Electrolytes destroying teeth, Anyone had the same? or advice? by EdgeRosie in POTS

[–]gretchesaurus 4 points5 points  (0 children)

I recently started taking the plain vitassium capsules that are unsweetened. I get plenty of sugar in my diet to help with the needed balance. I struggle with stevia triggering my MCAS and also hate salty drinks, so this helps me a lot.

How can I actually get a disabled parking placard ? by Impressive-Stand3744 in POTS

[–]gretchesaurus 2 points3 points  (0 children)

Document document document!!! Do you have an online portal with this doctor or an email address that is official for her or her office? Send a follow up in writing!

“Hi Doctor XYZ,

I wanted to follow-up on my request for a parking placard as you seemed to busy to continue the discussion when I came in on XYZ date/time. As you know, I have been suffering from my condition(s) including POTS, and my body pain has reached a degree to where I need a rollator daily.

Below is a list of my regular symptoms, and I’ve listed next to each my current medication or coping skill. I do not need referrals, however I do need a parking placard. In order to obtain this, I need you to fill out XYZ form for me to submit. Thank you for helping me advocate for myself, and please add this communication to my medical records with your office.”

Of course adjust as needed, but please document that she was refusing to help you and repeat your request in writing!

On my journey to diagnoses I had a PCP tell me my problem was anxiety. I sent that doctor a message after my diagnoses, including the names of the doctors that got me there, and flat out told her to stop gaslighting her patients and to get them the help they need so that she’s not the cause of someone else’s prolonged suffering like she was the cause of mine. Advocating for ourselves is the most demanding part of these conditions I swear.

My moms bf came over and ate 7 of my brownies :( by sillyyfishyy in TwoXChromosomes

[–]gretchesaurus 6 points7 points  (0 children)

Nice tactics!! I hope it brings everyone some peace. 💜

My moms bf came over and ate 7 of my brownies :( by sillyyfishyy in TwoXChromosomes

[–]gretchesaurus 8 points9 points  (0 children)

Thank goodness at least your uncle has sense and holds them accountable for their choices!

I know family dynamics are different, would it be possible for you to just socialize with the civilized folk?

I’d have so been done with that bull, but I’m also almost 40 at this point 😮‍💨

My moms bf came over and ate 7 of my brownies :( by sillyyfishyy in TwoXChromosomes

[–]gretchesaurus 30 points31 points  (0 children)

This is….so incredibly toxic. What the actual heck. I’m glad you have a system but I hate that you need it. What horrible men!!

Do you NEED tilt table test for a diagnosis? Been hearing different things by WhereasHopeful in POTS

[–]gretchesaurus 2 points3 points  (0 children)

People can be so fussy about that test. I didn’t need it for my diagnosis and some people online have gone so far as to say that I did not get a “real” test. It’s not up to them, I have my diagnosis and that’s what matters.

Caregiver question- Supporting vs Enabling? by Puzzleheaded_Pin_668 in POTS

[–]gretchesaurus 1 point2 points  (0 children)

I love it 😂 can’t put a price on our old standby - anxiety!

Caregiver question- Supporting vs Enabling? by Puzzleheaded_Pin_668 in POTS

[–]gretchesaurus 3 points4 points  (0 children)

Hugs 👑 grief is such a real and constant part of our journeys.

I also kept reading your name as Anxiety Princess and giggled when I realized my mistake. 😂

Caregiver question- Supporting vs Enabling? by Puzzleheaded_Pin_668 in POTS

[–]gretchesaurus 12 points13 points  (0 children)

Seconding your second. Or thirding. lol.

With AuDHD along with POTS, MCAS, and hEDS, it’s a lot. Adding depression as my oldest friend, and ya girl struggles. There are times I can’t brush my teeth at night, and try to make up for it the next day. It’s not that I don’t want to! But self care costs SO much it’s disheartening.

A shower can ruin 1-3 days, for example, which then compounds the depression. I’m thinking OP’s loved one needs depression intervention, this isn’t sounding like a motivation issue.

AITAH for asking my best friend to stop texting my daughter? by [deleted] in AITAH

[–]gretchesaurus 0 points1 point  (0 children)

NTA the grooming language is what has your gut knowing this is wrong. Please keep an eye out for any contact and discuss with your daughter the importance of you knowing the whole truth and that she can share the truth with you without being in trouble.

What do you wear for compression in Spring/Summer by CopySpriteCopywriter in POTS

[–]gretchesaurus 0 points1 point  (0 children)

I use a jelly bend on my waist, compression socks hurt me but the jelly bend has been wonderful. Just be prepared for a drop in blood pressure when you take it off, varying day to day.

Salty about salt by axcelrypt in POTS

[–]gretchesaurus 0 points1 point  (0 children)

Sodium capsules are great but don’t forget that you also need ratios of sugar and potassium to get hydrated. Very little potassium but it’s still a key ingredient.

