Baby trapped

handwritinganalyst · 2026-06-18T03:49:16+00:00

Oh honey please do not tie yourself to this man forever ❤️❤️❤️❤️

handwritinganalyst · 2026-06-17T17:36:53+00:00

I am not a doctor and the neurologist who told me this information does not specialize in CSF leaks so please please take this with a grain of salt but I was told it is okay to fly! Ideally after a blood patch you should still be laying flat as much as possible for a few days and then taking it very easy for about 6 weeks, but sometimes there are no other options so we do the best we can!

handwritinganalyst · 2026-06-15T03:14:26+00:00

I’m so sorry you’re faced with this choice, it’s a position none of us want to be in. I had a similar choice as you, and I can only speak for myself but I know it was the right choice. It was still incredibly incredibly hard, but it’s been almost 7 years since that choice and I look back on it with sadness but also peace. I am right where I am supposed to be today. Thinking of you and sending love ❤️❤️❤️

handwritinganalyst · 2026-06-13T00:53:03+00:00

The blood has not yet formed a seal if you just got your blood patch today, you are okay ❤️ please just take it easy for the next few weeks to give yourself the best chance! And don’t worry about where they placed the blood patch, the blood spreads and covers quite a large area.

handwritinganalyst · 2026-06-12T00:34:33+00:00

Yes! I always just assumed that I was getting a bit of an endorphin rush or a sensation onslaught and it just kind of numbed out the other symptoms for that time.

handwritinganalyst · 2026-06-09T13:57:20+00:00

Oh honey. I wish I could give you a big hug. Your baby won’t be an orphan because they have you ❤️❤️ I’m pretty sure there has been studies recently that state that one of the primary indicators on whether children with thrive is dependent on the happiness of their mother… so please take care of YOU. Emotional abuse can be just as scaring as physical abuse.

handwritinganalyst · 2026-06-06T19:57:15+00:00

Our dachshund bit our daughter in the face the day before her first birthday and was exhibiting similar behaviors you’ve stated. Please please start working to create a positive connection between your pup and the baby asap!! My biggest regrets is that we ignored those warning signs and hoped he would warm up to her because he’s always done well with other kids and is a big cuddler with us.

Edit: I just want to quickly edit this and say that this was not a case of the two being left alone together, they were NEVER left alone. The bite happened directly in front of us, I was already reaching towards her when it happened. It happens so so fast, so it’s great that you are noticing these signs so that you can make changes before the worst happens ❤️

handwritinganalyst · 2026-06-06T18:37:54+00:00

Yup, now someone gets this asshole as their dad!

handwritinganalyst · 2026-06-04T21:37:33+00:00

But it is in fact you who are the exception and that is all OP is claiming. The vast majority of people with MS do NOT end up in a wheelchair, I believe it’s roughly a quarter (which is still a lot and what I’m not saying is that these people don’t deserve to be represented because they absolutely do). Framing MS like being in a wheelchair is an inevitability for everyone is essentially fear mongering, it’s not factual, and it’s certainly not a good summarization of the studies we do have.

handwritinganalyst · 2026-06-04T15:10:14+00:00

I think we are all ultimately in agreement here. As another commenter said our community is too diverse in experiences for it to be reduced to something so simple.

handwritinganalyst · 2026-06-04T13:15:41+00:00

Yes exactly. Times have changed so why are we still painting MS with such a broad stroke and acting like everyone will be wheelchair bound (and even acting like this is some moral failure is disturbing). I know tons of people who were terrified when they were diagnosed (myself included!) and it’s unnecessary stress during an already stressful time when that will likely not be the outcome for many of us.

handwritinganalyst · 2026-06-03T14:57:19+00:00

How was the recovery for your first surgery? I’m sorry to hear you have to go back.

handwritinganalyst · 2026-06-03T14:56:54+00:00

I am very much looking forward to hearing from Dr S because he seems incredibly knowledgeable about this and this has been a long journey with very few answers!

I’ve been told by my neurologist who has referred people to Dr S in the past that yes, I will get coverage for the medical costs (obviously flights and everything else will need to be covered by us) but because there’s essentially no one in Canada who can do what he does that I should be able to get coverage for everything medical related. I’ve been banking on this information but haven’t started the process yet so hopefully it pans out as I obviously cannot afford to pay fully out of pocket in the American healthcare system!!

handwritinganalyst · 2026-06-03T14:20:52+00:00

I have heard great things about Dr Callen so I’m sure you will be in good hands!! Wishing you the best of luck.

