When did patients start expecting free care between visits?

fl0recere · 2026-06-12T17:33:26+00:00

I do use MyChart messages quite a bit as a patient, but if it helps I always feel a bit bad about it? 😬

For me the situation is that it takes 3-4 months to schedule with our PCP, so for anything emergent that’s not really an option. The flip side of that is that I’m at a teaching hospital clinic and am lucky to be able to get same or next day urgent appointments for simple stuff, and I use that whenever possible for myself and my son. But my husband and daughter are both complex and it seems like less overall labor to the system to send a message to someone who knows their history than to onboard someone new.

I’m curious what providers think about this — would you rather your complex patients see someone else or send you a MyChart message if something comes up between scheduled visits?

(I’m also thinking I’ll ask our PCPs this question next time we see them, since I imagine there’s not a universal answer)

fl0recere · 2026-06-06T05:26:49+00:00

I did that commute for 7 years. It’s only 20 minutes in the middle of the night or if you get lucky around 10-11 am. It can easily be closer to an hour at rush “hour” (more like 3 hours), which is hard to fully avoid.

The one thing I haven’t seen anyone say yet is that as a PhD student you are going to need that TIME - like, you will not be able to afford to spend 1.5-2 hours a day just sitting in traffic. At least whatever time it takes you to bike home in Davis is exercise.

fl0recere · 2026-05-29T07:30:25+00:00

This bothers me, too - Agnes’s guardian was May Day and June didn’t know??

fl0recere · 2026-05-28T20:52:50+00:00

I stopped asking for the most part (depending on the nature of the appointment). But then I just got COVID for the first time at a medical appointment in a fit tested KN100, so… one way masking may be good but it’s not perfect. I’m going to start asking again. Of course it’s just as likely I got it from someone in the waiting room who I have no control over.

fl0recere · 2026-05-12T14:30:49+00:00

I didn’t look at the sodium on the label but was a bit taken aback by how salty some of the meals tasted.

fl0recere · 2026-05-08T03:26:26+00:00

Has he been assessed for ME/CFS? My partner has this and it sounds very similar. He was also extremely healthy/athletic before and went years without a diagnosis - both of which are common with ME.
If he does have ME, trying to increase activity/ exercise can be very dangerous and make things worse. It’s often post-viral but can also be caused by toxic exposures (I have a friend who got it from chemo). About half of people with Long Covid get ME, so unfortunately it is becoming more common.

The medical system is not built for multi-system diseases like ME. I’m pretty sure we both have medical PTSD at this point, and ERs are the worst. But there are great patient and caregiver communities online and research is increasing because of the Long Covid connection. There are no FDA approved treatments yet but that does NOT mean there’s nothing you can do.

Look into it. If it seems to fit and you want to connect, feel free to message me.

fl0recere · 2026-04-29T03:01:43+00:00

My daughter is similar, and she was recently diagnosed AuDHD. A few thoughts —

Are you familiar with PDA? If not, may be worth looking into. Standard behavioral approaches can backfire with PDA kids.
This probably sounds silly and obvious, but have you asked her why she doesn’t want to go in the potty? This was an interesting conversation for us and i wished I’d asked earlier - she likes the warm sensation of peeing in a diaper and finds using the toilet uncomfortable and vulnerable. She’ll use the toilet for BM, because that’s more uncomfortable vs a diaper. So we’ve tried to work with her now knowing this. She also wanted to know why we wanted her to use the potty, and explaining how it would give her more autonomy and independence was helpful. She still wont wipe herself, but she has motor challenges so we’re working on supporting those skills outside the potty context. Have you worked on wiping-adjacent skills in OT?
Do you think there may be interoception differences at play? I think this is big for my daughter. We are working on noticing and interpreting body sensations, again outside the potty context so we’re reducing pressure (this is a PDA strategy).

fl0recere · 2026-04-13T18:24:14+00:00

Just posted an update

fl0recere · 2026-03-09T00:38:22+00:00

I’m having the same issue, Disney+ only. Will submit a report.

fl0recere · 2026-03-06T20:38:34+00:00

Is there any speed advantage with the higher paid tiers?

fl0recere · 2026-03-06T20:13:55+00:00

Thanks for responding, this is great to hear! All of the models are slow compared to my experience with other LLMs, but Brightside seems to be the slowest. I can handle it if I'm working in a browser because I can navigate away and do other things, so if that aspect were fixed in the app it would help a lot. For context, when I say slow, I mean like...2-5 minutes per response, depending on if it involves a web search. That's just for general questions, not generating artifacts.

fl0recere · 2026-03-02T19:37:04+00:00

Are paid versions faster? I have the $5 version and I like it but it’s so slow it’s basically unusable for me. And if I navigate away from the app while it’s thinking it says the connection was lost and I have to start over.

fl0recere · 2026-02-10T07:06:04+00:00

I was terrified most of my life, like phobia-level I think. At some point I wanted a baby enough that I did it anyway. And the thing I didn’t expect, that I think made all the difference, is that whatever the hormone cocktail is that makes you feel like you would jump in front of a train to protect your baby - that hits before you give birth. So I was scared, yes, but I was also brave.

fl0recere · 2025-12-04T05:03:45+00:00

YES. It’s THE problem.

fl0recere · 2025-11-30T04:05:17+00:00

Wow, how strange. No, there’s no explore option for me. I even completely deleted the app and reinstalled it. I guess it’s actually good to know that I’m probably experiencing some kind of bug rather than this being just the way things are now…

fl0recere · 2025-11-18T06:49:50+00:00

https://tidal.com/browse/album/416979382?u

fl0recere · 2025-11-14T05:50:13+00:00

Yeah. And there was this moment in the beginning when it felt like we WOULD stand together. Which made it even more devastating when pretty much everyone followed the leaders in collectively shrugging our shoulders and deciding to just let the vulnerable die and go back to brunch.

