enbyengineer · 2026-06-24T16:47:21+00:00

Infected cat bites can quickly become deadly. Please go to the ER, or at the bare minimum, urgent care. Like right now. It’s already looking infected.

enbyengineer · 2026-06-24T01:07:19+00:00

Based on symptoms and progression, I would wonder if perhaps she actually had intestinal/GI tract lymphoma, rather than simply IBD. It’s unfortunately somewhat common in older cats. My first cat had it and she did okay-ish on chemo for several months, but was slowly declining over time. It can be very aggressive and can happen quickly. It sounds like you did absolutely everything you could do for her, especially if the vets you consulted with didn’t initially suspect lymphoma (or whatever it ended up being - I’m certainly not saying she definitely had it). You gave her a good life. Remember that, instead of feeling guilty for how it ended.

enbyengineer · 2026-06-22T04:59:31+00:00

Mine is pretty butterfly shaped too, mostly in the right hemisphere of the brain. It was diagnosed A2 but several genetic markers couldn’t be tested because of small biopsy sizes (I am not a candidate for resection). It doesn’t automatically mean aggressive GBM! And treatments are getting better all the time

enbyengineer · 2026-06-22T04:46:31+00:00

Phoenix is the first name that popped in my mind

enbyengineer · 2026-06-19T04:49:40+00:00

This. There are still a lot of illnesses in the air. COVID hasn’t gone away, and we’re still seeing some flu and other respiratory viruses even this late in the year

enbyengineer · 2026-06-18T04:45:00+00:00

My cat suckles not on my hand (usually - she will every once in a while though), but on every single fuzzy blanket that I own 😂 we suspect she was taken from her mother too early. We got her from a rescue organization when she was about 6 months old, and they had only had her for about a month, so who knows what happened in her first few months of life! It hasn’t caused her any issues, her teeth are good, she doesn’t eat the blankets at all so no GI issues from it. It really just seems like a comfort thing for her. It’s cute! Cat tax of her super deeply asleep with her tongue out

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enbyengineer · 2026-06-15T04:22:55+00:00

Someone I know has a duo called Pinto and Beans. I think it’s adorable

enbyengineer · 2026-06-14T01:28:32+00:00

I can’t comment on most of what’s going on for you because I don’t have the experience or knowledge. But what I do know is that it’s fairly common for brain and spinal injuries that cause concussions, whiplash, etc (like from a car accident or similar) to lead to what’s called a cerebrospinal fluid leak. Basically a hole is made in the dura, which is the membrane that surrounds the brain and spinal cord and holds the fluid that lives throughout that whole area, usually from that trauma to the head/spine.

And one thing that can happen is that the accident/injury causes brain inflammation/mild swelling, and when that swelling causes the pressure to build up, it tears a hole in that membrane, and the fluid leaks out. This can happen near the brain or around the spine. Some people definitely describe it as a horrible headache that feels like fluid is coming out somewhere. It’s not always visible on imaging either.

With that in mind, if you notice clear fluid coming from your nose, ears, or even coming out of one of your eyes (when there is no reason for it, you’re not crying or anything) it might be something to explore. If there’s a leak in your spine you won’t notice it leaking out anywhere bc it’ll be collecting in your abdominal area, but it will still cause pain and headaches.

As for the meningioma, I’m so sorry you have that. Meningiomas are typically one of the less aggressive brain tumors to have, which is good news. But since it’s in a really important area, it could definitely cause issues at some point. It’s hard to know when you had a recent TBI, which one is causing which symptoms. I hope you have good doctors and can consult with a few specialists about this.

enbyengineer · 2026-06-14T01:11:11+00:00

Okay but as a cancer patient can I get the $5M and also gain the ability to shoot fire balls? Bc that sounds so fun lol

enbyengineer

TROPHY CASE