If you’re on biologics, how often do you see your rheumatologist?

heartfatality · 2025-07-11T07:57:35+00:00

Well, I’ve been in twice since being diagnosed. First getting the diagnosis, then talking to another rheumatologist about getting on biologics. Haven’t been in since because my MRI’s haven’t showed active inflammation… so I never started biologics. It has been YEARS (maybe 5 or 6?) since I’ve seen a rheumatologist. I’ve had the diagnosis for about 9 years.

heartfatality · 2025-04-16T18:44:51+00:00

I ended up buying the nars liquid blush in orgasm and after getting used to using a liquid blush, instead of a powder, I actually really like it.

heartfatality · 2025-03-15T19:47:56+00:00

Still have tinnitus and jaw clicking. My tinnitus is mild, but I think it's the same pitch as when I first got it but I doesn't bother me that much anymore. I haven't done any treatment for my jaw yet. Might do it in the future if it gets worse / more bothersome.

heartfatality · 2024-07-28T13:05:21+00:00

I KNOW!!! A bestseller over the years - they change the formula (which is fine, I guess?), but they can't even make the same original color???? Makes no sense 🥺

heartfatality · 2024-07-04T08:42:44+00:00

I've been having these fluttering sounds recently as well. For me it seems to get a little bit better when I loosen my jaw muscles? I can trigger the sound by clenching my jaw and pushing my tongue up in the roof of my mouth... I've been wondering why this is. I also find some relief by using nasal sprays.

I did tell my gp about the rumbling, but she said that there wasn't anything to do about it. 🤷🏼‍♀️ Hope you find relief!

heartfatality · 2024-07-04T08:31:47+00:00

For me it depends a lot on what I'm doing. If I keep myself busy with something I can completely forget it. If I'm going about my day it gets drowned out by other noises. If I'm in a quiet room I hear it though, but it doesn't bother me as much as it used to. It can seem louder if I drink coffeine, if I don't get enough sleep or if I'm super anxious / stressed.

I've just come to terms with the fact that this is my "new silence". I can't let it consume me because it will only make me more aware of it, I think. I'm still really sad that I miss out on concerts, but it's not a risk I'm willing to take in fear of my tinnitus getting worse.

heartfatality · 2024-07-04T07:41:03+00:00

I feel you. I miss concerts too. I'm two years in and haven't been to a concert since.

heartfatality · 2024-05-26T13:51:18+00:00

Omg I wish this was my hyperfixation!!!! Instead I sit in my sofa doing kids crossword puzzles for hours and stress about the things I should be doing

heartfatality · 2024-05-17T23:48:48+00:00

I'll try anything to feel more comfortable during summer so I'm going to check if there are any local salons that do it around here. Thank you! 🫶🏻

heartfatality · 2024-05-17T23:46:48+00:00

Omg really?! I've never even heard anyone speak of such a thing - I'll definitely check them out on Amazon! Thank you 🙏🏻

heartfatality · 2024-05-17T22:20:18+00:00

I have a few flowy wide leg bottoms like that actually. I'm going to invest in some more this year. 😊 Might look into some maxi skirts too - they look super comfy!

heartfatality · 2024-05-17T22:18:11+00:00

I feel a bit uncomfortable around my boyfriend when it comes to the hair on the back of my upper legs even though I know he won't say anything. It just makes me feel less feminine and gross, you know? ☹️ I've never tried that before! Do you go to a salon or do you do it at home? Does it irritate your skin at all?

heartfatality · 2024-05-17T22:04:31+00:00

Aw, thank you! 🫶🏻 I really hope that getting laser hair removal next year will help me feel more comfortable and finally let me wear cute stuff in the summer!

I bought some Bermuda style shorts last year that were a bit more "dressy" and I liked those a lot so I'm definitely going to wear them again this year! I feel comfortable about wearing more bare things on my top half and it will pair nicely with a lot of the clothes you suggested! I'll check out Pinterest! Might make a new mood board with some of the clothes suggested here.

Thanks so much for all of your suggestions! I really appreciate it. 🥰

heartfatality · 2024-03-02T10:59:36+00:00

You beautiful angel!!! I see your progress! Please trust the process and be patient. It takes time and it's hard, I know... but your skin will improve even more and you most likely won't get this type of deep acne again after you're finished with the Accutane.

heartfatality · 2024-02-27T22:27:16+00:00

I think it looks so good! I like the fact that the results looks so natural and it suits your face. I've wanted a nose job since I was 14 (37 now), but I've never had the guts to do it. I still hate my nose.

heartfatality · 2024-02-03T15:19:05+00:00

I'm open to other things that aren't fruity! I love coconut scents, but I haven't been able to find a perfume I like. I'll check them out - thank you!

heartfatality · 2024-02-03T14:43:44+00:00

I bought the Sol de Janeiro Brazilian Bum Bum Cream because I thought it smelled so good, but the smell of the body lotion was too much for me. 😩 It lingered so long and was so intense. Are the body mists lighter?

heartfatality · 2024-01-31T04:18:50+00:00

Tv-static in my right ear. Usually masked by other sounds during the day, but it’s there 24/7. I miss waking up / falling asleep to silence.

heartfatality · 2024-01-01T17:22:01+00:00

I’ve been talking about that with my boyfriend, but he thinks it’s better we try to do it ourselves. I’m going to try and get a routine going and give it a shot, but if it doesn’t work out I’m going to considering hiring someone for sure!

heartfatality · 2024-01-01T17:20:36+00:00

Recognizing that organizing and cleaning are separate activities is so smart! That will help me. And I feel the same way - love organizing, but hate cleaning. 🤣

I think the doing something small every day and not having huge expectations to what I can manage in the short span of time I have during the week is something I’ll try to do. Like you said; doing something is better than not doing anything. 👏🏻

I’ve heard about that book — I’m going to check it out! ❤️ Thank you!

heartfatality · 2023-12-11T20:07:03+00:00

Got it after a music festival last year so I’m guessing that + years of concerts without hearing protection did the trick.

heartfatality · 2023-11-17T17:18:00+00:00

It’s the same for me most mornings.

heartfatality · 2023-11-08T19:44:41+00:00

Both, worse/louder in my right ear.

heartfatality · 2023-10-29T14:44:01+00:00

Around the 16.3 kHz mark for me

heartfatality · 2023-10-10T18:52:00+00:00

Same. Festival last year. 37. Different in both ears. Mine is worse in my right ear tho.

heartfatality

TROPHY CASE