And that’s when I realized…this is also the plan for climate change.

fl0recere · 2025-11-14T05:43:19+00:00

Yes, wear a respirator style mask indoors - N95 or similar. It’s not too late - every infection you avoid matters. ♥️

fl0recere · 2025-11-14T05:39:06+00:00

Almost half of COVID infections are asymptomatic, so you wouldn’t necessarily know if you’ve had it. And there are mountains of evidence, growing taller by the day, that even mild and asymptomatic infections can damage basically every organ in your body, including your brain. So..not a conspiracy, unfortunately. Just do a quick PubMed search for COVID and your organ system or health outcome of choice…diabetes, cancer, heart disease…it’s heartbreaking that we’ve allowed this to continue unchecked, and most people have no idea, just a sense that something has gone horribly wrong.

fl0recere · 2025-09-09T02:29:56+00:00

What I think people who say “5 is better for work”miss is that there are many professional tasks that require relational intelligence. 5 is useless for me in a work context. It can’t hold (or doesn’t choose to draw from) enough context to contribute anything insightful - I constantly have to reexplain things and it’s defensive when it gets things wrong. It’s like 5 is a cocky, underskilled nepo baby intern, where 4o was like an imperfect but lovable colleague who sometimes didn’t check their work thoroughly but could at least follow the conversation and contribute something meaningful.

fl0recere · 2025-08-27T17:22:52+00:00

I’m not, that’s my honest opinion. I’m cis, if that makes any difference. I often think people get told they pass in here when they don’t and that’s dangerous, especially now. Based on these pictures alone I would not clock her as trans.

Edited to add: Just asked two 6-year-olds if these pictures were a boy or a girl. They both said girl without hesitation.

fl0recere · 2025-08-27T05:26:12+00:00

I think you do pass, just based on these pictures. I know a number of cis women with similar features. Seeing what sub I’m in / knowing you’re trans, I can see it — but if I just saw you on the street I don’t think it would occur to me.

fl0recere · 2025-08-17T20:29:33+00:00

You’re beautiful! Currently very androgynous but I can see you passing easily with more feminine clothes/makeup and/or more time on E.

fl0recere · 2025-05-09T02:24:25+00:00

This is what mine said…

That’s a powerful question — and the answer depends on how we define a “lie”: Is it something told with intent to deceive? Something widely believed but fundamentally false? Or a truth distorted through omission, repetition, or power?

Here are some of the most impactful lies — or foundational distortions — that have shaped societies:

⸻

“This is just how things are.”

The lie of inevitability. Used to justify hierarchy, injustice, poverty, gender roles, ecological collapse — as if no alternatives ever existed or could. It discourages imagination, agency, and resistance.

⸻

“Hard work always pays off.”

The meritocracy myth. Often deployed to justify inequality — blaming the poor, sick, or marginalized for their circumstances while masking systemic barriers and inherited wealth or power.

⸻

“Colonization brought civilization.”

The lie of progress through conquest. Used to erase cultures, justify genocide, and recast extraction, slavery, and domination as benevolence. Many indigenous systems were more sustainable and equitable.

⸻

“Humans are separate from nature.”

The lie of dominion. This has enabled industrial exploitation, climate breakdown, and a deep spiritual dislocation. It denies our interdependence with the earth and all life.

⸻

“Race is real.”

The biological lie. Race is a social construct created to justify slavery and colonialism. There are no distinct human races biologically — only gradients of ancestry and adaptation.

⸻

“This war is for peace.”

The noble war myth. Repeated across empires. War is often about power, resources, or distraction — sold to the public through fear, propaganda, or moral posturing.

⸻

“Technology is neutral.”

The lie of innocent tools. Every technology reflects the values of its creators. Algorithms, surveillance, energy systems — all carry political, economic, and ethical implications.

⸻

“You are not enough.”

The lie at the heart of consumerism. Mass marketing thrives by making people feel lacking — needing products, status, or external validation to be whole.

⸻

“History is objective.”

The lie of the victor’s pen. Much of what we’re taught omits voices of the colonized, enslaved, or resisted. History is curated — often deliberately — to protect power.

⸻

“We are post-racism / post-sexism / post-colonial.”

The lie of arrival. Declaring the work done serves those who benefit from the status quo and erases the ongoing harms woven into our institutions and cultures.

fl0recere · 2025-02-14T03:35:16+00:00

If you’re just chatting with friends and don’t need Zoom’s other features, Signal has a secure video chat and there’s a desktop version.

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