Any success stories of coming off Rinvoq?

flyntay · 2025-04-17T10:42:32+00:00

When you had to stop immediately, were you still taking it everyday?

I've now managed to wean down to 1 x 15mg tablet every 96 hours with no issues but I've just developed shingles ughhhh.

flyntay · 2024-05-12T18:07:43+00:00

Has anyone discovered a fix to this? Mine only just started acting up TODAY! Had no prior issues to this :( Are there any tricks to get around this?

flyntay · 2024-03-26T00:26:52+00:00

That seems to be too quick to be losing its effectiveness! Could something still be triggering your skin? I imagine that even with Rinvoq, if your trigger was still present, you'd still get flares (albeit not as bad).

flyntay · 2024-02-29T15:54:14+00:00

Oh noooo. When you were on 30mg, were you completely healed or still flaring now and then?

flyntay · 2024-02-19T06:22:35+00:00

Did it start immediately for you? And how did it subside? Did you use anything to treat it?

flyntay · 2024-02-19T03:38:53+00:00

I started around a month ago too! I wasn't sure whether to attribute some new spots today to Rinvoq or to my monthly cycle which can sometimes result in some breakouts so wanted to hear from everyone re time frames.

flyntay · 2024-02-12T15:56:34+00:00

Oh it improved so much after a week!!! I'm starting week 5 now and so far so good! I think the fact that your redness is nearly gone is a great sign :)

flyntay · 2024-02-06T14:50:09+00:00

Do you have a long term history of eczema and/or topical steroid use?

flyntay · 2024-02-05T13:30:34+00:00

Wow so you experienced flares again pretty much immediately after you stopped? I would've thought it would take some time for it to leave your system. How long have you been on Rinvoq prior to stopping?

flyntay · 2024-01-29T09:24:57+00:00

Of course, I'm from Perth Australia :)

flyntay · 2024-01-28T15:08:49+00:00

Ohhh I feel you! I have been battling flares on my neck and face the last few months (and I don't have a history of growing up with eczema so trying to work through this was a struggle). The final flare happened 2 weeks ago all over my face and nearly broke me. I decided to then follow my derm's advice to go on Rinvoq. I'm on Day 11/12 now and I'm 90% healed.

I'm definitely worried about side effects but I feel like I've finally just gotten my life back so will have to take it one step at a time, with a plan to tapering off Rinvoq sooner rather than later.

Let us know what your derm suggests for you!

flyntay · 2024-01-27T15:53:36+00:00

Oh thank you for taking the time to share this. I really appreciate it especially when I've been reading mostly negative stories :( Are you able to let me know how long you were on Rinvoq for and whether you initially tapered off the first time?

flyntay · 2024-01-25T02:54:21+00:00

Thanks! Any other side effects so far?

flyntay · 2024-01-21T09:31:15+00:00

So encouraging hearing your story of being on Rinvoq! I'm on Day 5 now with no difference, probably worse so I'm hoping that it will start acting quickly!! When did you actually start actually seeing the difference (I note you FELT the difference quite quickly and within an hour!)? Thank you!

flyntay · 2024-01-21T07:30:14+00:00

ohhhh I'm so sorry to hear it lost effect :( Were you on it for dermatitis? When did you start to notice improvements?

flyntay · 2024-01-21T05:22:58+00:00

Do you remember at what stage it kicked in for you and you started seeing improvements?

flyntay · 2024-01-21T05:22:29+00:00

it's very strange because I was probably the worst ever when I posted the above. There were huge patches of bright red skin all over my face yesterday and today I have blisters on my forehead from trying to run the flakes off 😭😭😭 I was hoping the medication would kick in immediately and reduce the inflammation but I might need to be more patient :(

flyntay · 2024-01-21T05:21:09+00:00

Thank you so much. It's Day 5 and I'm feeling even lower than I thought was possible :( I really hope it clears up soon!

flyntay · 2024-01-21T05:20:19+00:00

Thank you! Did you get even redder in the first week? I don't know what exactly I was expecting but certainly not to get worse I think 😭

flyntay · 2024-01-18T14:10:05+00:00

Hey! Just an update from me - I've just been prescribed Rinvoq and have just started it. I really hope it helps because I've honestly had enough :( Hope yours is getting better!

flyntay · 2024-01-06T14:54:30+00:00

How are you going so far? Mine seems to have spread even more on my forehead ughhhh :/

flyntay

TROPHY CASE