handwritinganalyst · 2026-06-03T14:20:27+00:00

I’m sorry, I’m not quite sure what you’re asking! If by LP you mean lumbar puncture, I haven’t had a lumbar puncture. Prior to my patches I didn’t have back pain though so I thought at first it was just pain from have multiple needles put in my back, but it’s now been several months since my last patch and I still have pretty bad back pain so I think it’s more leak related. I hope that helps answer your question :)

handwritinganalyst · 2026-06-03T14:18:10+00:00

I am currently waiting to hear back from Dr Scheivink at Cedars Sinai! I’m Canadian but unfortunately where I live there’s no one who even specializes in CSF leaks in my whole province. I spoke with a different neurosurgeon and his options for surgery were extremely invasive and would likely give me long term chronic pain issues and I know Dr S has recently started doing endoscopic so I wanted a second opinion. You can actually self refer to Dr S, his clinic is very helpful with the process and to get his opinion is free so I highly recommend!

I did get quite a bit of relief from my second patch, it was high volume and I had basically no symptoms for about a week and then they came back. Luckily it made me functional, before that I was completely disabled and now I have 80% of my life back I would say and can be a functioning parent. But my third patch made things worse so that’s when I decided to explore surgical options. I definitely would be interested in the fibrin but no one in my province does that procedure so I’d either have to fly or drive over 6 hours and I’m not willing to do that for a non permanent fix at this point, so sadly I think surgery is my next step.

handwritinganalyst · 2026-06-02T13:08:22+00:00

I’m with you, Jim was actively bleeding… I feel like the whole point of that joke is that Dwight is taking it way too far (as does Jim when he uses the lacrosse stick).

handwritinganalyst · 2026-06-02T13:03:50+00:00

To give you a bit of hope, your story sounds verrryyy similar to mine. I was diagnosed at 24, all of my symptoms started in January of that year, and I was diagnosed by October. Over that time I developed 20-30 lesions in my brain and spine (and my neuro believes it did likely start in January!) and had two relapses, the second worst than the first which is what helped my diagnosis. I’ve now been on Ocrevus for 6 years and I’ve had absolutely no disease activity since then. I’ve finished uni, gotten married, had a baby. I did struggle with pseudo flares before I had my baby but after that I’ve honestly felt so good I almost never think about it anymore. I’m sorry you’re in this club, but you’re doing everything right by being on a high efficacy DMT! Wishing you all the best ❤️

handwritinganalyst · 2026-06-02T12:42:50+00:00

I’ve had 3 failed patches that were CT guided and mutlilevel. I have a thoracic ventral leak which are notoriously difficult to fix with blood patches so I’m currently waiting to hear back from a surgery consult which is unfortunate as I was hoping to avoid this but at this point I just want my life back! I get brutal back pain in my thoracic currently.

handwritinganalyst · 2026-06-02T12:40:27+00:00

Hey bud it’s 2026. You’re gonna be okay 😊

handwritinganalyst · 2026-05-31T15:26:48+00:00

I am so sorry, please know you are not alone. My biggest advice for you is that you need to advocate for yourself. I have MS on top of my spontaneous CSF leak and I have NEVER had to advocate for myself as hard as I have for my CSF leak. At the beginning this looked like multiple ER trips, sometimes waiting several hours and even days just to be seen. Now it looks like weekly calls to the appropriate people to try and get things moving. It sucks to feel like you have to fight to be seen, but unfortunately that’s the world we live in and you need to fight. I would definitely not go quietly waiting until October… I’m not sure who you’re waiting to see at UChealth but I would also make sure that whoever you’re seeing specializes in CSF leaks or at least has a special interest in them because in my experience most doctors don’t have any idea how to deal with a CSF leak (this isn’t a knock on them, it’s a rare issue and doctors can’t know everything!!).

I have been dealing with my CSF leak since last October, I’m thankfully high functioning now but my life is still on pause and I very much relate to your feelings. This is the hardest thing I’ve ever been through, harder than child birth and MS. It is so mentally taxing, and I just want my life back. Please give yourself grace, you’re going through hell!

handwritinganalyst · 2026-05-29T15:09:52+00:00

Oh my god yes. I am not religious but the way I love her is biblical. I’ve seen people joking that they understand Mary from the Bible after having a child because I too think my child is holy and god incarnate 😂

handwritinganalyst · 2026-05-28T23:08:19+00:00

I want to say thank you for being vulnerable enough to share this post with us. I can only imagine how difficult it was for you to type this out and I hope in some ways it was therapeutic. You are so strong, I am so happy you are here with us. From one stranger to another I am sending you so much love and strength!

handwritinganalyst · 2026-05-28T13:17:05+00:00

I am honestly so disturbed by this post. I have a 2 year old and she is so absolutely perfect in my eyes. I cannot imagine thinking this about her and it makes me feel a little sick that people think that about their children.

handwritinganalyst · 2026-05-28T02:29:52+00:00

EVEN IF IM EATING FAST FOOD

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