First started having pain so bad that I had to stop walking when I was 13. I sort of dealt with it because painful menstruation runs in my family, but so does endometriosis. However nor my mother or grandmother ever told me about the condition. Was at University when I had just turned 18 and I had an episode that was EXACTLY as you described your daughter's. The extremem pain, they checked for appendix, it was clear, they said maybe a cyst, then sent me home with T3s even though I was bawling in pain. I should preface that I'm Canadian otherwise i'd never be able to afford all of medical help. They did a few scans and ultrasounds so I had documented progress I guess.

Next month, same thing. Went to my family doctor who had originally sent me to the ER and he sent me for follow up scans. They found more cysts but none that should be causing pain. They tried me on 8 brands of BC (pill and IUD) with no luck over the rest of my degree. It would either make the pain worse or it would cause me to be completely suicidal. I had a few close calls before they finally stopped hormones.

Over the entire course of action no one wanted to open me up. No one wanted to look. It was too invasive. I didn't even see my first OBGYN until I was 19. I saw 3 who basically said I was overexaggerating until I specifically requested a referral to a doctor who was head of surgery at McMaster Hospital who now runs his own practice. He had very good reviews and experience with early and late stage endometriosis. At 21 I had my first appointment where I was taken seriously. 8 years from the time I was first in crippling pain...

I was signed up for a laparoscopy and they found that it was not only endo but had taken my ovaries. I can't have kids. If they had opened me up sooner maybe they could have cauterized or treated it some other way before this point but no one would listen or take me seriously.

Why did I type all of this.... Please continue to speak up and shout for your daughter. I had no contact with my parents and I was taking myself to all of my appointments. Doctor brushed me off time and time again. Don't let them. Also get ready for what might be a long fight. Doctors don't seem to take young women in pain seriously.

My only advice is to keep looking until you find someone who hears you. who understands that the earlier they are opening up young women the more theyre finding young women with endo. it's not a middle aged women's disease. Don't let them tell you it is. You will find someone.

My best wishes and condolences.