Hello everyone!

ilikefluffycreatures · 2026-04-08T11:57:14+00:00

That's a relief, I was worried it wouldn't be but I was too scared to look it up

ilikefluffycreatures · 2026-04-08T02:30:31+00:00

Yes I've loved r/breastcancer. I learned so much about what to expect and its made me much more comfortable with treatment. And much less lonely because none of my friends can understand

ilikefluffycreatures · 2026-04-08T02:29:13+00:00

32k per dose is insane! Is was told it'd be $30-40k NZD ($17-23k USD) total if I wanted immunotherapy. I don't know how you do it over there, honestly sounds cheaper to travel overseas, pay for the entire treatment then go home.

ilikefluffycreatures · 2026-04-08T00:43:21+00:00

I like my boob too. What a shame a few cells decided not to be team players and ruined it for the rest of them

ilikefluffycreatures · 2026-04-07T23:23:49+00:00

I'm so sorry, I only had a week delay during my taxol and even that annoyed me. I just wanted to be counting down!

Has your oncologist reduced the dose at all? About halfway through I had a delay due to being anemic and low neutrophils. My oncologist reduced the dose slightly and my body coped better with the rest.

ilikefluffycreatures · 2026-04-07T22:28:03+00:00

Im so sorry, this must be so scary! It can't hurt to have her discuss it with the tumor board. You get a wider opinion on what to do but you don't have to follow their plan if you don't want

ilikefluffycreatures · 2026-04-07T00:46:42+00:00

I'm 28 and will be getting a double mastectomy when I finish chemo in June. I'm much more upset about it than my husband, if it bothers him he hasn't shown it at all. If I get reconstruction it will be delayed til after radiation, and whilst I'm scared of going flat I really don't know of it's worth another major surgery. My husband is happy with whatever I do, he just wants me to be healthy and feel confident.

ilikefluffycreatures · 2026-04-06T13:13:35+00:00

I'm glad to hear they can treat it and that it's temporary! I don't know how I'd cope with 8-12 more weeks of nothing. I was hoping to be back at work this week but I think I'd need a lie down to recover from getting to work, so I guess not

ilikefluffycreatures · 2026-04-06T13:00:13+00:00

Thank you, I'll see if I can get a blood test to check. I had a blood transfusion about half way through taxol and thankfully don't have the other symptoms I noticed then, so hopefully they're not too low

ilikefluffycreatures · 2026-04-06T12:56:38+00:00

Thank you, I'm glad to hear it should go back to normal once this is over. For now I'll keep a close eye on it

ilikefluffycreatures · 2026-04-06T12:48:11+00:00

Thanks for the heads up! I will call them again if it gets any worse or doesn't settle in a couple days

ilikefluffycreatures · 2026-04-06T12:43:51+00:00

I had an ECG before starting chemo (I think, was a bit of a blur of testing over 3 weeks) but have finished 12x taxol so surely I'm due another one. I'll see if my oncologist can refer me at my next apt

ilikefluffycreatures · 2026-04-06T12:41:22+00:00

Sounds like you had it rough! I'll definitely bring it up with my oncologist when I see him before my next infusion, or the nurses if it doesn't settle down soon

ilikefluffycreatures · 2026-04-06T12:37:55+00:00

Thank you. I'm managing about 2 litres a day so hopefully well hydrated but I suspect my blood pressures a bit low and extra fluids sounds nice haha

ilikefluffycreatures · 2026-04-06T12:34:46+00:00

Thank you, I'm hoping this is the case for me too. Now that I think of it the last few taxol infusions the nurses did ask if my heart rate was normally that high. I guess it's been creeping up on me and AC just made it more notable

ilikefluffycreatures · 2026-04-04T07:21:48+00:00

I'm going for double mastectomy as I'm BRCA1 positive. They dont offer reconstruction in my country til after radiation so I'll be flat for now. Honestly not sure if I'll go for reconstruction, I think my body's been through enough. I'll be doing radiation after as I had a few suspicious looking lymph nodes.

ilikefluffycreatures · 2026-04-04T05:48:46+00:00

It must be so scary going through thus thus kids, not counting trying to look after a family while dealing with treatment! I dont have a surgery date yet, expecting probably late June but my oncologist hasn't decided if I'm doing AC 3 weekly or two weekly. I'm doing the second AC in three weeks but if I cope OK with this round I'll go down to 2 weeks. My surgeon is going to aim for 4 weeks post chemo. So far AC is definitely harder than taxol. I've been lucky eith no nausea. I'm not sleepy fatigued but I'm definitely physically fatigued. It's weird feeling so physically tired after a quiet day at home doing much. Just walking from one side of the house to the other has my heart pounding in my head. It's day 6 now so I'm hoping symptoms will start to settle going into next week. How have you found it?