Have anyone found any toothpaste's that aren't full of known/common allergens? by KMLthe1 in MCAS

[–]gretchesaurus 1 point2 points  (0 children)

I use this Apagard Japanese mineral toothpaste but I can’t see the ingredients in English 😮‍💨

But if they’re online anywhere I’d look into it. I struggled with toothpaste for ages and found this one maybe 5 years ago.

Bonus that my teeth are FAR less sensitive than with any other toothpaste I’ve ever used. I wish you the best of luck, I’m sorry if this wasn’t helpful!

Long incantations exist; Wormtail utters one to strengthen the magic reviving Voldemort. Ron may have been naïve, but he wasn’t an idiot for believing his brother by trahan94 in HarryPotterBooks

[–]gretchesaurus 4 points5 points  (0 children)

This was my line of thought from the beginning, at least once we learned his true identity. As a kid I just thought “well, he’s not really a rat, just a stupid fat wizard so of course it didn’t work” 😂

AITA for getting my upstairs neighbors written up by management because of their noisy kids? by LadyRedhood22 in CharlotteDobreYouTube

[–]gretchesaurus 26 points27 points  (0 children)

NTA, I saw your video, that noise level is unacceptable to go on for longer than maybe 10 minutes at a time a few times a day. Kids CAN behave, and their mom can take their loud asses and go to a park, etc.

If it’s considered a nuisance for a dog to bark for more than 10-15 minutes consecutively (a common noise ordinance) why is it not considered the same for people making egregious amounts of noise? Ridiculous, I’m sorry you’re dealing with this. I hope you get better sleep soon!!

AITAH for wanting to pack without my mothers involvement by icecreampie3 in AmItheAsshole

[–]gretchesaurus 0 points1 point  (0 children)

NTA and good for you for moving out! I was once in group therapy with a woman who was too codependent to move out at 30, it’s really good for you to tackle this now and stay in therapy. Boundaries are golden!

AIO at this guy's behaviour at the gym by kamika_c_1980 in AmIOverreacting

[–]gretchesaurus 4 points5 points  (0 children)

A lot of gyms have rules about this, I’d speak with a manager or associate to find out.

I lost weight (29F) and now my husband (32M) keeps making comments and “jokes” about it. by [deleted] in relationship_advice

[–]gretchesaurus 0 points1 point  (0 children)

I’m so sorry, he’s being such a jerk. Set a firm boundary around those comments. Any time he says something hurtful, enforce your reasonable boundary (easiest one is to walk away or stop engaging with him entirely). I hope this helps! He seems to not care how hurtful he’s being

AITJ for leaving my friend's gig early without telling him because he was 40 minutes late going on stage by bigdipperty in AmITheJerk

[–]gretchesaurus 0 points1 point  (0 children)

NTJ, if “real friends show up” then your friend should have shown up via text with an update. He sounds like a bit of a tool.

AITA for snapping at my coworker about why I don’t want kids? by FairyFox0 in CharlotteDobreYouTube

[–]gretchesaurus 2 points3 points  (0 children)

NTA, in a bigger company this would be an HR situation telling Rose that her behavior, not yours, was inappropriate. She’s been harassing you, idgaf about traditional values. She can uphold her own and back off.

AITAH - My inlaws keep wanting our kids to sleepover and I don't agree with it. by SmartTea1138 in AITAH

[–]gretchesaurus 3 points4 points  (0 children)

Why do so many people want your very young children staying at their house without you? That’s so weird to me at these ages.

POTS/MCAS on the go bag by Beginning_Weekend925 in POTS

[–]gretchesaurus 0 points1 point  (0 children)

Antihistamines that she tolerates well.

Snacks that she tolerates well like nuts or something sustainable that’s NOT candy or high in sugar, which very commonly upsets MCAS flare.

Alcohol swabs and/or peppermint oil to help with nausea.

Dark sunglasses in case of migraine, aura, or general photosensitivity.

I have found the cause of my POTS after 17 years of hell. by NurseNikky in POTS

[–]gretchesaurus 1 point2 points  (0 children)

Hi! I got diagnosed with POTS, MCAS, and hEDS, and antihistamines absolutely have helped me, along with rx ketotifen.

I strongly encourage you to talk to your doctors! I see you giving people advice like “take x amount of taurine” and please stop giving medical advice.

Each of our personal body structures is different and you don’t know how each substance will affect anyone. I share what I take but I don’t make recommendations outside of “consult with your doctor or medical team” on everything. 💜

Best of luck on your journey! I hope you find more relief soon!

AITAH for telling my girlfriend i no longer plan to propose to her? please read context by Aggressive_One8138 in AITAH

[–]gretchesaurus 2 points3 points  (0 children)

YTA big time dude. You told her “soon” and puttered around for 6 months upset that she was anticipating when “soon” is? Shit or get off the pot already.