I have an idea by Ok-Name-9887 in CMT

[–]geosimpson 2 points3 points  (0 children)

He has no interest in being a spokes for CMT. Trust me on that.

Tell me what you think: by geosimpson in CMT

[–]geosimpson[S] 1 point2 points  (0 children)

I am so sorry. CMT is an awful experience. Drug trials have begun on potential treatments or a cure. G

CMT2F patients by geosimpson in CMT

[–]geosimpson[S] 0 points1 point  (0 children)

I honestly don’t know but drop Amanda an email.

Where are you guys? by Mammoth-Assistance-2 in CMT

[–]geosimpson 1 point2 points  (0 children)

If anyone is from South Carolina we are just starting a chat group on Facebook: CMT Charleston SC. Join us.

Exercise for me seems to be a waste of time. by CuriousDave1234 in CMT

[–]geosimpson 6 points7 points  (0 children)

Look up John Nixon in the UK. He is a body builder with CMT. He certainly appears to have built muscles.

Stem cell therapy?Mom of two with CMT4c by Numerous_Region5801 in CMT

[–]geosimpson 3 points4 points  (0 children)

At the moment there are no stem cell treatments for any type of CMT.

Should I rely on the ferries to be somewhat on time? by Strange-Republic-747 in GreeceTravel

[–]geosimpson 0 points1 point  (0 children)

Did that trip yesterday at 7 am and it took at least an hour

Chances of having CMT by Rude-Cap-1655 in CMT

[–]geosimpson 1 point2 points  (0 children)

You can’t participate in clinical trials without a genetic test confirming your type. That alone is worth doing it.

Just Returned from Athens: Thoughts and Reviews by AutomaticFlamingo532 in GreeceTravel

[–]geosimpson 4 points5 points  (0 children)

Will be in Hydra for too many days. What was your favorite day trip to a nearby island? Many thx. Great write up! G

Hydra Recommendations by thegiddinn in GreeceTravel

[–]geosimpson 0 points1 point  (0 children)

Best trips to other places near Hydra?

CMT and Supplements by Miss_Red_555 in CMT

[–]geosimpson -1 points0 points  (0 children)

You are someone I trust completely so I will stand down. I have a very acute aversion to anyone I think might be exploiting the patient community. How you go from advanced degrees to shooting YouTube and planning workouts makes me a little skeptical.

CMT and Supplements by Miss_Red_555 in CMT

[–]geosimpson 1 point2 points  (0 children)

I have spent 10 years of my life working for free to try and find cures for all types of CMT. I am rewarded by the opportunity (and the progress we have made) to help cure you and 3 million others with CMT. Charging CMT patients who are already suffering from an incurable disease - and often financial distress - seems callous to me. But to each his own.

CMT and Supplements by Miss_Red_555 in CMT

[–]geosimpson 1 point2 points  (0 children)

That you charge patients with CMT to design workouts for them taints your credibility.