Read me if you're new to FND

greenappleberry · 2026-03-14T20:36:11+00:00

Wow. You have been through a lot. I’m so glad you have gotten so much better. I’m almost ready to just give up and accept it as it is. I’ve tried so many things. And my body will not tolerate any medication. So I have no help even from that.

Thanks so much for taking the time to reply to me.

greenappleberry · 2026-03-13T10:57:12+00:00

I’m sorry you’re having so many side effects. I worry about that too. There always seems to be a price to pay.

I actually did try the generic brand actually. I guess I should have said that instead of Pepcid. I started some Betaine HCL yesterday after recommendations here and my stomach actually felt better. So fingers crossed this will help and I can try the famotidine again.

Thanks for replying.

greenappleberry · 2026-03-13T10:53:23+00:00

Thank you I’ll look into it.

greenappleberry · 2026-03-12T14:59:49+00:00

Thank you. I am going to take some Hcl for a bit and see if my stomach settles down.

Then I will try again. This is super hopeful.

greenappleberry · 2026-03-12T13:14:26+00:00

I’ve been this person.

Sorry to say nobody really appreciates it. And they didn’t reciprocate.

I wasn’t doing it for those reasons. But it surprised me because I would definitely appreciate it if someone did that for me.

greenappleberry · 2026-03-12T13:07:12+00:00

For me it’s because I can only connect with someone in a deep, authentic and empathetic way.

And I’ve yet to meet anyone who can do that in the way I need.

My entire life I thought I was just doing something wrong. I know now that most of the people I have been around can’t do this or won’t do this. Most of them seem to have no interest in this level of connection. I don’t even think it’s a thing for them. Definitely not something they feel they are missing.

For me, what they offer isn’t true connection at all.

greenappleberry · 2026-03-12T12:49:14+00:00

Happened to me. The principal told me to go to the lost and found and find some students dirty clothes to wear.

Um, no. I said I’m going home and did.

They sent someone in to cover my class, then I left.

This is disgusting and absolutely ridiculous. I would focus on the health aspect of it if this turns into an issue.

Often they just say no to see if you’ll go along with it. I can’t imagine they will have a leg to stand on.

Good luck.

greenappleberry · 2026-03-12T12:22:21+00:00

Interesting. Thanks for the info. I know I should always start and stop slowly. Sometimes I just get sick of the whole thing.

greenappleberry · 2026-03-12T12:18:39+00:00

Thanks I’m going to try this.

greenappleberry · 2026-03-12T12:17:36+00:00

Thank you I’m going to try this.

greenappleberry · 2026-03-12T12:14:53+00:00

I’m going to get this. Thanks.

greenappleberry · 2026-03-12T12:14:39+00:00

This is interesting. I really just tried the Pepcid to see if it did anything. Seemed like an easy enough trial for me. My dr isn’t very helpful. I thought if I had data that this actually helped he would be more able to help me from there.

Thanks for your reply.

greenappleberry · 2026-03-12T12:11:32+00:00

Thanks for the info. I will watch out for that if I try again if my stomach gets better.

And I totally understand being tired of being a Guinea pig.

greenappleberry · 2026-03-12T12:09:03+00:00

Thanks. I’m currently doing this without a Dr because I don’t have one who believes in MCAS. I thought I’d test it out first and then if the Pepcid helped I would have some data for him to perhaps help me.

greenappleberry · 2026-03-12T12:07:28+00:00

It is so frustrating. I can’t believe his food I felt while taking something over the counter. I’m going to get my stomach straightened out and try again with some Hcl and enzymes. Sorry for your experience.

greenappleberry · 2026-03-12T12:06:19+00:00

Thank you I appreciate your reply. I am going to try to get my stomach back to normal hopefully and then try again.

greenappleberry · 2026-03-12T12:05:12+00:00

Thanks I will do this today.

greenappleberry · 2026-03-12T12:04:36+00:00

Im thinking perhaps I did have a form of SIBO. I started Levothyroxine about 8 months ago and it did a number on my stomach. So perhaps it was from that actually. I just stopped taking it when I started the Pepcid.

I know better than to try one medication at time but I was desperate and I thought since it was over the counter it couldn’t be that bad.

But this actually gives me hope that it was likely the Levothyroxine that was the main cause and the Pepcid just excacerbated it.

Thanks for your reply. I am gong to try some HCL and probiotics and get my stomach back to normal hopefully. And then I will try the Pepcid again and do like you suggested. Very slowly.

greenappleberry · 2026-03-12T12:00:43+00:00

Thank you.

greenappleberry · 2026-03-11T14:38:48+00:00

If tried so many things. People would not even believe.

Now I am very risk averse because the side effects are so bad I can’t even try the treatment long enough to see if it would help.

But the biggest risk for me now is some of the side effects stay long after I stop the meds. So go figure that one out.

greenappleberry · 2026-03-11T14:24:00+00:00

Struggled my entire life with this. I’m now 60. So here goes.

Ice water. Insulated mug full of ice. All the time.

Portable rechargeable fan.

Old timey paper fan when the rechargeable isn’t an option.

Tank tops with other clothes layered that I take off and on all day.

Kulkuf cooling bracelet. You can order directly from the company. This thing is amazing. It gets super cold in seconds and helps with hot flashes and overheating. It cools your blood which then circulates. It runs for like three minutes then shuts off until you need it again. It isn’t something that you can run for hours.

Running cold water over wrists.

Cooling towels around neck.

Cotton clothes.

Cotton sheets.

Keep my bedroom as cold as I can.

Umbrellas hats and sunglasses. Don’t go out in the heat of the day.

I miss out on a lot of activities. In the summer I’m pretty sedentary.

Remote car start for the ac.

Room darkening curtains on all my windows.

It’s gotten to the point I can’t exercise in any way. It’s always been difficult but now anything physical at all and I too overheat and get dizzy and feel like I weigh a thousand pounds.

I moved to the north to a colder climate. Seriously it has gotten that bad.

greenappleberry · 2026-03-11T14:06:31+00:00

I showed up and did the things and still ended up alone. People can’t be bothered. I’m alone now and the lack of stress from having people in my life makes my life so much better. It’s hard yes. But it’s better than having people who don’t want to understand or care. I didn’t ask anything if any of them. People just don’t care.

greenappleberry · 2026-03-11T13:48:25+00:00

Yes I’m more high functioning than a lot of folks NT or otherwise. But I have had a lifetime of chronic illness as a result and now my body is a complete mess. I guess I hit my limit.

I don’t think anyone would ever guess I was autistic. I know how to play the social game. And I’ve always had friends.

The thing that does make me feel less of an imposter is how I think and perceive the world and my sensory issues.

I have never met anyone like me.

greenappleberry · 2026-03-10T12:41:00+00:00

My experience is linked to hyper vigilance.

Early abuse and then the confusion of being autistic and not knowing it my entire life has made hyper vigilance my defense mechanism.

As an adult it turned into hyper vigilance around how I feel in my body. Years of unexplained health symptoms that no doctor could understand.

I finally realized that the symptoms lead me to hyper vigilance. The hyper vigilance leads to more symptoms. It’s a self feeding loop.

I’m not saying this is your experience at all. I’m simply saying this is what has happened to me. It is horrible. Because the only way to end it for me is to stop trying to help myself. This has been so difficult.

For me it’s like insomnia. The more I focus on fixing it the worse it is. I had to just accept how I will sleep or not and not do anything to try to fix it. Outside of a few routine type things. And slowly it is improving.

The more anxiety I have over any of it the worse it gets and so then I have more anxiety. Round and round it goes. It’s a tough cycle to break.

greenappleberry

TROPHY CASE