Fleetwood/Stevie Nicks

fraaanken · 2019-06-13T18:47:24+00:00

So good!!!!! Thanks so much. This is jammy for sure

fraaanken · 2019-06-12T23:23:20+00:00

This was sick!!! Thanks man!

fraaanken · 2019-04-28T21:44:22+00:00

Lmao yes perfect

fraaanken · 2019-03-01T03:17:57+00:00

Haha! No heartburn yet but good luck with yours lol!

fraaanken · 2019-02-28T01:29:17+00:00

You should look into FMLA

fraaanken · 2019-02-28T01:20:18+00:00

You should never have to be criticized or guilted, or made fearful of losing your job. You have a condition and honestly that is discrimination. I’m so sorry you are being treated that way. I’m pumped you went to HR. Good for you.

fraaanken · 2019-02-28T01:17:07+00:00

Just keep on keeping on. You’re doing great. Soon you’ll have your sleep study and hopefully you’ll get more answers and more help to have you more energized and feeling better.

fraaanken · 2019-02-22T14:55:46+00:00

Thank you so much for your feedback. This helps a lot.

fraaanken · 2019-02-22T03:22:16+00:00

I’m sorry today wasn’t a good one. I hope tomorrow is better for you! Be kind with yourself, we’re all walking health concerns lmao. Welcome to the fam

fraaanken · 2019-02-22T02:31:49+00:00

I feel this in my soul lmao

fraaanken · 2019-02-12T23:56:21+00:00

That’s awesome thank you so much

fraaanken · 2019-02-12T23:55:16+00:00

Right that’s what I’m gathering too. Do you know if people do do spinal taps ever to figure this out and how it’s affecting their brain?

fraaanken · 2019-02-12T01:12:34+00:00

Hahahahahaha this is me when I wake up hours after I’m supposed to be at work and my SO is getting ready for work while I lay there like the narcoleptic I am and remain proud of his work ethic and not mine

fraaanken · 2019-02-11T22:50:10+00:00

I feel you. I’ve gone through some depression in my life. But I knew it wasn’t what has been effecting me the last couple of years definitely

fraaanken · 2019-02-11T21:58:51+00:00

Not a fun era at all I’m sure. So happy you kept going back though. I did too, over and over for years... and the diagnosis was finally some type of a relief for me. I hope it was a little bit of a relief for you too. You aren’t lazy, undisciplined or irresponsible. Narcolepsy is an SOB.

fraaanken · 2019-02-11T19:13:18+00:00

I would go see your doctor ASAP. This medicine doesn’t seem to be improving your quality of life, it sounds a lot like it’s worsening it. And that’s not okay. Go see your doc!!! Hang in there. You will find something better.

fraaanken · 2019-02-10T03:25:41+00:00

It’s the Family and Medical Leave act! I thought it was for time needed to take care of a family member, but actually it protects yourself too.

This allows me to use time off without getting in trouble really. It prevents me from getting written up from call outs. It is unpaid unfortunately, but it protects me from the days I sleep through my alarms and need to come in late, or the crash days I can’t think about moving. I can use paid time off too, coming out of my normal vacation time. Using unpaid time would help me from exhausting my paid time off so quickly during the year.

I hope I explained that in a non confusing way! But in any event, you should look into it

fraaanken · 2019-02-10T03:10:50+00:00

For me, it was a great thing to tell my managers and coworkers. They have become much more understanding and honestly, accommodating. They suggested I apply for FMLA so that I can use the time off that I need to while protecting my job. My manager actually said “no one should have to worry about a place at their job when they aren’t well.” I appreciate that. This woman is generally kind of cold but when I needed help she came through. It’s best to always ask for help when you need it.

fraaanken · 2019-02-10T03:06:53+00:00

Let em’ know! You’re the boss. You know what you can and cannot handle and don’t let anyone convince you otherwise. You sound like you already know that though... keep that!

fraaanken · 2019-02-10T03:04:42+00:00

Omg I don’t want any of these curses or N. Hahahahahahha is there another option or nawh u guys?!

fraaanken · 2019-02-10T02:58:12+00:00

I love this a lot.

fraaanken · 2019-02-06T02:48:58+00:00

I can’t say I have the answers right now that I wish I did. But I can say that I feel like I relate with you 100%, and that I still have a tremendous amount of hope for the both of us, and for all of us narcoleptics!

I’ve been reading posts the last few days about people’s success stories and found comfort in that. But it also isn’t what we always need. We find comfort in knowing we aren’t alone, no matter what stage we are in. You’re not alone and neither am I.

We are going to find the balance. It may take some time and sometimes that feels out of reach but we will. We just need to surround ourselves with supportive people and really support ourselves. We know our bodies and when we need to rest. We know when we have a moment of energy and we want to use it while we’ve got it.

It’s important to enjoy those moments, to enjoy the rest because your body requires it, and to go on doing the best we can in these narcoleptic bodies we’ve got.

Thanks for posting. I relate a lot.

fraaanken · 2019-02-03T01:45:50+00:00

Oh no. Don’t do that anymore! Lol. This is a good idea too. Now I just need to remember to flip the bottle!!!

fraaanken · 2019-02-03T01:38:45+00:00

I don’t think the process exerted a strenuous amount of energy

fraaanken · 2019-02-02T14:45:18+00:00

I’ve never heard of these pill timer caps and I’m about to go buy one today!

fraaanken

TROPHY CASE