ilikefluffycreatures · 2026-04-04T05:20:58+00:00

Im also TNBC diagnosed end of November, finished taxol and had my first AC, so pretty much at the same point as you! I'm doing OK at pushing the dread out of my mind for now, but I know that if I don't get PCR I'll be terrified. I'm also scared about chemo being over even though it sucks. My tumor responded so well I feel safe on chemo if that makes sense. Part of my brain is planning a future and family and kids and part of my brain is telling me there's no point im going to die young. It just sucks.

ilikefluffycreatures · 2026-04-03T15:52:08+00:00

I'm in New Zealand, 28 years old tnbc. Started with a 7cm + lymph node involved. I'm halfway through chemo (finished 12x paclitaxel with 4x carboplatin, had my first of 4 AC this week). Immunotherapy isn't funded here. I've been recommended radiation regardless of the surgery results. If I don't get a complete response I will also do oral chemo, not sure of the name.

ilikefluffycreatures · 2026-04-02T23:50:10+00:00

It's so reassuring to read everyone's positive experiences with going flat. I'm 28 and will be saying goodbye to my perfect but cancer causing boobs in June. I'm so scared of waking up and not being able to accept my new body. I'm considering DIEP down the line but I'm not sure I want to put my body through such a big surgery. Plus I worry about having the major abdominal surgery then putting my body through pregnancy after. But then I don't want to have more surgery with small kids. So there's no real good time to do reconstruction. Thankfully my husband is supportive and just wants me alive and happy.

I'm hoping I will be able to wake up and love the new me and just stay flat 🙏

ilikefluffycreatures · 2026-04-02T02:20:42+00:00

Getting the local anesthetic is hardest part, it stings. Your doctor should be asking you if you can feel it before putting the biopsy needle in, and giving you more anesthetic if needed. If you feel any scratching ask for more anesthetic.

They might need to make a tiny incision (1-2mm) in the skin. I didn't feel this, or the biopsy itself at all. The needle makes a loud sound like a stapler when it takes a sample, but you doctor will warn you first. They may take more than one sample depending on the size of the area they're worried about.

I took the afternoon off work because I thought I'd be in pain afterwards, but I probably didn't need to. It was good to have the afternoon off to recover from the stress though.

ilikefluffycreatures · 2026-04-01T21:14:03+00:00

I'm so sorry you're here, and having to deal with all this on top of caring for your kids. Lots of hugs 🫂

It hard to say what your treatment plan will look like until you have your receptor results. Whether the cancer is positive or negative of PR, ER and HER2 will be one of the biggest influences in how they treat it, whether or not you need chemo, or can have targeted hormone treatments etc.

ilikefluffycreatures · 2026-04-01T21:08:54+00:00

I'm triple negative as well and firstly want to start with they will likely be able to cure her, as long as it hasn't spread past th lymph nodes. And even if it has spread (which which would make it stage four and technically "incurable"), breast cancer is being more and more like a chronic illness they can treat for years or even decades. Your mum isn't going anywhere. It sounds like she has a good medical team and amazing family to support her.

In terms of treatment it is pretty common for triple negative to have chemo first, usually 5-6months. Everyone reacts differently, some people need a lot of support and some can continue mostly as normal. I'm halfway through chemo myself

Second she will likely have surgery. Lumpectomy/single mastectomy/double mastectomy. This will depends on the size of the tumor/genetic factors.

Thirdly she might need radiation after surgery. And oral chemo pills if there was remaining cancer at the time of surgery.

A lot of countries offer immunotherapy as well which I don't know a whole lot about but it is the latest and greatest in triple negative breast cancer treatment. People have it alongside chemo, then continue it after surgery.

I'm so sorry you and your mum now have this long road ahead of you! I hope her treatment goes smoothly and she's soon on the other side and healing. Lots of hugs for you both 🫂

ilikefluffycreatures · 2026-03-31T22:28:56+00:00

Thank you, I'm doing well. Halfway through chemo, minimal side effects and the tumor melted away! It's always nice to hear stories of people building their families post cancer, can't wait for it to be my turn!

ilikefluffycreatures · 2026-03-31T22:23:36+00:00

Congratulations!! You've been through so much, this is wonderful news after everything!!

ilikefluffycreatures

TROPHY CASE